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← Myotonic Dystrophy Support Group

2024-12-31-accounts

Company registration number: 07144171 Charity registration number: 1134499

Myotonic Dystrophy Support Group

(A company limited by guarantee) Annual Report and Financial Statements for the Year Ended 31 December 2024

Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL

Myotonic Dystrophy Support Group

Contents

Reference and Administrative Details 1
Trustees' Report 2 to 5
Independent Examiner's Report 6
Statement of Financial Activities 7 to 8
Balance Sheet 9
Notes to the Financial Statements 10 to 19

Myotonic Dystrophy Support Group

Reference and Administrative Details

Trustees Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Rose Walton Secretary Michael Walker, Chair Charity Registration Number 1134499 Company Registration Number 07144171 Registered Office 19 - 21 Main Road Gedling Nottingham NG4 3HQ Independent Examiner John O'Brien, employee of Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL

Page 1

Myotonic Dystrophy Support Group

Trustees' Report

The trustees, who are directors for the purposes of company law, present the annual report together with the financial statements of the charitable company for the year ended 31 December 2024.

Trustees and officers

The trustees and officers serving during the year and since the year end were as follows:

Trustees: Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Rose Walton

Secretary: Michael Walker, Chair

Structure, governance and management

Nature of governing document

The charity is a company limited by guarantee and registered charity. It is operated under the rules of its memorandum and articles of association dated 02/02/2010. It has no share capital and the liability of each member in the event of winding-up is limited to £1.

Recruitment and appointment of trustees

By personal invitations to those with appropriate skills, word of mouth.

Objectives and activities

Objects and aims

To support families and carers who are affected by Myotonic Dystrophy.

Objectives, strategies and activities

Annual conferences; Patient information days; Regular newsletter; Local contact get-togethers; Information leaflets; Social Media - Facebook/Instagram; Telephone Helpline.

Public benefit

The activities mainly benefit those with and those affected by the condition.

The trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.

Page 2

Myotonic Dystrophy Support Group

Trustees' Report

Achievements and performance

In 2024, for the first time, we held two conferences for our members rather than one event. This allowed many more members to meet with fellow families and our professional contacts. The North event was held near Newcastle, alongside the AGM, whilst the South event was held at Basingstoke.

In addition to this, for the first time the Trustees organised two Patient Information Days in conjunction with our contacts in the NHS, other charities, and the research communities. The events included members of the Support Group alongside families from the local areas who had not previously attended an MDSG event. The first event, in the summer, was held in Sheffield, whilst the second event was held in Belfast during the autumn.

In total, these four events brought together over 400 delegates which is an amazing outcome. The Trustees plan to hold a similar series of events during 2025.

In addition, local get-togethers were held for our members in Birkenshaw (West Yorkshire); Newark; Ipswich, Northampton, Glasgow.

We attended the following external events, as part of our programme of spreading awareness of the condition across the medical and professional communities that could encounter Myotonic Dystrophy when seeing patients. Royal College of Paediatric and Child Health Conference, Royal College of Optometry Conference and the Royal College of General Practitioners Conference.

Support for the UK Myotonic Dystrophy Registry in Newcastle has continued; this will remain a key aim for the Support Group in the years ahead.

In 2024, Trustees attended the biennial meeting of the IDMC which was held in the Netherlands. This brings together technical expertise and knowledge of Myotonic Dystrophy from around the world. MDSG was able to provide financial support to some of our younger researchers here in the UK, giving them the chance to attend as part of their overall development within the research community.

Our strong financial position was further improved following the receipt of legacies, some significant. Further comment on this aspect is given below.

A new trustee – Dr Valeria di Leo – was co-opted on to the board during the second half of the year.

Financial review

As mentioned above, the Support Group received a significant level of legacy income during the year. This has resulted in a further increase in the funds held by the Board which will be used to support our future activities.

The Board has assessed the ways in which these could best be directed, so as to promote real outcomes to our members. Examples include the donation of funds for research purposes, new ways of supporting our members directly, and the updating of systems and processes within the office.

As an interim measure, we continue to invest funds with a number of regulated financial institutions so as to generate interest income for the group. These investments are restricted to fixed term bonds and similar cash deposits.

The Support Group’s assets as at 31 December 2024 include Restricted cash balances of £122,701, which have been received for the express purpose of supporting research into Myotonic Dystrophy.

Page 3

Myotonic Dystrophy Support Group

Trustees' Report

Policy on reserves

Our current policy is to maintain reserves at a level equivalent to two years’ estimated expenses/running costs. At present this position is being maintained, and there is no need to make a change.

Our aim is to use the reserves we have on a gradual basis, into the long and medium term, rather than to use them all in one or two years (for example).

Principal risks and uncertainties

Financial risk

The Board considers that there are no material financial risks at the current time, given the financial reserves held and the absence of significant long term financial commitments. Income and expenditure levels are regularly monitored by the Board to ensure that our planned activities remain in line with the resources we have available.

Page 4

Myotonic Dystropby Support Group T￿￿tees, Report Statement of Responsibilitie5 The trustees (who are also the directOTS of Myotonic Dystrophy Support Group for the purposes of company law) are responsible for preparing the trustees, r¢port and the financial statements in accordance with applicable law and Unitcd Kingdom Accounting Standards {UDited Kingdom Generally Accepted Accounting Practice), including FRS 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland" The report and accounts have been prepared in accordan¢e with the provisions in the Companies Act 2006 relating to small companies. Company law requires the trustees to Prepa￿ fmancial statements for each financial year. Under company law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affai￿ of the charitsble company and of the incoming resources and application of resources, including its income and expenditure. of the charitable company for that perio(L In preparing these fmancial statsments, the ttustees are requtred to: select suitsble accounting policies and apply them consistently: observe the methods and prlnciples in the Charities SORP: make judgements and estimates thal are reasonable and prudent: state wh¢ther applicable accounting standards, comprising FRS 102 have been followed subject to any materLal departures disclosed and explained in the fmancial sta*ments' and prepare the financial ststements on the going concern basis unless it is inappropriate to presume that the charitabl¢ company will continue in business. The trustees are responsible for keeping proper accounting records that Can disclose with reasonable accuracy at any time the fRnancial position of the charitsble company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable ompany and hence for taking reasonable steps for the prevention and detection of fraud and other i￿¢gUlarItIes. The trustees are responsible for the maintenance and integrity of the corpordte and financial inforn)ation included on the charitable company's website. Legislation governing the preparation and disseminatlOD of financial ststements may difftr from legislation in other jurisdictions. Small eompanies provision statement This report has been prepared in accordance with the small companies ￿8]rn¢ under the Companies Act 21)06. The annual report was approved by the trustees of the charity on ..... ..... ........ Michael Walker Company secretary and trustee Page 5

Myotonic Dystrophy Support Group

Independent Examiner's Report to the trustees of Myotonic Dystrophy Support Group ('the Company')

Independent examiner’s report to the trustees of Myotonic Dystrophy Support Group ('the Company')

I report to the charity trustees on my examination of the accounts of the company for the year ended 31 December 2024.

Responsibilities and basis of report

As the charity’s trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’).

Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner’s statement

Since the Company's gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member and Fellow of the Association of Charity Independent Examiners, which is one of the listed bodies. I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair' view which is not a matter considered as part of an independent examination; or

  4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)].

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

...................................... a

John O'Brien MSc, FAIA, FCIE, employee of Community Accounting Plus Fellow of the Association of Charity Independent Examiners

Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL

Date:.............................

Page 6

Myotonic Dystrophy Support Group

Statement of Financial Activities for the Year Ended 31 December 2024 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)

Note
Income and Endowments from:
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total Income
Expenditure on:
Charitable activities
6
Total Expenditure
Net income
Net movement in funds
Reconciliation of funds
Total funds brought forward
Total funds carried forward
19		 Unrestricted
£
313,582
3,195
14,783
4,833
336,393
(128,492)
(128,492)
207,901
207,901
567,025
774,926		 Restricted
£
-
2,456
-
-
2,456
-
-
2,456
2,456
120,245
122,701		 Total
2024
£
313,582
5,651
14,783
4,833
338,849
(128,492)
(128,492)
210,357
210,357
687,270
897,627		 Total
2023
£
236,237
2,128
19,931
495
258,791
(117,901)
(117,901)
140,890
140,890
546,380
687,270

All of the charity's activities derive from continuing operations during the above two periods. The funds breakdown for the period is shown in note 19.

The notes on pages 10 to 19 form an integral part of these financial statements. Page 7

Myotonic Dystrophy Support Group

Statement of Financial Activities for the Year Ended 31 December 2024 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)

These are the figures for the previous accounting period and are included for comparative purposes

Note
Income and Endowments from:
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total income
Expenditure on:
Charitable activities
6
Total expenditure
Net income
Net movement in funds
Reconciliation of funds
Total funds brought forward
Total funds carried forward
19		 Unrestricted
funds
£
133,391
1,692
19,931
495
155,509
(117,901)
(117,901)
37,608
37,608
529,417
567,025		 Restricted
funds
£
102,846
436
-
-
103,282
-
-
103,282
103,282
16,963
120,245		 Total
2023
£
236,237
2,128
19,931
495
258,791
(117,901)
(117,901)
140,890
140,890
546,380
687,270

The notes on pages 10 to 19 form an integral part of these financial statements. Page 8

Myotonie Dystrophy Support Group (Registration number: 07144171) Balance Sheet as at 31 December 2024 2024 2023 Note Current assets Stocks Debtors Cash at bank and in hand 3283 1,481 900,222 2,977 2.061 685,509 io 904,986 690,547 Credltors: Amounts falling due witbin one year 12 7,359) 3,277 Net assets 897.627 687.270 Funds of the Charity: Restricted Income funds Restricted funds 19 122,701 120,245 Unrestricted income funds Unrestricted funds 774,926 567,025 Total funds 19 897,627 687,270 For the financial year ending 31 December 2024 the charity was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. Directors, responsibilities: The members have not required the charity to obtain an audit of its accounts for the year in question in accordance with sectlon 476. and The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts. These fmancial statements have been prepared in a￿OrdanCe with the special provisions relating to companies subject to the small companies regime within Part 15 of the Companies Act 2006. financial ststements on pages 7 to 19 were approved by the trustees, and authorised for issue on . and signed on their behalf by.. Pet Tru FetTar< tee The notes on pages l O to 19 forni an integral part of these fmancial statements. Page 9

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

1 Accounting policies

Summary of significant accounting policies and key accounting estimates

The principal accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all the years presented, unless otherwise stated.

Statement of compliance

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice (applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)) (issued in October 2019) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

Basis of preparation

Myotonic Dystrophy Support Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.

Going concern

The financial statements have been prepared on a going concern basis.

The trustees assess whether the use of going concern is appropriate i.e. whether there are any material uncertainties related to events or conditions that may cast significant doubt on the ability of the charity to continue as a going concern. The trustees make this assessment in respect of a period of one year from the date of approval of the financial statements.

Exemption from preparing a cash flow statement

Under the exemption available to smaller charities the Board of Trustees has chosen not to include a Statement of Cash Flows within the financial statements.

Income and endowments

Voluntary income including donations, gifts and legacies that provide core funding or are of a general nature is recognised when the charity has entitlement to the income, it is probable that the income will be received and the amount can be measured with sufficient reliability.

Donations and legacies

Donations are recognised when the charity has been notified in writing of both the amount and settlement date. In the event that a donation is subject to conditions that require a level of performance by the charity before the charity is entitled to the funds, the income is deferred and not recognised until either those conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charity and it is probable that these conditions will be fulfilled in the reporting period.

Legacy gifts are recognised on a case by case basis following the grant of probate when the administrator/executor for the estate has communicated in writing both the amount and settlement date. In the event that the gift is in the form of an asset other than cash or a financial asset traded on a recognised stock exchange, recognition is subject to the value of the gift being reliably measurable with a degree of reasonable accuracy and the title to the asset having been transferred to the charity.

Page 10

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

Expenditure

All expenditure is recognised once there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with central staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use. Other support costs are allocated based on the spread of staff costs.

Charitable activities

Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.

Taxation

The charity is considered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

Tangible fixed assets

Individual fixed assets costing £500.00 or more are initially recorded at cost, less any subsequent accumulated depreciation and subsequent accumulated impairment losses.

Depreciation and amortisation

Depreciation is calculated to write down the cost or valuation, less estimated residual value, of all tangible fixed assets with a cost exceeding £500 over their expected useful lives on a straight line basis.

Asset class Depreciation method and rate IT equipment 25% on a straight line basis

Stock

Stock is valued at the lower of cost and estimated selling price less costs to complete and sell, after due regard for obsolete and slow moving stocks. Cost is determined using the first-in, first-out (FIFO).

Trade debtors

Trade debtors are amounts due from customers for merchandise sold or services performed in the ordinary course of business.

Trade debtors are recognised initially at the transaction price. They are subsequently measured at amortised cost using the effective interest method, less provision for impairment. A provision for the impairment of trade debtors is established when there is objective evidence that the charity will not be able to collect all amounts due according to the original terms of the receivables.

Cash and cash equivalents

Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value.

Page 11

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

Trade creditors

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Accounts payable are classified as current liabilities if the charity does not have an unconditional right, at the end of the reporting period, to defer settlement of the creditor for at least twelve months after the reporting date. If there is an unconditional right to defer settlement for at least twelve months after the reporting date, they are presented as non-current liabilities.

Trade creditors are recognised initially at the transaction price and subsequently measured at amortised cost using the effective interest method.

Fund structure

Unrestricted income funds are general funds that are available for use at the trustees' discretion in furtherance of the objectives of the charity.

Restricted income funds are those grants for use in a particular area or for specific purposes, the use of which is restricted to that area or purpose.

2 Income from donations and legacies

Donations and legacies;
Donations from companies, trusts and similar
proceeds
Donations from individuals
Legacies
Gift aid reclaimed
Within legacies:
In memorium £25,409 (2023 - £11,843)
Legacies £268,144 (2023 - £192,222)		 Unrestricted
funds
General
£
-
16,592
293,553
3,437
313,582		 Total
2024
£
-
16,592
293,553
3,437
313,582		 Total
2023
£
5,843
20,913
204,065
5,416
236,237

Page 12

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

3 Income from charitable activities

Unrestricted
funds
General
£
Donations
-
Royalties
-
Conferences
3,195
3,195
4
Income from other trading activities
Trading income;
Income from sale of donated goods and services
Fundraising
Membership subscriptions
5
Investment income
Interest receivable and similar income;
Interest receivable on bank deposits		 Restricted
funds
£
2,413
43
-
2,456
Unrestricted
funds
General
£
1,847
8,124
4,812
14,783
Unrestricted
funds
General
£
4,833		 Total
2024
£
2,413
43
3,195
5,651
Total
2024
£
1,847
8,124
4,812
14,783
Total
2024
£
4,833		 Total
2023
£
436
207
1,486
2,129
Total
2023
£
1,713
12,434
5,784
19,931
Total
2023
£
495

Page 13

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

6 Expenditure on charitable activities

Awareness
Christmas cards
Cleaning & hygiene
Conferences & AGM
Cost of sales
Donations to registry & research
Equipment, repairs & renewals
Information leaflets
Insurance
Legal & professional
Newsletter
Office equipment rental
Payroll & bookkeeping services
Postage
Printing & stationery
Rent, rates & utilities
Depreciation
Sundry expenditure
Telephone
Office admin
Travel, subsistence & meetings
Wages & NI
Website costs
Premises maintenance
Bank charges
Dublin
Belfast
Sheffield
IDMC 2024		 Unrestricted
funds
General
£
4,055
703
87
31,391
1,191
12,500
474
2,023
991
1,056
2,031
876
467
9,067
2,407
10,972
-
388
1,647
7,708
4,222
6,523
756
3,493
134
-
5,915
3,956
13,459
128,492		 Total
2024
£
4,055
703
87
31,391
1,191
12,500
474
2,023
991
1,056
2,031
876
467
9,067
2,407
10,972
-
388
1,647
7,708
4,222
6,523
756
3,493
134
-
5,915
3,956
13,459
128,492		 Total
2023
£
9,959
312
175
31,390
2,441
18,055
599
986
851
1,455
2,159
2,169
412
5,638
1,690
11,348
450
-
1,551
3,985
9,886
10,872
492
-
432
594
-
-
-
117,901

Page 14

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

7 Staff costs

The aggregate payroll costs were as follows:

Staff costs during the year were:
Wages and salaries		 2024
£
6,523		 2023
£
10,872

The monthly average number of persons (including senior management team) employed by the charity during the year was as follows:

Average number of employees 2024
No
1		 2023
No
2

No employee received emoluments of more than £60,000 during the year.

8 Tangible fixed assets

8
Tangible fixed assets
Cost
At 1 January 2024
At 31 December 2024
Depreciation
At 1 January 2024
At 31 December 2024
Net book value
At 31 December 2024
At 31 December 2023
9
Stock
Stocks
10 Debtors
Prepayments		 IT Equipment
£
1,797		 Total
£
1,797
1,797
1,797
1,797
-
-
2023
£
2,977
1,797
1,797
1,797
-
-
2024
£
3,283
2024
£
1,481
2023
£
2,061

Page 15

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

11 Cash and cash equivalents

Cash at bank
Short-term deposits		 2024
£
210,222
690,000
900,222		 2023
£
530,194
155,315
685,509

12 Creditors: amounts falling due within one year

Trade creditors
Other taxation and social security
Other creditors		 2024
£
5,901
164
1,294
7,359		 2023
£
1,906
152
1,219
3,277

13 Obligations under leases and hire purchase contracts

Operating lease commitments

Total future minimum lease payments under non-cancellable operating leases are as follows:

Land and buildings
Within one year		 2024
£
8,500		 2023
£
8,500

14 Charity status

The charity is a company limited by guarantee and consequently does not have share capital. Each of the trustees is liable to contribute an amount not exceeding £1 towards the assets of the charity in the event of liquidation.

15 Related party transactions

During the year the charity made the following related party transactions:

Michael Walker

During this period, the charity paid £5,597 (2023 - £4,089) to L&T Press Ltd for printing. The company is owned by Michael Walker who is a director of the charity.

At the balance sheet date the amount due to/from Michael Walker was £Nil (2023 - £Nil).

Page 16

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

16 Fees payable to independent examiner

During the period, the fees payable (excluding VAT) to the charity’s independent examiner Community Accounting Plus are analysed as follows:

Independent examination
Other financial services		 2024
£
1,005
289
1,294		 2023
£
905
318
1,223

17 Taxation

The charity is a registered charity and is therefore exempt from taxation.

18 Trustees remuneration and expenses

During the year the charity made the following transactions with trustees:

Michael Walker

Michael Walker received remuneration of £6,630 (2023: £6,630) and £1,532 (2023: £4,688) of expenses were reimbursed to Michael Walker during the year.

Linda Perry

Linda Perry received remuneration of £7,708 (2023: £3,935) and £57 (2023: £271) of expenses were reimbursed to Linda Perry during the year.

Peter Ferrari

£1,339 (2023: £1,341) of expenses were reimbursed to Peter Ferrari during the year.

Euan Cumming

£160 (2023: £109) of expenses were reimbursed to Euan Cumming during the year.

Elycia Ormandy

£Nil (2023: £216) of expenses were reimbursed to Elycia Ormandy during the year.

Claire McAlonan

Dr Ami Ketley

Rose Walton

No trustees have received any other benefits from the charity during the year.

Page 17

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

19 Funds

Unrestricted funds
General
General Fund
Restricted funds
Research & Registry Fund
Total funds
Unrestricted funds
General
General Fund
Restricted
Research & Registry Fund
Total funds		 Balance at 1
January 2024
£
567,025
120,245
687,270
Balance at 1
January 2023
£
529,417
16,963
546,380		 Incoming
resources
£
336,393
2,456
338,849
Incoming
resources
£
155,509
103,282
258,791		 Resources
expended
£
(128,492)
-
(128,492)
Resources
expended
£
(117,901)
-
(117,901)		 Balance at 31
December
2024
£
774,926
122,701
897,627
Balance at 31
December
2023
£
567,025
120,245
687,270

The specific purposes for which the funds are to be applied are as follows:

The restricted funds are for the research and national registry. Research donations are to be agreed at Board level.

Page 18

Myotonic Dystrophy Support Group

Notes to the Financial Statements for the Year Ended 31 December 2024

20 Analysis of net assets between funds

Unrestricted

Unrestricted
Current assets
Current liabilities
Total net assets
Current assets
Current liabilities
Total net assets		 General
£
782,285
(7,359)
774,926
Unrestricted
General
£
570,302
(3,277)
567,025		 Restricted
£
122,701
-
122,701
Restricted
£
120,245
-
120,245		 2024
Total funds
£
904,986
(7,359)
897,627
2023
Total funds
£
690,547
(3,277)
687,270

Page 19