# MYOTONIC DYSTROPHY SUPPORT GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1134499
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Feb. 25, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1134499


## Contact

- **Address:** 19-21 MAIN ROAD, GEDLING, NOTTINGHAM
- **Postcode:** NG4 3HQ
- **Phone:** 01159875869
- **Email:** CONTACT@MDSGUK.ORG
- **Website:** myotonicdystrophysupportgroup.org



## Activities

**Objects:** THE COMPANY'S OBJECT ARE SPECIFICALLY RESTRICTED TO OFFERING ASSISTANCE, SUPPORT AND INFORMATION TO THOSE PEOPLE AFFECTED BY MYOTONIC DYSTROPHY, THEIR CARERS AND FAMILIES, BOTH DIRECTLY AND INDIRECTLY, AND ANYTHING DONE IN REASONABLE PURSUANCE THERETO.

**Activities:** To offer assistance, support and information to those people affected by Myotonic Dystrophy

**Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £336393 | £128492 | — | — |
| Dec. 31, 2023 | £258791 | £117901 | — | — |
| Dec. 31, 2022 | £109671 | £63155 | — | — |
| Dec. 31, 2021 | £216299 | £150968 | — | — |
| Dec. 31, 2020 | £115341 | £80573 | — | — |



## Trustees

- **MICHAEL WALKER** (Chair) — appointed Dec. 31, 2011
- Claire Alexandra McAlonan — appointed Jan. 28, 2021
- Dr Ami Ketley — appointed June 16, 2023
- Dr Valeria Di Leo — appointed May 16, 2025
- Euan Daniel Cumming — appointed June 23, 2017
- Linda Ann Perry — appointed June 16, 2023
- Peter Charles William Ferrari — appointed June 24, 2016