Myotonic Dystrophy Support Group
- Country
- England & Wales
- Charity number
- 1134499
- Status
- Registered
- Registered
- Feb. 25, 2010
- Legal form
- Charitable company
- Area of benefit
- Undefined. In Practice, National
Address
- Address
- 19-21 MAIN ROAD
GEDLING
NOTTINGHAM
NG4 3HQ
Contact
- Phone
- 01159875869
- [email protected]
- Website
myotonicdystrophysupportgroup.org
Activities
To offer assistance, support and information to those people affected by Myotonic Dystrophy
Objects: The Company's Object Are Specifically Restricted To Offering Assistance, Support And Information To Those People Affected By Myotonic Dystrophy, Their Carers And Families, Both Directly And Indirectly, And Anything Done In Reasonable Pursuance Thereto.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind
Areas of operation
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Dec. 31, 2024 | £336,393 | £128,492 |
| Dec. 31, 2023 | £258,791 | £117,901 |
| Dec. 31, 2022 | £109,671 | £63,155 |
| Dec. 31, 2021 | £216,299 | £150,968 |
| Dec. 31, 2020 | £115,341 | £80,573 |
Trustees
| Name | Appointed |
|---|---|
| Michael Walker (Chair) | Dec. 31, 2011 |
| Claire Alexandra McAlonan | Jan. 28, 2021 |
| Dr Ami Ketley | June 16, 2023 |
| Dr Valeria Di Leo | May 16, 2025 |
| Euan Daniel Cumming | June 23, 2017 |
| Linda Ann Perry | June 16, 2023 |
| Peter Charles William Ferrari | June 24, 2016 |