RF_CISTERED COMPANY NUMBER- 7339522 {Engl2Dd and Iwalesj RECISTEREDCHARITY P'L'MBER: England and Wales- 1137820, Scotland: SC047369 REPORTOF THE TRUSTEES AND UNAtiDITED FINAlCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2023 FOR RE UK A COMPANY LI.MITF.D BY GUARANTEE Chariot House Limited Chartered Accottntants 44 Grand Parade Brinhion East Sussex BN? 9QA
RETT UK A co1PANy LIMITED BY GUARANTEE CONTENTS OF THF. FINANCIAL STATE,MENT FOR THE YEAR ENDF.D 31ST [ARCH 2023 Pagt Chair'5 Report 2022-23 Report of the Trustees Independent Examiner's Report 14 Statement of Finaneigl Activities 15 Balance Sheet 16 to 17 Notes to the Finaneial Statements 18 to 26 Detailed Statement of FinaThcial ActiNities 27 28
RETT L'K .4 COMPANY LIMITED BY G ARANTEE CHAIR'S REPORT 20?2-?3 FOR THE YEAR ENDED 31ST MARCH 2023 Ti has been a busv vear for Rett UK and a success1 one. The external environment continues to be challcnging. with ihe c(1st-of-living cri%is ¥olioM'jnu hard on the heels of the pandernic, puttino more strain on Reti families H,hile also makinu it harder for charity to raise funds to support them. Internally the oraanisation has a150 faced chall¢nges wirh several chanues in peTsonnei both within the Board and ihe siaff ieam. Despiie all of this, R¢n UK has continued 10 maintain and even expand the support provided to Rett families this veat. This Ès a compliment to the hard-work and expertise of Rob Adamek and the whole team of slaff and volunteers thaÉ keep5 Rett UK ticking alon Mv heart-felt thanks to every one of you. I would like to thank Hilary Tnjss. my predecessor as Chair of Tru5tees_ who stepped down at the December ?0?? Board meetints HilaTh led the charity with knoM'l¢dge. passion alld COTllmitmeni for 7 years. sterrino us ihrough soire challentsjnu tieS and leaving such a w'ell-rnn organisation that m5. job these nine months has largel>. been strdighi forward. coniinuin? on the course that Hilary had alreadv set for the Charitv. There have. hom'ever, been changes on the Board of Trnsrees. We have welcomed M'o new trustee5 this N'ear.. D¢bbie C&i'31daro and Dolores Cow.bum. Not onl!, do ilie!." brints e.Kptrttse in goi'emance. Cornmunications and public relations. bui we noM. also nave a gender-balanctd board which is sllrel} appropriaie for a charirv that deals Ivith a svndroiiic primaril). arTecting females. As we ivelcome each one of them, we also >ay giKKtbye and thank )Jou to Ali Sadek who leavES the Board to conceniraie on his work as a lawyer. a local councillor and a new father. Followin£ the pandemic. it h&8 taken titn¢ to rebuild income fForn ¢vents whether organised by Rett UK or exÈern&l eii¢nis such a5 the Lotidon Mardthon. Homever. l am pleased to report that the income in ?0?21li ha5 now bounced back aboke pre-pandeTr.ic l¢N'els. so a very, bits Ilallk yt>u to everyone m.ho rdn. walke(L cj'cled. baked erc for Rett UK this past vear over £ 100,000 M'as raised ihrougji eN'ellt5 this J'ear {includiftg an extrdOFdinar)' ?7 Kett UK participants in the Great North Run). Most amazingl), incoine raised ihrouoh ordnts and trnsts (including £74,0(Kl carried forward from lasi year's major CAF ran1> was double that achiek'ed in ?019-?O- a tretnendou5 aehievement. Success in fundrdising enables us to achieve much more in 5UPPgrt of Rett families. The familv support team of Julie Ben50n and Donna Tinch has handled ?J18 indivÈdual cases rhis )ear coi'erints 877 families which T5 a tremendots% achievemeni for such a Small tear. Our ground-break-ing communicaii0Trs PrOraTMe continues io from sirenrNih li) 5treRoth, led by Gill Townend. Abigail Davison Holt and Trdcey Campbell. ably supported bj. a network ot Rerwional Cotnmunications Champions. This vear a more Strucbjred approach of individual assessments, clinics, training sessioiis and webinars has been developed. bringin<y more people irtto the programme and working to enhance the 5ki115 of those wh() have been using e)e-gaze devices and other tools for seveAI )eat5. "I'hi% Jear we hai'e also been able ro invest in our IT s¥stems. This is vital io ensuring Ehe smooth-runnTnts of the ornanisation as il groivs and develops. If haven t already done so, please log-on and see the chAnues ai ww".w.retruk.or Looking forward, Rett UK is plannsn" big Famil}. Weekend in Oct(kn 2024 and has swred to raise the required funds. The Charity is continuin¥ to develop its links M'irh ReveT5e Rett and exploring ways the two charities can work together e enter cxcilintr ¥ phase of clinical des'elopment and nene th¢rap)" treaimenis. These advances are to be welcomeLfj and celcbraied, althou¥h l think we should remain cautlOU5 uaLiI there is cv*den¢e-based research io dcmonstraie their efticauy and Safety. However, Ihe primaT)' work of Rell UK ts'ill eontinue to be supporting ihe da)-lo-day nttds ot Rett faTnilie8 and prowiding the re%ources to m&ximise ihe Ikfe experience of each individual M'tth Rett s)'ndrome. That is why H'e are here. and why Ei is so pleasing to b¢ able to rert oll the progress we have made during the ?022-2J year. Dab'id Rogersu Chair of Trustees Pe I
RETT UK A COII1PANTr' LIMITED BY GUARANTEE REPORT OFTHE TRtiSTEES FOR THE YF.AR ENDED 31ST MARCH 2023 The Iruslees who are also directors of the charity for the purposes of ihe Cornpanie5 Act 2006, present their repon M"Ith ihe financial 51atements of the chariti. for the vear ended 3 Isi Mar¢h ?0?" The tnistees have adopted the provisions of Accounting and Report<> by Charities.- Sratement (Ff Recommended Practice applicable to charities PTeparinu rheir iccounts in accordance with ihe Fin4mcial Reporting Stsodard applicable in ihe UK aThd Republic of Ireland IFRS 102) {effective l January_ Pa(te 2
RETT LK ,1 Co.MP.4" LIMITED BY GUAILANTEE REPORT OF THE TRUSTF.F.S FOR THE YE.4R ENDED 31ST MARCH 2023 OILJECTII'ES AND ACTIVITIES Objectives and aims .IboJt t Rett Sjndroffle Reti UK is the national chariry dIcated io supportiTro and empoi%¢rtng people with Rett syndrome and theEr faTnilies. Imagine being told the toddler you thought was health)". bui perhaps slo. to progress. fact had a Tare and devast8Eing di%ahilii¥ thai w'ould leave them Tteedino lifelong 74,.'7 care. That 15 the realitv foT parents receiving a diayosis of Rett SVRdroine for their child. Although present at birth. Rett sjndrome is usually undetected until a aJOr reuression CUrS at around two J'ears of age. Children lose acquired skills and the CQTnplexiry of ihe disabilil). Is revealed. R¢tt Syndrome 15 a severe. life long. life limiiing generic neurolotrical disorder.. the most common cause of profound disabilities affecting females I l in 10.0001. Our services empower families, build their emotional resilience. 5UPPOrt wsitive rel*ionships withirt the family and help ridlice isolaiiort iTnprQing the health and itrell-beinu of all famil!. members including the person with Rell svndrome. When
Jour GP has never heard of it and the paediairician onl)" recalls Feadin(y aFM)llt li in a texi tK)ok. Ihe families feel they are in a black hole. Ac¢e5s io hi" .h quali infomaiion. advice and support is not only viral bui life changing. Our national telephone helpline is the first point of call for d¢speratety WOled parents. jum ai the point of dia(Tnosis but at Irionient5 of crisis.. a sudden deterioration in their dallgb-ierfs health. cuts w respiie and eare packages. bereakemeni. We advocate on their behalf especially for education. comfflunicaiion trdining and therapy services. LoLal familv led suppon uroups. a paren(-tfrparent coniact netWOTk. acces5 10 hiJo quality. seminars from the IJK'S Icading e.Kp¢rts on Rett si'ndrome at Retsional Roadshows and Famil!, Weekends and. more recentlv, online provides families with up to date. accurate infomiaiion in subjects like epileps}'. spinal surgerv. sleep and breathin helpin" them with management oi the disability. We also have a dedicwed projeci helping people wilh Rett symdrome to Tllaxitnise their c¢iniD.uiiication POTential and provide 5UPPOrt. training and advice io parents. care providets and a UK wide netii'oik of speech and languaoe tiierdpists who are workiTrfT with individual w'ho h3ve Rett sdrOMe. Objectiyes and &irn5 Our purpose.. Rett UK is a nati04al charity dedicated io supportinu and etrtpawerino people wilh Rett s¥'nLtrome. their families and those iiivoived in providing theii care. W'e are a membership organisation and welcome lnetnbers from the UK and abroad. Our strategic aims are io ... provide professional familv_support ser%'ices. acti&'ities and events at a local. reoioftal and national level eduiaie health. social care and education professionals at4)ut Reu syndrome to enable quicker diaJ(F osis and improved randards of care ihrollghoui the UK advocate for people with Rett syndrome to be given ihe support and resources needed to be active communicatots prgtnote, suppon and encourage rtarch into ne%. therapies and treatments for Rell syndrome Our vision... Thai eeryOne wilh Ren syndroTne i5 given every possible oppontsnity to achieve their Individal TK)tenttal $0 ihat they Tnav live tb.eir life io Ihe tull. Page 3
RETT L'K A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEF.S FOR THE YEAR EDED 31ST MARCH 2023 OWECTIVES AND ACTIVITIES Publlc benefit In shaping our objectives and plannin our activities for the Year. the Tnjsiees have uivert consideration to the duties set OJI Ill section 17(51 of the Charities Aci ?01 I to have due reuard to public benefEI and io the Charilv Commission GuIdaCe on public benefii. In particular. the Trnstees have Considered how the planned activllies will contribute to ihe overall aims and objeciives that they have set. 'l-he I rustees believe that ihe parauraph. specifically on -Achiei'ements and Perforn]an¢e" for the year, relate in detail the benefit that the charity provÈdes io the public. Page 4
RF.TT UK A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2023 ACHIEVEMENT AlD PERFORMANCE c.haritable activitie5 This j'ea.. has been lar more upliftino in Cthird4 10 th¢ previous one. We've remained 5teadfasi in our comnlitment to eonsisientlN proTr"Ede unave[l suptx)n to our cherished families and members of the Rett community. Over the year we compl¢i¢d nuTnerou5 successful projecr& including noi one bul two in-person events after 2 hiatu5 of two years. Oiii enaemeI has ¢xi¢nd¢d to attending a multiwde of meeiings. where we've been able to beside families duiing their most ditficult momeTkiS. offering Televani advocacy support. We also coniillued to connect families with a network of Rett profcssionals. f05teriT)g conneciions rh* might otheti¥ise never have been made. 'e end the year 10 3 1st March 2023 with a suTplus of £1 l.?lli and a cash balance of L?34.7j9. Belfast R¢gioDal Weekend '¢ hosted a vtr). successful eveni involving families from boih the Republic alld Northern Ireland. The priTnary focu5 wa5 on enhancing communication. and the Reu UK AAC ieam. led by Gill. curated an outstandin(¥ pri)ordm thai was tNcepiionallv well-receii'ed_ A parent M,ho ptrticipated in the event shared_. The.slruivgies und insighis Iguingdfroin ihe sesJiuns h¢Jve ihe pvl¥nlftul li) bl'ing aboul profound ch(Jnges in mv f(Jmilvs life. I hod dbi$ aboul H.heiher il f¥usible io Siurl ulilis'ih7g COnFmiinicaÉioF7 dLryices ai ihis poini, bui I wos re&ssredih1jl_.-IiS nevÉr loo luie.- The response was oven4'helming, with numerous individuals seekino opportunitics to enuatre with pitsfessionals. This demand il'as so subsrantial that we arranged a separate event featurin(F a Q&A panel. an opportunity we plan to exnd ro a 'ideF audience. Read, Write and Make Friends• Count us in.. We successfully introduced numeracv and literacy trninin& using our carefvlly chosen b(Myks that encourage engagement. questions and discussion for people with Rett syndrome. We also creaied dedicaied communication pamer Thining and online friendship groups for Ip[C of all ages to meet and practise their CommuniclOn skills in a fun. reled wa).. with their peers. What we achieved with the project= More paTenr earers and other care (tiver5 now have confidence as communication partners. They are able to emplo) a diverse rantse of AAC stratetries and tlS H'hen interdctino .]lh th¢ individuals the!, supporl adapting across various ¢onieNIs. Individuals utilising advanced COTnmunirdtion tools expertence a significantlv enhanced me2ns of expression, employing diverse AAC methods acros5 a ¥nultitude of environments. Enhanced communicatlon m(KJes haye led to improved overall health and ell-being for individuals using advanced AAC techniques. resultig in reduced frustrdtion. anxiet). and heiJo tened self-esteem. These indaviduals no. approach comTnunication with elevated c(Trnfidence. Wiihin educational settings. particularll" schools aryd colletses. Ihere's a remarkable rise in academÈc achievements, r¢orably In areas su¢h as literacj" and numeracv. for those utili5in(F advanted COTnmunÈcation methods. People of all aoes with diverse comtnunication needs now experience de£reased isolation. findin themselves readily pani¢ipating in conversations wilh fiiend5 and becoTninu rnore effective self-advocates. Page i
RE UK A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRLISTEES FOR THE YEAR F.DED 31ST MARCH 2023 MaximÈ$ing the communication potential of people with Rett SYdrot A kev arca of actiN'it)' of ihe charli} is enablin(y those w.ith Rell 10 cominunicale. We support people with Rett and those involved in their care ii'ith the llse of el'e gaze technolog". Thi5 uses e¥e-trackiDg cwncras and sofmare on tablets tha[ enables Ihe us¢rs of the iechnology to cotnmunicaie using their ekes. We provide traininu loan of deviccs and support networks. In Éhe year we resuTned fa¢e-i<Fface activitie5 alon05ide providing an integrated array of online offerings. ensuring accessibilitv for faTnilie5 and professionals acros5 the UK. Our digiial offerings haNe transcended geographi¢al boundaries, enabling participaiion Irom iniern&ÈioTral fatnilies and prolessionals h0 have en(Ta(7ed in our aciivities and ¢en inwiied u5 to ¢ontTibute lo online conferences held bi. Rett Associations in Narious coun(ries. Despite our eApanded reach. our foremgst commitment remains dedÉcated to supportino familie5 and prof$10alS wiihin the UK. CoU[catIOn ProfessioNab Network The Communication Professionals Neim'ork. established 1th the backints of Rett UK'S proficient ComTnunication and Education team. continue5 to thrive. This dJn8mic nehvoEk taiers io professionals engaged ..ith indÈviduals hai'inti Rett yndrome. regardless of their settin& ane 0p. level of expertise. or geographical locaiion within the UK. Membership io this invaluable network involves a (Trne-time enrolmeni fee: granting acces5 Èo a wealth of exceptional resources and teatn-backed support. complemented by the provision of comprehensive cotntnullication tsuidelines. Alongside these benefits. each memb¢r recesves a eops of the communication auidelines as a valuable reference. Explore the netm'oik's otlerinJo and connect with like-minded professionals ai "..rettUk.0ro ComrnuDication Device Loan Programrne Il'e are extremely proud of our communicaiion de]ce l(Mll programme. li provides the opportunity lor people H ith Rett to trial the use of these amuing electronic devices ivhi15t beiTtg fullN' $pE)ed bv ihe communications ceam. This ¢iiable5 fatnili¢% and Ihose supporting them to d¢Tr'¢lop the case5 needed 10 secure their oH'n dci'ic¢s_ This ultimatelv proiJides people with Reti their own voice. Thc loan prooram operates wiihin a well-defined structure. offering an initial 8-week term, extendable up to a total of 6 InL)nihs. Every, latnil%' benefits froTh dedicaied 8ssisrance prOlded b) a Regional Cotnmunicativns Coordtnaior (RCC)- Each RLC is assigned to support two fatnilies, while a buddF s)'stem pair5 two RCCS io collalK)raie Closely. To further enhance the experience for loan families. M'e've introduced a more comprehensive infomiation sheet M'ithin the loan Éuide pack. This sheet e13bordies on ihe H'eekly video submissions required. Our intention in aligning this SiTUCture witn the decision flowchart us¢d b) NHS hubs for funding applicaiion readiness is to bo15tei the qualitv of evidence receive from families. This strate(yic approach ensures thal pr02ress made with ientatii.e and Alternative Communication (AAC) is effectiv¢l)' tracked and docuTnenied. Family Feedback.. "I want to expre55 my heartfeli gratiiude io you and everyone at Rett UK for granting us the chance to test out the eye gaze technology. Its value has been I[neaSUrabIe. and I received confirniation from ihe Trust just yesterday thai our applicatkOTr ha5 b¢¢n approved.- Education, Health aRd Care Plan sliPPOrt Throughoul the vear, our dedicaied ieam ha5 expertcnced a remarkable suroe in demand for EHCP as5i5tance. We've been able to help a substantial number of farnilses with bL)rh ne and existino EHCP docutnentg. exrending OUT services 10 Jnclude participatiun as expert adValeS during Annual Reviews. FurthettnorE where possible we have extended our support io professionals in both specialtzed and mainstream schools. delvin¥ inio the ream$ of communicaiion aiid Rett syndrome. Page 6
RETT UK A COMP.4hY LIMITED BY GUAIUNT REPORT OF THE TRLSTLES FOR THE YEAR ENDED 31ST MARCH 2023 "l-h¢ surge in demand underscores the ctucÈal necessitv of our seTh'ice. Mank familie5 are 5ttkinq clarit). regBrding EHCPS. thci". PUTpose. enritlements. and ihe various timeframes ernkdded 1th1ft the process. We've come to realise that there exists a enuine need for comprehensive guidance. as families often flnd them5elve5 uncertain about their authority in shaping the document's content. Friendship groups The adult 116+) frE¢ndship 0UP is now an esiablished pan of our events calendar and continues to mect online on a tnonthlj. basis_ Il'e continue to innovate in the ¥Jioups as we COEJtinue to explor¢ how we can work direcils ivith people with Rtti s}ndrome, to deielop advocacy skills. and lisien to whai ihey ]1 us: we see ihe members of this adult gyroup as iTllPQrtant contributors to helping us shape the Selee& and support we off¢r. Regional Communieatlon ChampitsTrs le currenil} hold a monthl}, meetino for RCC discussions. supplemellted by additional meetings when necessary. These addiiiotial nieetings are primarili iniended for providing traininu lo creaie resources and to offer assisiance io the ne.1V appointed KCCS. We are ihFilled bj the seamless inieuraiion olihe ne members of ihe team and their remarkable leel of enuaaeEnent. The mentorship dvnamic beiween the veierans and ihe new team members is provsn¥ to be effeciive. as the new'comers have atlively partscipated in resource oeneration and hav¢ also gained hands-on exp¢rienc¢ through their involvement in the loan progrdm. AddiEionallJ, w'e coniinue aeiively seekints tts expand our tea ot Rccs to aTeas th&t are currently not covered. in order to extend our reach and provide support to even tRore indi.]dUalS affectcd by Rett s)'ndroine_ Comments from people using the servi¢¢ About ihe loan proiyiaTnme". "Ab501utelTr' transfonnative! The loan programme delivered the Crucial solution we required for our dauJLTr ter. as H'ell as for her school and tomTnunication a5SOCÉates. It allowed everyone to genuinely coinprehend her voice. markinu 8 5jqJificant Tnilestone." Pareni of a recentl) diaonosed ¢hild= "l arn imTnenseli. oratefull It'5 hard io iMaine h¢r£ I'd be without }.(Trr support." Local Authority SEN Officer.. "Expressing my grwitude for the valuable and much-appreciated infomiation you shared during the meeting.. Conneeting Families ReduciN¢w Isolation l)urino the year our membership coniinued io rise again to over 36)7 people. OLtr Family Support team's national telephone helpline remains ihe primary ]x)int ofcontsct for individuals affecled by Reit syndrome. The demand for assistance continues io surge. wtih an increasin2 number of families initially reachina OJI through social media plarforms and subscquenilv becoming members. therebj gaining access to ihe full spectrum of suppon services we ofter. tr.ach quatter iwitnesses an 0.¢[Whe][lU eng4uetneni. totallin(F more than tnterdcrion5 1¥'lth fatnily Tnembers. These interactOnS encompass Calls to our helpline. cotnTnunication5 via our suPrt etnail. dÈrect CoeSpondenCe. ie5P()nse5 on FaceDook. WhaisApp. Twiller. InsTa2ram. and FacelMK)k Mes5enoer. These poiÉJts ot conlact Serve diverse purp05¢s. fdnging from seeking information aboui Rett 5vndrome or specific symptoms to emotioRali) charued calls from families orapplino 1th a nem, diagnosis. As their intensit) and dyraiion vanj our dedicatEd farri11 5uppon teaEn is eqUIpd with exien.sive skills and training to address each call effectivel J. Thes, provide con)fort. epath, uidance, ad*ice. and penineni infonnaiion. understanding the UDique needs of every inoividual who reaches out to us.
RF.TT UK A COMPANI. LIMITED BY GUARANTEE RF.PORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2023 The demalld for our services continue5 to ww,, and we are committ¢d to meeiin¥ li by continuall). bolSterng our resources and expertise wher¢eT necessary. Familv Feedbatk We're delinhted 10 share some of the heart-wanning fetdback we've received from the familie5 M'e've had the privilege to suppori. These messages hÉghltght the posititre impact of our efforts and setve as a mInder of why our wtsrk is so m¢<illingful. "Can vou believe I That appeal did the trÈck. and thel'kn aeed to provide the equipment that she needs. We seriously can't thank vou enouoh for beiDg such a huue help in making this happen. You've been amazing throughout this m.hole process. When we w.ere feelin(F totally lo# and de5perdte. not knowing where to turn. vour offer lo assist was lik¢ a breath of fresh air. li feli like a ill355ive weighi was lifted off our shoulders." "Jusi wanied to lei you know ihey are sLartin(T w'ork nexi Monda!.1 WoohooT That eTnail you helped us put together foF our daughter I.Orked like maLTriC. Your support and effort mean a lot io us. and we're gupet ihankful. You're making a rea difference in our lives, and we cant thank you enouJ(F . Dads, Online Meetups With the valuable coniributions of two of uur Regional Community. Coordinators {RCCs). the Beer & Banter sessions ere launch¢d. SLheduled every six w¢ek5. Beer & Banier presents a unique opportunilS' for fathers to gath¢r. share a di.ink of their choice. and enoa2e in conversations about the intricacies of faiherh(XKI_ As part of our ongoing efforts to support fathers_ we have also esiablished an exclusive Facetrt)ok group tailored to iheiF needs. This dedicated space allows members to posi inquiries, connect wilh our tcam for practical insights: and receiN'e prompt responses to iheir question5. In our comrnittnen( to fostering a thrivints communitN'. we are actii'el}'" explorints i&aN's io enhance our offerin¥(T and encourage more metnber5 10 jotn ih¢se meaninuful discussions. Participation and feedback are instrumental in shapinu these positii'e change5. For further inforrnation. please ViSiL htrps:Ilwww.facebook.cotrL.uroupslukrettOads Partn¢r5hips, Alliances. CampgRgniNg and Av*#rentss Raising As we continue our panner5hip w'ith ReveTse Rell under the RDA banner. recognize ihe paramount significance of unity in the face of evolTring medical advancemenis and technological breakthrouuh5. CollaLx)rdiin? closel), not onl). enhallces our collective understandin(T but also ensures that as novel medicines emerge and technolo¥. piotsresses, we are well-equipped t(} navigaie these changes elTeciivel)'. This shared endeayoui enables us 10 remain ai the forefront of support ensurino thai the entire UK Rett communitv receives the maximum benefEt fmm emergino treatments and cutting-edge technologies. Disabled Children's Partnership As Members ofthe partnership.. w'e were involved in the following campaigns over the course of the vear.- the 8F.ND Grttn Paper review Lo¢kdown isn't over lor us all report parenial survey 1.848 re5ponscs so far Make your voice heard bj the new Minisler for SChIs and ChildhiM)d campaion The DCP"Giv¢ It Back" campaÈgn with The Sun which won the New5 Media Association's Make a Differente award. We ale also now part of thr newly re-fortTred PbItC Affairs Group Meeiine which ha5 a focu5 on trJin(k to eRuaue i¥iih politicians to get thincTS acnteved. This 1(M)ks like li ha5 got off io a gim srart 1th commiiments froJn senior Labour party members lIlIng to en(7aae immediately Page 8
RETT UK A COIMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2023 Rert UK is also a member of The Helplines Partnership. Geneiic Alliance UK. Embracing Complexiiy. The NVCO. Bedfordshire Chamber of CornTllerce and takes an aciiye role in The Disabled Children's Pannership Campaign to highlight the challenges faced by faTnilie5 who have children M'iih disabilities. NHS Clinics Ollr specialised Rell clinics operate across four locatioTrs-. Cardiff. Manchester, London. and Nottinijham. Thr¢¢ of these clinics have Fetutned to their regular schedules. wilh Maftchester and Nottinnham offering in-person appoinimenis. London. on the other hand. has opted to contillue conducting clinics vimially. a choice thai has proven effective for families scaiiered across the UK. This appToach Tt]inirnizes trd.e1-re]aled disrupiions foi families and their children. The added advantaoe of observin Ihe child in their familiar ellviionmeni has !.i¢lded positive results. In siluaiioll5 iihere elinic team membeTS deein an in-person meeiino necessati., such appoinlEnents ivill be arrange ensurints face-io-faee assessmenis foi fatnilie%. The Cardilf clintc is yet to convene, primarily due to spac¢ limitations rather than a lack of referrdls. Nevertheless. discussions are onooing to plan future face-to-face clinic5. The London team is withessing a rise in patients seeking clinical diagnoses. driven by heightened demand from local paediatricians and geneticists foF w.hole uenome %quencing. While ihis meih(Kl holds immense value. ir can take between I year and 18 months io complete. leaving tarnilies without a confirmed diagnosis during this period. Thi5 service proi'es invaluable for families stnktsolin to find local experts with knowledge of this rdre disorder. We rSt in exploring avenues io enhance the capabilities of these clinics. We also support referra15 to the CIPP Rett Centre. Which is a clinical treatment and research ceEJtre for children and adults Tih Rett Si'RdroTne and relatcd disorders of all ages based ai Kin(T s Colletse Hospital, fiillded b}, Rei'er5e Rett. Rett UK remains dedicated to tnaLing a meaningful impaci on families grapplinu with the daily chalSentses p05ed by Rett -%yndrome. Our efforts encompass various dimensions. from alleviating ihe isolation these lamilies often experience. to empowerints them as effective advocates for their children. We focus on IM)Isterinu their emotional resilience. enhancin Iheir Overal w'ell-bejn(y f05tering positive inira-family relaiionships. and ensurinu they access the entiiled benefits to optimize their fatnilN 5 financsal Stability. Thn)ugh these initiatives. Ren UK is aciivels, shaping a brighier future for those affected by this devastatino disorder FINANCIAL REVIEW Princtp21 funding sources Rtit LiK is funded bN' donations from individuals. corporaiions and trusts. The Board of Trustees reviews the funding io imit the exposure io an! particular source of funds. Where funds are received froTn donoTS With a restyictioft on their use the). are held in sepate restricted fund5. Ini'estment policy and objectives 'fhe Finance Committee ivill recoTnmend and monitor the investmeni structure. risk profile and priorities of ihe Charity s investments and for this putwse may seek appropriate adice from an independenr iniennediary l advisor who is authorised bv the FCA_ Recommendations will be brouuhÈ to the B(th of TntsÈees at the next meeting. The Finance Committee has deleoated pow'ers to authorise anv ne¢essaTV tsrtsent changes. which will be circulated to The Board of TnEStees, nornially by e-mail. for comment.iagreement within ? days. Rett LIK'S in'eStMents currently Comprise tash held on dew)sit M'ith Hampshire Trust Bank_ This enables easy and speedy access io funds and reflects rhe Board's low risk approach to invesmients_ Page 9
RF.TT UK A COP¥lPANY LIMITED BY GUARANTEE REPORT OF THE TRLSTEES FOR THE YEAR EIDED 31ST MARCH 2023 FINANCIAL REVIEW Resere5 polici. Rett UK has a policy of Tnainiainin(y a tseneral lor unrestFlCtedl reserve of beleen ) ano 6 monihs, runninu costs. ialculated against the Current yeaEs buLI(%eied oeneral expenditure. The lower arnouni is io provide a safe margin for the securitv of Rett UK'S ongoiniF work. The hiuher amount is to ensure that funds are consistenil!. disbursed tom'aids the charitable objectives of Rett UK. Thai ranoe of ieneral re5er%'e also includes an awareness of the likely costs tsf redundancv payments and oiheT Wtnding up costs shOld Rett decide. or be forced. io ceasc operations .In addition reserves are h¢ld where funds ale rdised for dedicaied projects. Reser¥'es are higher at i l March ?0?3 as fundsng as been eaTmarked for nalioiial FaTnilv Weekend 2024. It is anticipaied ihar turther fundino iiill be raised in rh£ Neai to supwrt this ke}. event. 'rhc hitsher than nornial level of reserves also anlicipaies costs eartnark'ed for a plallTr¢d Famil).. W'eckend in 2074 Rett UK will re(Tularly monitor its reseryes Yia the Honordry Tre&%urer and CEO who will report the cutrent reserve to e<i¢h quarterlN' F'inance Committee and Trustee meetin Thi5 policN' will be reviewed ai leasi annually bv the Finance Cotnmiitee. nonnall). the final quarter of each financial ye1[. as part of the budget settin(T process foi the folloin0 rinancial year. The Finance Comrnittee will bring an recommendations or observations ro the Board of Trustees at the (ollowing meeting. STRUCTURF., GOVERNAf4cE AND MAf4AGEMENT Goi'erning document The oroanis3tion is a compan), limited b&. guaraniee. iDcorporaied on 9 August 2010 and registered 3$ a cnarity on 6 September ?0 l O. The company wa5 esiabli5hed under a Memorandum of Association which estsblished the objects and powers of the charitable company and is governed by ils Articles of ASKlatiOn. Copies of the Articles of Association are available at wiIM".reiiuk.org or from its Head Office bs, requ¢st. The charilv wa5 tormed w continue ihe iTrork of Rell Syndrome A550ciation UK (working name RSAUK) a charity. regisiered in 1986, and given a tnore succinci name. The meinbers have guardnteed io contribut¢ a Tnaximum of £10 each in the event of the company being oUnd up. Organisational Structure The charit). is run bv a manatsement committee comprising the trusitts and c(wted tnembeTS. who delegate ihe day to da), running to the Chief Executi¢ Officer. Robert Adamck_ AppOIntent, and IDductioM and trainiThg of tW tru$ttt5 The Directors are Charity TSteeS as defined bv section 177 of the Charities Act ?01 l. Trustees are appointed b! ordinary resolution and at eath Annual GeneTal M¢etino one-thitd of the Trustees Tllusi reiire, but may be reappointed. The present trn.%tees ma) appoint nem. Trusiees bllt those Trusiees appointed by the Trustees musi retire ai the next Annual General Meeting. Prospective members of the Board of Trustees are given a fEle of introdurtory papers includiT)g planning and strat¢(Tic documents and other r¢l¢vant docum¢ntalion. They will Tromially attend at ltssi one True£ m¢etSnts &8 an observer.
RETT LK .4 COMPANY LIMITED BY GUARANTEE REPORT OF THE TRLSTEES FOR THE YEAR EYDED31ST MARCH 2023 STRUCTURE, GOVERN.4NCE AND MANAGEMENT Internal Contrtsl Rtsk mxn8gemeDI The 8oard of Tru5tei5 is respon_%.'hlc for the charitys system of internai control and for reviewing its effeciiveness. It aCkno.1edgeS that such a system can only manage and miiigate risk rather thon finall), elimtnate the risk of failure to achieve sei objeciives. The manaoemenr of risk is delegated io the CEO %ho has implemented a risk Tnanagemeni polity provide5 report5 to Tru5tee5 al each board meetin(p Our sv5tem5 of control include a three-year Business Plan writtefi bsJ ihe CEO and an Annu21 BEidoer. Reoular considerdrion is oiven 10 monitorino the actual performance aoainst the budget aNd torecasts and to the foTmal deleuaiion to spend iiEthin clearli" defined limits_ Havin(T examined the major straieoic. business and opeT2tional rules which the Charit}, faces. the Board of -fThsrees conlirrns ihat systems have been establtshed to tTrinirntrse 0NISatIonal and financÈal risks. The Board of Trnstees has estsblithed two suiFcommilltts. each with specific *mis of reference and chaired by a rnember of th< Board ol'Trnsiees. The Finance CoEt2mittee. Chaired bv the Tteasurer. discusses and atsrees the annual bud(ri (including approving salary rcviewsl for approval b}, th¢ Board of Trust¢es_ It monitors the tes[[net strncture. risk profile and prioriiies of the charÈty's investments and for thii purpose mav seek appropriate advice from an independent inÉemiediary l adviser who is authorised b!, the FCA. It reviews the annual audit plan of the extemal 01(Fanisaiion's Reserves, Poli¢s and practice and makes appropriate re¢oEnm¢ndations ro the Board of Tru5tee5. The Management Committee reviews and discusses personnel and oeneral mana(Tement 155ue5 before making rec(¥mmendarions ro the Board ot TTUStees_ li also ha5 responsibiliti" for revie.]ng the policie5 and procedures of Reu IJK.. the maiority are reviewe<l eTrery three e¥r$ wilh the excepiion of The Safeguarding Chtldren and Vulncrable Adults Polic. a.he Finance Policy and The Reserves Policy which are reviewed annually. OtheT policies ¥nay be reviewed when a change in legislation or guidance necessitates It. RF.FF.REIYCE .4ND ADMINISTRATIVE DETAILS Re2i5Éered Cuthpan). number 7 J J9)?? (England and Wales) Registered Charit). number 11?789O (England and Wales) 8C'.()4 i J69 (Scoilandl Reoistered office -leto, House Chobhatn Street Luion Bedfordshire LUI 3BS
RETTLK A cO1PANy LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2023 Tru5tee5 Ms 14 1'ru5s (resinned 10112n02? Mr R H Valentine (resigned 818,?0??) Mr M Briti¢0 Mr P R (JatideT Mr D A KouLrsOtJ Mr C R Beadle Mr5 J Campobcllo Mr S Ledgcr Mrs P S tlardon Mr G Lawson Iiesiuned 24191?022) Mr A Sadek (restgned 19.171202i) E J Le-warde Independent Examiner Shona Wardrop CA Charioi I louse Limit¢d Q'harfered Accountants 44 Grand Parade Brii)hton East Sussex Bry? 9QA Bankers IISBC Ballaids Lane Church End Finehley London N3 2BH M¢'ro Bai)k pl¢ ()iie %outhampion Row Londo WCIB5HA HaEnp<hiie Trust Bank plc PO Box 74003 London EC2P 2QR Patro$ Yvonne Milne MBE Ann Clwyd MP Evelyn Glennie DBE Gloria Hunniford Jon Snow Victoria Murphy Page 12
RETT L'K A cof*lPANY LIMITED BY GUARANTEE REPORT OFTHE TRUSTEES FC)R THE YEAR EYDED 31ST MARCH 2023 STATE.MENT OF TRUSTEES, RESPONSIBILITIES The truste¢s (who are also the direciors of Reii UK (A Copan>, limited bv guarantee) for the PUTposes ofcompanv law) are responsible for preparine rhe Annual Repctn and th¢ financial STaiements sn accoFdance with applicable law and United Kingdom Accouniints Standards (United Kingdom Generally Accepted Accounting Prthctice). Compan), law requires the irusiees io prepare fit]ancial stsiements for each financial year which give a trne and fair view of the State of affairs of the charitable eompan}' and of thc incoming resources and application of resources, including ihe iDcoine and expenditure, of the charitable company for that period. In preparing those financial statements, the trustees are required to select suitable accountinu polictes and Ihen apply them consistently: obserN'e the tnethods and prEnciples in ihe Charity SORP= make jud(pemeHt5 and e5tkEnates thai are reasonable and prvdeni- prepare the financial 5tatetnent5 on the going concern basis unless it is inappropria(e to presume that the charitable company will continue in business. The irustees responsible for keeping proper accouniing recor(ts which disclose M'ith reasonable accutacy at aRy time the financial position of the charitable compan) and to enable ihem to ensure thai the financial stsiements complv w'ith the Ctsmpanies Act 2006. Thej. are also resp)nsible for safeguarding the assers of the charitsble compan!, and hence for taking reasonable si¢ps for the prevention and detection of fraud and other irregularities. 70 Approved bv order of rhe b)ard of tyusrees on ............................................. and sÈuned its behalf by- Mt D A Ro(TersoD- Truste¢ Page 13
IIDEPENDENT EXAMINER'S REPORT TOTHE TRUSTEES OF RF.TI" UK A COMPANY LIMITED BY GUARANTEE Independent examiner's report to tbe trustees of Rett UK {A coDhpny limited by guarantee) {'the Company,) I report io ihe charity Irustecs on my examination of the accounts of the CompanN for the year eDded J 1st March 2023. Responsibilities ¥nd basis of report As the charitj's truste¢s of the Compan J land also its director5 for ihe purposes of company la) )ou are responsible lor the prepardtion olihe accounts in accordance with the requiTements of the Companies Act 2(M)6 (Ihe 2006 Act'}. Having satisfied myself rhat the accounts of the Company are not requÈied to be audited under Part 16 of the 2006 Act and are eligible for independent examinaiion. I report in resjxa of m!. ekaminaiion of l'our chariry's accounts a5 CGtrried out under Section 145 of the Charities Act ?01 I I'ihe 2011 Act'l. Ill carrving out examination I have followed the Directions iven by the Chariry Cornmission under Seciivn 145(i) Ib) of the ?01 l Act. Independent examsner's stst¢rneNt Since your charity's gross income exceeded £750.000 your examiner Enus( be a member of a listed body. I can confirtn that I am qualitied ro undertake the examination because l am a member ol the Instiu]te of Chartered Accountants in Enuland and Wales, which is one of ihe lisied bodies. I have cotnpleted m}. exaEnination. I confirtn that no matters have Come io my attelltion in cot)nection with th¢ cxamination viving me cause to believe= accounlinu records were noi kepi in respect of the Company a5 required by Seciion 386 of the 2006 Act: or the accounts do noi accord i"ith ihose records= or the accounts do noi complv $th ihe acContInu requirements of Section J96 of the 2006 Aci other than an), requiiemeTbt that the accounts giye a tnhe and fair view which is not a matter consioered a5 part of an independent examinatiort" or the accounts have not been prepared in accordance wilh the meth(xJ5 and principles of the Ststement of Recommended Practice for accountina and rew)niDg b). chariiies (applicable to charities preparing their accounts in accordance iih ihe Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS I O?)). I have concerns and haTre come acro no other matters in conneeiion wilh the eXalation to which attenlion should be draivn in this report in order to enable a proper nders(andIng of the accounts to be reached. Shona Wardrop CA Chariot House Limited Chartered Accvuntants 44 Grand Parade Brighton Easi Sussex BN? 9QA Date.. Pag¢ 14
RETTLK A COMPANY LIMITED BY GUAIL4NTEE STATEfwlENT OF FINANCIAL ACTIVITIES INCORPORATINC AN INCOME .4ND EXPENDITURE ACCOUN FOR THE YEAR ETriDED 31ST MARCH 2023 20?? Total funds Unrestrscted fijnds Restricted funds Total funds Notes 11+4COME AND ENDOWMENTS FROM Donations and IaCleS 34.191 357.69 303,312 Other trddino activities Investtnent income her income 7.227 155 7.227 I_f5 5.516 0.641 Tota JJO.881 ?65,07? )19.7.58 EXPENDITURE ON Raising funds 79.666 79.666 Charitable #etivities Chariiable activities 2j9,99? 774. 18 j ?i9,507 Total 319.6£8 i53.849 )11,44? NET INCOME 8.316 RECONCILIATION OF FUNDS .1 otal funds brought forward 189.i81 197,32) 189.e07 I'OTAL FUNDS CARRIED FORWARD ?1)0.804 7,74? ?08.546 197.323 The noies forni part ofthese financial sts(ements Page 15
RETT UK A COMPANY LIMITED BY GUARANTEE REGISTERF.D NUMBER: 7339522 BALANCF. SHEET .31 ST l.RCH 2023 202) Total funds Unrestricted fund5 Resthcted nds Total funds Notrs CURRENT ASSETS Debtors Cash at bank 10 19.)?2 2J4.759 227.017 7,742 ?72,598 7,742 254.081 284.249 CREDITORS Amvunls lalling due within one year {45.5Ji) (45,535) (86.926) ET CURRENT ASSETS ?00.804 7.74? 208,546 197.i 3 'IOT AL ASSETS LESS CURRENT LIABILITIES 200.804 7.742 208.i46 PIET ASSETS ?00.804 ?08.546 197.) 3 Unregiricted funds Rcstricted funds 200,804 7.74? 189.581 7,742 TOTAL FUNDS 208,546 197,i23 The charitable compan) is ¢ntLtled to exemption from audit uHdeT Section 477 of the Companies Act 2006 for the Jjear ended 3 1st March 2023. 'rhe membcr5 have noi required the cotnpany io oaIn WJ audit of its financial statements for the ear enduj 3 1st M8rch 2023 in accordantt with Section 476 of the Companies Ad 2006. The trusiees acknowledge iheir responsibilitie5 for la) ensurijg that the chariiable company keeps accounring re¢ords that compl). with Sections i86 and i87 of Ihe Companies Aci ?006 and preparing financial statements which give a trne and fair vkeM' of the state of affairs of the charitable company as at the end tsf each flnancial year and of its surplus or defitÈt for each flnancial )'ear rll 8ccoidanLe with the r¢quiiements of Sections )94 and 395 and which otherwise compl), '1th the TequireTnenis of the Companies Acl ?006 relaiin(T to financial stateEnenlS. so far as applicable to the chatiiable company. Ibl The ngtes form part of these financial stements Pagc 16 tontinued...
RETT tJ'K A COMPANY LIMITED BY GL'AtL4NTEE REGISTERED NUMBER: 7339522 B.4L.IN'CE SHEET- continued 31ST MARCH 2023 T4ese financial statements knave been prepared in accord3nce '1th th¢ provision5 applicablc to charitsble cotnpanies subject to the Small companies rlMe. 2oiJ The fsnancial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were sioned on its behalf by.. 3dtL Mr D A Rogerson- Trustee The notes form part of these financial statemeTrts Pa2e 17
RETT UK A C'OIL 1PANY LIMITED BY GUARANTEE NOTF.S TO THE FINANCIAL STATEMENTS FOR THE YEAR ETrqDED 31ST MARCH 2023 ACCOUNTING POLICIES Basi5 of preparing the fiManci81 Ststements The financial statemenis of the charitable company. which is a public benefit enttry under FRS 10? have been prepared in accordance i¥iih the Chariiies SORP IFRS 10?) 'Accouniing and Reponing b} Charities.. Sthieinent of Recommendcd Praciice applicable 10 charities preparing their accounts in atcordance ii'ith the Financial Reporting Standard applicable in the UK and Republic of Iieland IFRS 1011 {effec(ive l January ?019)'. Financial Reportino Standard 102 Yhe Financial Reportints Siandard applicable in the UK and Republic of Ireland, and the Companies Act 2006. The fujancial statements have been prepared under the historical cost convention. At the tiEne ol. approving the financial statements. the hwsiees have a reasonable expectation that the charity has adequatc resource5 10 continue in operdiional existenc¢ for ihe foreseeable future, and on that basi5 the ¢harii) is Lonsidercd to be a tsoing concern. Ineorne All Income is rQgnISed in the Sement of Financial Activitie5 once the charitv has entiilement to th¢ funds, it 15 probable that ihe income will be received and the amount be tnea5ured reliably. In 20221223 a number of significant tsran(s were reccii.ed tom.ards ihe end of ihe financial K'ear il'nich -learl}' relaied to activities and expenditure covering the lollow'jno financial Ne3r. The accounring polirv is to reflect apv income received which clearlv relates to future jears io bè sho as Deferred Income in the Balance Sheet. In 202?1?3 a figure 01 £43,i45 has been recorded in Creditors as Deferred In¢ome l? l Q2 £77.146). Expenditure Liabilitie5 lire recognised as expendiiure as 500Tr &$ ihere is a S¢oal or con5trucliwe oblination committing the charttN' to that expenditure. it is probable ihat a transfer ol economic benef1$ will be required in settlement and the amount ofthe obligation can be measured reliablN. Expendiwre is accounted for on an accruals basi5 been ¢lassif5ed uiider headinos that aggregate all cost related io ihe caiegorj. Where Costs cannot be directly attribuied to Particlar headin¥s ihey have been allocaied to activities on a basis consistent with the use of resources. Tangible fixed a$sets Depreciation is provEded at the following annual Tates in order to write off each asset over its ¢Stimated useful life. Plant and machinery Fixiures and fittings CoTnpuier equipment 25 /0 and s/0 OTE C05t 25 1u and >OO/o OTt C05t 250/0 and iO/o on c[ The charitv does noi capitalise fixed assets costing less than £5(NJ. Taxation -rhe ChaiEi) Is Considered to pass the tests Sei out Prnordph I Schedule 6 Ftnance Act 2010 and therefore ir meets th¢ definition of a charitsble compan!. for UK CoTpordtion purposes. Ac¢ordintsl)' the Charil!. is potenti&ll% exempt from IallOn in respect of income or capital oain5 reeeived within cateuoiies co*ered by Chapt¢r i Part I I Loryration Tax Act 1010 01 Sec(ion ?56 ofthe Taxation ofchargeable Gains Aci 1992, 10 the e.Ytent ihal such incorne or gains are applied eiclusively to chariiable purp(bgs. Fund accounting Unrestricted funds can be used in accordance with the chariiable objectives ai the discretion of the trustees. Page 18 coniinued...
RETT UK A COMPA%'Y LIMITED BY GUARANTEE OTES TO THE FIryAYCIAL STATE%1EITS- tolltinued FOK THE YEAR ENDED 315T M.4RCH 7023 ACCOUNTING POLICIES- coMtiNued Fund A¢eounting Designated funds are unrestrict¢d funds of the charity which the trnstees have decided at their discretion to sei aside io Uie tor a spccific purpose ResiTicEei fund5 Can only be used for particular restricied purposes 11"[thin the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricled purposes. Further explanation of the nature and PUTpose of each fund is included in the notes to the financial statements. Hire purchase leAsing eommiimenis Rentals pa}rable under Opeing leases are charged to the Ststement of Financial Activities in the year in which thev are pavable. Penstotts The pension cost charoe represents ihe contribution payable by the Charity lo th¢ ¢tnployers' defined contribution pensign scheme. DONATIONS AND LEGACIES 2023 2022 Donatsons Grants 187,016 170.674 167.340 135.¥7? 357.690 J03,31 ? conlinued...
RETT UK (A COMPANY LIMITED BY CUARANTEE NOTES TO THE Fll*ANCIAL STATEMENTS- CODtinutd FOR THE YEAR ENDED 31ST MARCH 2023 DONATIONS AND LEGACIES- coDtiDlled (yrants received. included in the above, are a5 follows-. 2023 2022 Bartle Family Charitable Ttust BBC Children in N'eed The Wixatniree Trust The Edgar Lee Foundation maso7¢ Charirable Foundation Demelza Hospice The Febary Foundatio 'rhe Bia Give Christmas Challenge 207 A wards for All The Hargfeaves Foundation Th¢ Pears Foundation Amold Clark The Fdward Gostltng FoundatÈon .don Freewheel 1.000 1.000 iOO 5.000 18,300 5,000 9,802 6,72: 6.930 1.000 5,000 694 25,000 LAF Focus Foundation Kilywalk I'GLGC Markell Design 4 The Big Give Christm35 Challen¥e ?022 85.797 5,000 3,100 750 3,750 22.896 170,674 OTHER TRADING ACTIVITIES 2022 Sales Unity Lottery and 300 Club Other receipts 584 3.i66 1.566 684 5,)16 Page 20 continued...
RETT LIK A COMPANY LIMITED BY GUARANTEE P40TES TO THF. FIWANCIAL STATF..MF.%4TS-contiAued FOR THE YEAR EINDED 31ST MARCH 20a? INVESTMENT INCOME 20?3 ?0?? Dtposii account Inle51 155 -NET JNCOMEI{EXPENDITURE) Net incomt,.'lexpenditurel is sled after chargitt9{creditints = ?022 Independent Examiner ?,285 2,213 TRUSTEES, REMUNERATION AND BENEFITS There ivere no mistees, remuneration or other benefits for the year ended i I st March 20?) nor for the year ended 3 Isi March ?0?2. Trustees, expeDses Travel e_xpense5 aTnounting 10 £408 {?0?2.. £nil) were reimbLwsed to ? Trustees STAFF COSTS W'ages and Salaries Social Security Employer5, Pet]sion 171,827 18,286 156.fjJO 15.454 192,560 173,943 Other Staff Costs ?.)1 ?j7 The average monthly number of employed personnel durino the year wa5: 2023 Averdge Huber On a full time equivalent basis There are also self employed personnel equating to a further l (2022= 1 l T¥tember on a full tiTne equivalent ba5lS. Key Managernenr personnel remunerdtion amounied to £5i.0561?0??- £48.471) continlled...
RETh UK A CI)MPANY LEMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YFAR ENDED 315T.MARCH 2023 COMPARATIVES FOR THE STATEMENT OF FIP4ANCIAL ACTIVITIES Unrestricted funds Restricted funds Total funds INCOME AND Ef4DOWMENTS FROM Donations and legacies 271.794 31,518 303,31 Other trading actsvities Investmeni illCOTne Oiher income 5.516 289 10.641 5.516 289 10.641 Total 288.240 319.758 EXPENDITVRE ON RaÉsin(T funds 71.935 71,93) Charitable activitits Charitable activities 207.989 31.518 239.i07 Total 779.924 ?1,518 NET INCOME 8.i16 8.316 RECONCILIATION OF FUNDS Total funds brought forward 181.265 7.747 189,007 TOTAL FUNDS CARRIED FORWARD 189.581 197,i2J Page 22 continued...
RETT UK A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINACIAL STATEME.NTS- coniTrnued FOR THE YEAR ENDED 31ST MARCH 2023 TANGIBLE FIXED ASSETS Fixtures Plani and machinery CoTnpuier equipment fittings Toials COST At I si ADril ?02? and J 1st March ?023 ?iO 2,183 4,905 DEPRECIATION At I si April 2022 and 3 1st March 2j 50 4.905 NET BOOK VALUE At 3 1st M2rch ?023 At 31st March 20?2 10. DEBTORS: AMOUNTS FALLING DUE WITH114 ONE YEAR 20?3 20?? Frade deb.tors Prepayments CREDITORS: AMOUNTS FALLIPIG DUE WITHIN ONE YEAR Trade creditors Other creditors A¢ernals 2nd defetTed income 7.65 O 2.190 77.146 4i.i35 continued...
RETT UK A COMPAINY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS-continued FOR THE YEAR E,DED 31ST MARCH 2023 12. LEASING AGREEMENTS Minimum lease payments under non-cancellable operdting leases fall due &5 follows.. 202i ithin one year Beiiveen one and five years 1,8?4 912 1,824 2,736 2,7i6 4,£60 13. MOVEMENT IN FUNDS et movemen¢ in funds At At 114122 URre5tri£ted funds General fund 189.781 200,804 Restricted funds Research Fund 7.742 7,742 TOTAL FUNDS 97.j?) 208.540 Net movement ill funds. included in the above are as follows-. Incoming resources Resources expended Movemeni in funds Unrestritted fund5 General fund 3iO.881 (319.618) 1,223 Restricted funds BBC Children in Need (34.191) TOTAL FUNDS 36i.072 i53.849) Page 24 coniinued...
RF.T1' LK A COMPAYY LIMITED BY GUAR.4NTEE 'OTES TO THE FINANCIAL STATEMEYTS- ¢otttiDued FOR THE YEAR ENDED JIST M.4RCH ?023 13. MOVEMENT IN FUNDS- eontinued Comparatives for movement in funds Net movement in funds At 114DI '?? Unrestricted fllnds General fund 181 ?65 8.316 189,581 Reslricted funds ReseCh Fund 7.74? 7,742 TOT AL FUNDS 189.(M)7 8.316 197, J?3 Comparative net movement in fund5. included in the aix)ve are as folloM's= Incomino resources Resources expended Movement functs Unrestricted funds General tund {279.9?4) 8,316 Restricted funds BBC Children in Need 31.518 (31.5181 TOTAL FUNDS j19.7$8 311,4421 Researeh Funds .411 tnonies in the Research Funds are utilised to SUPl>Ort wible treamients and cures. Page ?5 coniinued...
RETTUK A COMPANV LIMITED BY GL,ARANTEE NOTFS TO TIIE FINACIAL STATEMENTS- continued FOR THE IE.4R ENDED 31ST MARCH 2023 RELATED PARTY DISCLOSVRES There were no related party transactions for the )'eaT ended 31st March ?0?3. E J Le-warde, a Trumee, is the son of a member of staff. Page 26
RETT UK .4 CO.MPANY LIMITED BI. CUARANTEE DETAILED STATEMENT OF FIY.4NCI.IL ACTIVITIES FOR THE YE.4R E,NDED 31ST MARCH 2023 2023 202? IWC'.OME Ah4D F.NDOWMEIYTS Donatlons and legaeies Donations Grants 187,016 170.674 167,340 135.97? 357,690 30i.312 Other trading 8etivities Sale5 Unity Lottery and 3(M) Club Other receipts 584 4,215 684 l.i66 Investmtnt iDcome DeposTt £iccount inierest 155 289 Other income Furlouuh grant 10,641 Total Éneoming resources 365,07? 319.758 EXPENDITURE R#i5ing donatiofts and legaeies 'ages 47.?04 4i,699 1,094 170 1,109 Telephone Posiage and staEioRery Piit-cbiases for resale Maijazine. booklei and inforn)aiion veni operaiions 438 6.?58 9.670 7,8?4 10.?40 3.ii9 1.880 1.684 IT Preinises Other 1,146 79,666 71.9jS This paoe does fo pan ofthe statutory financial statements Pa(te 77
RETT UK A COMPANY LIMITED BY GUARANTEE DETAILED STATEMEIYT OF FINAYCIAL ACTIVITIES FOR THE YEAR ENDED 31ST MARCH 2023 Ch#ritable activities Wa¥es 19?,50) lllsuranLC 'reiephone P{)8taoc and siationery Sundries Magazine, booklet and infoTmaiion FamilN' weekend & reoional day Rent and propertv expenses Repai15 & maintenance IT 1'ravel Bank charoes Oiher Staff costs 1.997 4.)88 i,29i 11.240 8.724 7,126 6,1?5 7.9fv1 29,937 3.943 1.450 5.i21 9.144 845 1.342 271,898 .294 Support costs GoTr'ernance eosts Independent Examiner's fees 2.285 ?.213 Toial res0r¢eS expended J5i.849 Net Éneome This page dS noi fornj part of ihe statutory financial statemenis