- Country
- England & Wales
- Charity number
- 1137820
- Status
- Registered
- Registered
- Sept. 6, 2010
- Legal form
- Charitable company
Address
- Address
- VICTORY HOUSE
CHOBHAM STREET
LUTON
LU1 3BS
Activities
Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.
Classification
- How
- Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end |
Income |
Expenditure |
| March 31, 2025 |
£341,168 |
£416,710 |
| March 31, 2024 |
£305,881 |
£318,560 |
| March 31, 2023 |
£365,072 |
£353,849 |
| March 31, 2022 |
£319,758 |
£311,442 |
| March 31, 2021 |
£347,557 |
£278,466 |
Trustees
| Name |
Appointed |
| Clive Richard Beadle |
Sept. 10, 2016 |
| David Alfred Rogerson |
Sept. 10, 2016 |
| Debbie Cavaldoro |
Sept. 11, 2025 |
| Dee Cowburn |
Sept. 11, 2025 |
| Elliott James Le-Warde |
April 30, 2021 |
| Joanna Campobello |
Dec. 2, 2017 |
| Michael Frederick Britten |
|
| Mary Forest |
Sept. 11, 2025 |
| Philip Ronald Gander |
Sept. 10, 2016 |
| Pauline Sophia Bardon |
Dec. 7, 2019 |
| Romi Loffler |
Sept. 25, 2024 |
| Stuart Neil Ledger |
Jan. 23, 2019 |
| Thomas Gander |
Sept. 11, 2025 |