# RETT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1137820
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Sept. 6, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1137820


## Contact

- **Address:** VICTORY HOUSE, CHOBHAM STREET, LUTON
- **Postcode:** LU1 3BS
- **Phone:** 01582798910
- **Email:** info@rettuk.org
- **Website:** www.rettuk.org



## Activities

**Activities:** Rett syndrome is the most common cause of profound and multiple disability in females.  A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected.  We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £341168 | £416710 | — | — |
| March 31, 2024 | £305881 | £318560 | — | — |
| March 31, 2023 | £365072 | £353849 | — | — |
| March 31, 2022 | £319758 | £311442 | — | — |
| March 31, 2021 | £347557 | £278466 | — | — |



## Trustees

- Clive Richard Beadle — appointed Sept. 10, 2016
- David Alfred Rogerson — appointed Sept. 10, 2016
- Debbie Cavaldoro — appointed Sept. 11, 2025
- Dee Cowburn — appointed Sept. 11, 2025
- Elliott James Le-Warde — appointed April 30, 2021
- Joanna Campobello — appointed Dec. 2, 2017
- MICHAEL FREDERICK BRITTEN
- Mary Forest — appointed Sept. 11, 2025
- PHILIP RONALD GANDER — appointed Sept. 10, 2016
- Pauline Sophia Bardon — appointed Dec. 7, 2019
- Romi Loffler — appointed Sept. 25, 2024
- Stuart Neil Ledger — appointed Jan. 23, 2019
- Thomas Gander — appointed Sept. 11, 2025