Company registration number: 07144171 Charity registration number: 1134499 ## Myotonic Dystrophy Support Group (A company limited by guarantee) Annual Report and Financial Statements for the Year Ended 31 December 2024 Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL ## **Myotonic Dystrophy Support Group** ## **Contents** |Reference and Administrative Details|1| |---|---| |Trustees' Report|2 to 5| |Independent Examiner's Report|6| |Statement of Financial Activities|7 to 8| |Balance Sheet|9| |Notes to the Financial Statements|10 to 19| ## **Myotonic Dystrophy Support Group** ## **Reference and Administrative Details** **Trustees** Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Rose Walton **Secretary** Michael Walker, Chair **Charity Registration Number** 1134499 **Company Registration Number** 07144171 **Registered Office** 19 - 21 Main Road Gedling Nottingham NG4 3HQ **Independent Examiner** John O'Brien, employee of Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL Page 1 ## **Myotonic Dystrophy Support Group** ## **Trustees' Report** The trustees, who are directors for the purposes of company law, present the annual report together with the financial statements of the charitable company for the year ended 31 December 2024. ## **Trustees and officers** The trustees and officers serving during the year and since the year end were as follows: Trustees: Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Rose Walton Secretary: Michael Walker, Chair ## **Structure, governance and management** ## _**Nature of governing document**_ The charity is a company limited by guarantee and registered charity. It is operated under the rules of its memorandum and articles of association dated 02/02/2010. It has no share capital and the liability of each member in the event of winding-up is limited to £1. ## _**Recruitment and appointment of trustees**_ By personal invitations to those with appropriate skills, word of mouth. ## **Objectives and activities** ## _**Objects and aims**_ To support families and carers who are affected by Myotonic Dystrophy. ## _**Objectives, strategies and activities**_ Annual conferences; Patient information days; Regular newsletter; Local contact get-togethers; Information leaflets; Social Media - Facebook/Instagram; Telephone Helpline. ## _**Public benefit**_ The activities mainly benefit those with and those affected by the condition. The trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales. Page 2 ## **Myotonic Dystrophy Support Group** ## **Trustees' Report** ## **Achievements and performance** In 2024, for the first time, we held two conferences for our members rather than one event. This allowed many more members to meet with fellow families and our professional contacts. The North event was held near Newcastle, alongside the AGM, whilst the South event was held at Basingstoke. In addition to this, for the first time the Trustees organised two Patient Information Days in conjunction with our contacts in the NHS, other charities, and the research communities. The events included members of the Support Group alongside families from the local areas who had not previously attended an MDSG event. The first event, in the summer, was held in Sheffield, whilst the second event was held in Belfast during the autumn. In total, these four events brought together over 400 delegates which is an amazing outcome. The Trustees plan to hold a similar series of events during 2025. In addition, local get-togethers were held for our members in Birkenshaw (West Yorkshire); Newark; Ipswich, Northampton, Glasgow. We attended the following external events, as part of our programme of spreading awareness of the condition across the medical and professional communities that could encounter Myotonic Dystrophy when seeing patients. Royal College of Paediatric and Child Health Conference, Royal College of Optometry Conference and the Royal College of General Practitioners Conference. Support for the UK Myotonic Dystrophy Registry in Newcastle has continued; this will remain a key aim for the Support Group in the years ahead. In 2024, Trustees attended the biennial meeting of the IDMC which was held in the Netherlands. This brings together technical expertise and knowledge of Myotonic Dystrophy from around the world. MDSG was able to provide financial support to some of our younger researchers here in the UK, giving them the chance to attend as part of their overall development within the research community. Our strong financial position was further improved following the receipt of legacies, some significant. Further comment on this aspect is given below. A new trustee – Dr Valeria di Leo – was co-opted on to the board during the second half of the year. ## **Financial review** As mentioned above, the Support Group received a significant level of legacy income during the year. This has resulted in a further increase in the funds held by the Board which will be used to support our future activities. The Board has assessed the ways in which these could best be directed, so as to promote real outcomes to our members. Examples include the donation of funds for research purposes, new ways of supporting our members directly, and the updating of systems and processes within the office. As an interim measure, we continue to invest funds with a number of regulated financial institutions so as to generate interest income for the group. These investments are restricted to fixed term bonds and similar cash deposits. The Support Group’s assets as at 31 December 2024 include Restricted cash balances of £122,701, which have been received for the express purpose of supporting research into Myotonic Dystrophy. Page 3 ## **Myotonic Dystrophy Support Group** ## **Trustees' Report** ## _**Policy on reserves**_ Our current policy is to maintain reserves at a level equivalent to two years’ estimated expenses/running costs. At present this position is being maintained, and there is no need to make a change. Our aim is to use the reserves we have on a gradual basis, into the long and medium term, rather than to use them all in one or two years (for example). ## _**Principal risks and uncertainties**_ ## _Financial risk_ The Board considers that there are no material financial risks at the current time, given the financial reserves held and the absence of significant long term financial commitments. Income and expenditure levels are regularly monitored by the Board to ensure that our planned activities remain in line with the resources we have available. Page 4 Myotonic Dystropby Support Group T￿￿tees, Report Statement of Responsibilitie5 The trustees (who are also the directOTS of Myotonic Dystrophy Support Group for the purposes of company law) are responsible for preparing the trustees, r¢port and the financial statements in accordance with applicable law and Unitcd Kingdom Accounting Standards {UDited Kingdom Generally Accepted Accounting Practice), including FRS 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland" The report and accounts have been prepared in accordan¢e with the provisions in the Companies Act 2006 relating to small companies. Company law requires the trustees to Prepa￿ fmancial statements for each financial year. Under company law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affai￿ of the charitsble company and of the incoming resources and application of resources, including its income and expenditure. of the charitable company for that perio(L In preparing these fmancial statsments, the ttustees are requtred to: select suitsble accounting policies and apply them consistently: observe the methods and prlnciples in the Charities SORP: make judgements and estimates thal are reasonable and prudent: state wh¢ther applicable accounting standards, comprising FRS 102 have been followed subject to any materLal departures disclosed and explained in the fmancial sta*ments' and prepare the financial ststements on the going concern basis unless it is inappropriate to presume that the charitabl¢ company will continue in business. The trustees are responsible for keeping proper accounting records that Can disclose with reasonable accuracy at any time the fRnancial position of the charitsble company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable ompany and hence for taking reasonable steps for the prevention and detection of fraud and other i￿¢gUlarItIes. The trustees are responsible for the maintenance and integrity of the corpordte and financial inforn)ation included on the charitable company's website. Legislation governing the preparation and disseminatlOD of financial ststements may difftr from legislation in other jurisdictions. Small eompanies provision statement This report has been prepared in accordance with the small companies ￿8]rn¢ under the Companies Act 21)06. The annual report was approved by the trustees of the charity on ..... ..... ........ Michael Walker Company secretary and trustee Page 5 ## **Myotonic Dystrophy Support Group** ## **Independent Examiner's Report to the trustees of Myotonic Dystrophy Support Group ('the Company')** ## **Independent examiner’s report to the trustees of Myotonic Dystrophy Support Group ('the Company')** I report to the charity trustees on my examination of the accounts of the company for the year ended 31 December 2024. ## **Responsibilities and basis of report** As the charity’s trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. ## **Independent examiner’s statement** Since the Company's gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member and Fellow of the Association of Charity Independent Examiners, which is one of the listed bodies. I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair' view which is not a matter considered as part of an independent examination; or 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)]. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. ...................................... a John O'Brien MSc, FAIA, FCIE, employee of Community Accounting Plus Fellow of the Association of Charity Independent Examiners Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL Date:............................. Page 6 ## **Myotonic Dystrophy Support Group** ## **Statement of Financial Activities for the Year Ended 31 December 2024 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)** |**Note**
**Income and Endowments from:**
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total Income
**Expenditure on:**
Charitable activities
6
Total Expenditure
Net income
Net movement in funds
**Reconciliation of funds**
Total funds brought forward
Total funds carried forward
19|**Unrestricted**
**£**
313,582
3,195
14,783
4,833
336,393
(128,492)
(128,492)
207,901
207,901
567,025
774,926|**Restricted**
**£**
-
2,456
-
-
2,456
-
-
2,456
2,456
120,245
122,701|**Total**
**2024**
**£**
313,582
5,651
14,783
4,833
338,849
(128,492)
(128,492)
210,357
210,357
687,270
897,627|**Total**
**2023**
**£**
236,237
2,128
19,931
495| |---|---|---|---|---| |||||258,791| |||||(117,901)| |||||(117,901)| |||||140,890| |||||140,890
546,380| |||||687,270| All of the charity's activities derive from continuing operations during the above two periods. The funds breakdown for the period is shown in note 19. The notes on pages 10 to 19 form an integral part of these financial statements. Page 7 ## **Myotonic Dystrophy Support Group** ## **Statement of Financial Activities for the Year Ended 31 December 2024 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)** ## **These are the figures for the previous accounting period and are included for comparative purposes** |**Note**
**Income and Endowments from:**
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total income
**Expenditure on:**
Charitable activities
6
Total expenditure
Net income
Net movement in funds
**Reconciliation of funds**
Total funds brought forward
Total funds carried forward
19|**Unrestricted**
**funds**
**£**
133,391
1,692
19,931
495
155,509
(117,901)
(117,901)
37,608
37,608
529,417
567,025|**Restricted**
**funds**
**£**
102,846
436
-
-
103,282
-
-
103,282
103,282
16,963
120,245|**Total**
**2023**
**£**
236,237
2,128
19,931
495| |---|---|---|---| ||||258,791| ||||(117,901)| ||||(117,901)| ||||140,890| ||||140,890
546,380| ||||687,270| The notes on pages 10 to 19 form an integral part of these financial statements. Page 8 Myotonie Dystrophy Support Group (Registration number: 07144171) Balance Sheet as at 31 December 2024 2024 2023 Note Current assets Stocks Debtors Cash at bank and in hand 3283 1,481 900,222 2,977 2.061 685,509 io 904,986 690,547 Credltors: Amounts falling due witbin one year 12 7,359) 3,277 Net assets 897.627 687.270 Funds of the Charity: Restricted Income funds Restricted funds 19 122,701 120,245 Unrestricted income funds Unrestricted funds 774,926 567,025 Total funds 19 897,627 687,270 For the financial year ending 31 December 2024 the charity was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. Directors, responsibilities: The members have not required the charity to obtain an audit of its accounts for the year in question in accordance with sectlon 476. and The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts. These fmancial statements have been prepared in a￿OrdanCe with the special provisions relating to companies subject to the small companies regime within Part 15 of the Companies Act 2006. financial ststements on pages 7 to 19 were approved by the trustees, and authorised for issue on . and signed on their behalf by.. Pet Tru FetTar< tee The notes on pages l O to 19 forni an integral part of these fmancial statements. Page 9 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **1 Accounting policies** ## **Summary of significant accounting policies and key accounting estimates** The principal accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all the years presented, unless otherwise stated. ## **Statement of compliance** The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice (applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)) (issued in October 2019) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006. ## **Basis of preparation** Myotonic Dystrophy Support Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes. ## **Going concern** The financial statements have been prepared on a going concern basis. The trustees assess whether the use of going concern is appropriate i.e. whether there are any material uncertainties related to events or conditions that may cast significant doubt on the ability of the charity to continue as a going concern. The trustees make this assessment in respect of a period of one year from the date of approval of the financial statements. ## **Exemption from preparing a cash flow statement** Under the exemption available to smaller charities the Board of Trustees has chosen not to include a Statement of Cash Flows within the financial statements. ## **Income and endowments** Voluntary income including donations, gifts and legacies that provide core funding or are of a general nature is recognised when the charity has entitlement to the income, it is probable that the income will be received and the amount can be measured with sufficient reliability. ## _**Donations and legacies**_ Donations are recognised when the charity has been notified in writing of both the amount and settlement date. In the event that a donation is subject to conditions that require a level of performance by the charity before the charity is entitled to the funds, the income is deferred and not recognised until either those conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charity and it is probable that these conditions will be fulfilled in the reporting period. Legacy gifts are recognised on a case by case basis following the grant of probate when the administrator/executor for the estate has communicated in writing both the amount and settlement date. In the event that the gift is in the form of an asset other than cash or a financial asset traded on a recognised stock exchange, recognition is subject to the value of the gift being reliably measurable with a degree of reasonable accuracy and the title to the asset having been transferred to the charity. Page 10 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **Expenditure** All expenditure is recognised once there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with central staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use. Other support costs are allocated based on the spread of staff costs. ## _**Charitable activities**_ Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them. ## **Taxation** The charity is considered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes. ## **Tangible fixed assets** Individual fixed assets costing £500.00 or more are initially recorded at cost, less any subsequent accumulated depreciation and subsequent accumulated impairment losses. ## **Depreciation and amortisation** Depreciation is calculated to write down the cost or valuation, less estimated residual value, of all tangible fixed assets with a cost exceeding £500 over their expected useful lives on a straight line basis. **Asset class Depreciation method and rate** IT equipment 25% on a straight line basis ## **Stock** Stock is valued at the lower of cost and estimated selling price less costs to complete and sell, after due regard for obsolete and slow moving stocks. Cost is determined using the first-in, first-out (FIFO). ## **Trade debtors** Trade debtors are amounts due from customers for merchandise sold or services performed in the ordinary course of business. Trade debtors are recognised initially at the transaction price. They are subsequently measured at amortised cost using the effective interest method, less provision for impairment. A provision for the impairment of trade debtors is established when there is objective evidence that the charity will not be able to collect all amounts due according to the original terms of the receivables. ## **Cash and cash equivalents** Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value. Page 11 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **Trade creditors** Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Accounts payable are classified as current liabilities if the charity does not have an unconditional right, at the end of the reporting period, to defer settlement of the creditor for at least twelve months after the reporting date. If there is an unconditional right to defer settlement for at least twelve months after the reporting date, they are presented as non-current liabilities. Trade creditors are recognised initially at the transaction price and subsequently measured at amortised cost using the effective interest method. ## **Fund structure** Unrestricted income funds are general funds that are available for use at the trustees' discretion in furtherance of the objectives of the charity. Restricted income funds are those grants for use in a particular area or for specific purposes, the use of which is restricted to that area or purpose. ## **2 Income from donations and legacies** |Donations and legacies;
Donations from companies, trusts and similar
proceeds
Donations from individuals
Legacies
Gift aid reclaimed
Within legacies:
In memorium £25,409 (2023 - £11,843)
Legacies £268,144 (2023 - £192,222)|**Unrestricted**
**funds**
**General**
**£**
-
16,592
293,553
3,437
313,582|**Total**
**2024**
**£**
-
16,592
293,553
3,437
313,582|**Total**
**2023**
**£**
5,843
20,913
204,065
5,416| |---|---|---|---| ||||236,237| ||||| Page 12 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **3 Income from charitable activities** |**Unrestricted**
**funds**
**General**
**£**
Donations
-
Royalties
-
Conferences
3,195
3,195
**4**
**Income from other trading activities**
Trading income;
Income from sale of donated goods and services
Fundraising
Membership subscriptions
**5**
**Investment income**
Interest receivable and similar income;
Interest receivable on bank deposits|**Restricted**
**funds**
**£**
2,413
43
-
2,456
**Unrestricted**
**funds**
**General**
**£**
1,847
8,124
4,812
14,783
**Unrestricted**
**funds**
**General**
**£**
4,833|**Total**
**2024**
**£**
2,413
43
3,195
5,651
**Total**
**2024**
**£**
1,847
8,124
4,812
14,783
**Total**
**2024**
**£**
4,833|**Total**
**2023**
**£**
436
207
1,486| |---|---|---|---| ||||2,129| ||||**Total**
**2023**
**£**
1,713
12,434
5,784| ||||19,931| ||||**Total**
**2023**
**£**
495| Page 13 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **6 Expenditure on charitable activities** |Awareness
Christmas cards
Cleaning & hygiene
Conferences & AGM
Cost of sales
Donations to registry & research
Equipment, repairs & renewals
Information leaflets
Insurance
Legal & professional
Newsletter
Office equipment rental
Payroll & bookkeeping services
Postage
Printing & stationery
Rent, rates & utilities
Depreciation
Sundry expenditure
Telephone
Office admin
Travel, subsistence & meetings
Wages & NI
Website costs
Premises maintenance
Bank charges
Dublin
Belfast
Sheffield
IDMC 2024|**Unrestricted**
**funds**
**General**
**£**
4,055
703
87
31,391
1,191
12,500
474
2,023
991
1,056
2,031
876
467
9,067
2,407
10,972
-
388
1,647
7,708
4,222
6,523
756
3,493
134
-
5,915
3,956
13,459
128,492|**Total**
**2024**
**£**
4,055
703
87
31,391
1,191
12,500
474
2,023
991
1,056
2,031
876
467
9,067
2,407
10,972
-
388
1,647
7,708
4,222
6,523
756
3,493
134
-
5,915
3,956
13,459
128,492|**Total**
**2023**
**£**
9,959
312
175
31,390
2,441
18,055
599
986
851
1,455
2,159
2,169
412
5,638
1,690
11,348
450
-
1,551
3,985
9,886
10,872
492
-
432
594
-
-
-| |---|---|---|---| ||||117,901| Page 14 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **7 Staff costs** The aggregate payroll costs were as follows: |**Staff costs during the year were:**
Wages and salaries|**2024**
**£**
6,523|**2023**
**£**
10,872| |---|---|---| The monthly average number of persons (including senior management team) employed by the charity during the year was as follows: |Average number of employees|**2024**
**No**
1|**2023**
**No**
2| |---|---|---| No employee received emoluments of more than £60,000 during the year. ## **8 Tangible fixed assets** |**8**
**Tangible fixed assets**||||| |---|---|---|---|---| |**Cost**
At 1 January 2024
At 31 December 2024
**Depreciation**
At 1 January 2024
At 31 December 2024
**Net book value**
At 31 December 2024
At 31 December 2023
**9**
**Stock**
Stocks
**10 Debtors**
Prepayments||**IT Equipment**
**£**
1,797||**Total**
**£**
1,797
1,797
1,797
1,797
-
-
**2023**
**£**
2,977| |||1,797||| |||1,797||| |||1,797||| |||-||| |||-||| |||**2024**
**£**
3,283
**2024**
**£**
1,481||| |||||**2023**
**£**
2,061| Page 15 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **11 Cash and cash equivalents** |Cash at bank
Short-term deposits|**2024**
**£**
210,222
690,000
900,222|**2023**
**£**
530,194
155,315| |---|---|---| |||685,509| ## **12 Creditors: amounts falling due within one year** |Trade creditors
Other taxation and social security
Other creditors|**2024**
**£**
5,901
164
1,294
7,359|**2023**
**£**
1,906
152
1,219| |---|---|---| |||3,277| ## **13 Obligations under leases and hire purchase contracts** ## **Operating lease commitments** Total future minimum lease payments under non-cancellable operating leases are as follows: |**Land and buildings**
Within one year|**2024**
**£**
8,500|**2023**
**£**
8,500| |---|---|---| ## **14 Charity status** The charity is a company limited by guarantee and consequently does not have share capital. Each of the trustees is liable to contribute an amount not exceeding £1 towards the assets of the charity in the event of liquidation. ## **15 Related party transactions** During the year the charity made the following related party transactions: ## **Michael Walker** During this period, the charity paid £5,597 (2023 - £4,089) to L&T Press Ltd for printing. The company is owned by Michael Walker who is a director of the charity. At the balance sheet date the amount due to/from Michael Walker was £Nil (2023 - £Nil). Page 16 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **16 Fees payable to independent examiner** During the period, the fees payable (excluding VAT) to the charity’s independent examiner Community Accounting Plus are analysed as follows: |Independent examination
Other financial services|**2024**
**£**
1,005
289
1,294|**2023**
**£**
905
318| |---|---|---| |||1,223| ## **17 Taxation** The charity is a registered charity and is therefore exempt from taxation. ## **18 Trustees remuneration and expenses** During the year the charity made the following transactions with trustees: ## **Michael Walker** Michael Walker received remuneration of £6,630 (2023: £6,630) and £1,532 (2023: £4,688) of expenses were reimbursed to Michael Walker during the year. ## **Linda Perry** Linda Perry received remuneration of £7,708 (2023: £3,935) and £57 (2023: £271) of expenses were reimbursed to Linda Perry during the year. ## **Peter Ferrari** £1,339 (2023: £1,341) of expenses were reimbursed to Peter Ferrari during the year. ## **Euan Cumming** £160 (2023: £109) of expenses were reimbursed to Euan Cumming during the year. ## **Elycia Ormandy** £Nil (2023: £216) of expenses were reimbursed to Elycia Ormandy during the year. ## **Claire McAlonan** - £41 (2023: £186) of expenses were reimbursed to Claire McAlonan during the year. ## **Dr Ami Ketley** - £41 (2023: £59) of expenses were reimbursed to Dr Ami Ketley during the year. ## **Rose Walton** - £102 (2023: £Nil) of expenses were reimbursed to Rose Walton during the year. No trustees have received any other benefits from the charity during the year. Page 17 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **19 Funds** |**Unrestricted funds**
**_General_**
General Fund
**Restricted funds**
Research & Registry Fund
**Total funds**
**Unrestricted funds**
**_General_**
General Fund
**Restricted**
Research & Registry Fund
**Total funds**|**Balance at 1**
**January 2024**
**£**
567,025
120,245
687,270
**Balance at 1**
**January 2023**
**£**
529,417
16,963
546,380|**Incoming**
**resources**
**£**
336,393
2,456
338,849
**Incoming**
**resources**
**£**
155,509
103,282
258,791|**Resources**
**expended**
**£**
(128,492)
-
(128,492)
**Resources**
**expended**
**£**
(117,901)
-
(117,901)|**Balance at 31**
**December**
**2024**
**£**
774,926
122,701| |---|---|---|---|---| |||||897,627| |||||**Balance at 31**
**December**
**2023**
**£**
567,025
120,245| |||||687,270| The specific purposes for which the funds are to be applied are as follows: The restricted funds are for the research and national registry. Research donations are to be agreed at Board level. Page 18 ## **Myotonic Dystrophy Support Group** ## **Notes to the Financial Statements for the Year Ended 31 December 2024** ## **20 Analysis of net assets between funds** ## **Unrestricted** ||**Unrestricted**||| |---|---|---|---| |Current assets
Current liabilities
Total net assets
Current assets
Current liabilities
Total net assets|**General**
**£**
782,285
(7,359)
774,926
**Unrestricted**
**General**
**£**
570,302
(3,277)
567,025|**Restricted**
**£**
122,701
-
122,701
**Restricted**
**£**
120,245
-
120,245|**2024**
**Total funds**
**£**
904,986
(7,359)| ||||897,627| ||||**2023**
**Total funds**
**£**
690,547
(3,277)| ||||687,270| Page 19