# MYOTONIC DYSTROPHY SUPPORT GROUP

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1134499
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [07144171](https://find-and-update.company-information.service.gov.uk/company/07144171)
- **Registered:** Feb. 25, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1134499


## Contact

- **Address:** 19-21 MAIN ROAD, GEDLING, NOTTINGHAM
- **Postcode:** NG4 3HQ
- **Phone:** 0115 987 5869
- **Email:** CONTACT@MDSGUK.ORG
- **Website:** myotonicdystrophysupportgroup.org



## Activities

**Objects:** THE COMPANY&#x27;S OBJECT ARE SPECIFICALLY RESTRICTED TO OFFERING ASSISTANCE, SUPPORT AND INFORMATION TO THOSE PEOPLE AFFECTED BY MYOTONIC DYSTROPHY, THEIR CARERS AND FAMILIES, BOTH DIRECTLY AND INDIRECTLY, AND ANYTHING DONE IN REASONABLE PURSUANCE THERETO.

**Activities:** To offer assistance, support and information to those people affected by Myotonic Dystrophy




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Geography

- **Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **MICHAEL WALKER** | Chair | Dec. 31, 2011 |
| Claire Alexandra McAlonan |  | Jan. 28, 2021 |
| Dr Ami Ketley |  | June 16, 2023 |
| Dr Valeria Di Leo |  | May 16, 2025 |
| Euan Daniel Cumming |  | June 23, 2017 |
| Linda Ann Perry |  | June 16, 2023 |
| Peter Charles William Ferrari |  | June 24, 2016 |




