OpenCharities

Fanconi Hope

Country
England & Wales
Charity number
1126894
Status
Registered
Registered
Nov. 24, 2008
Legal form
Trust
Area of benefit
Undefined, In Practice

Address

Address
New Street Centre
New Street
Chesterfield
S40 2JZ

Contact

Phone
0300 3301410
Email
[email protected]
Website
fanconihope.org
Website screenshot

Activities

Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

Objects: 1. To Support A UK Fanconi Anaemia National Registry So As To Ensure Fanconi Anaemia Affected Children And Their Families Are Kept Track Of And Provided With The Best Care.2. To Promote Awareness And Understanding Of Fanconi Anaemia Among Affected Families, The Medical Profession And The General Public.3. To Encourage Translational Research That Might Directly Benefit Fanconi Anaemia Related Children And Their Families.4. To Encourage Research In The Area Of Fanconi Anaemia That Might Have Bebefit For The General Public, E.g. In The Treatment Of Cancers In General.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
Children/young People, People With Disabilities, The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 30, 2025 £54,779 £75,014
April 30, 2024 £70,897 £96,044
April 30, 2023 £38,751 £59,480
April 30, 2022 £36,843 £47,971
April 30, 2021 £27,065 £20,206

Trustees

Name Appointed
Beth Lee June 8, 2019
Dr Nigel Jones May 20, 2018
Dr Roshni George July 16, 2022
Dr Stefan Meyer March 12, 2008
Prof Josu de la Fuente May 20, 2018
Prof Marc Tischkowitz May 20, 2018
Robert Dalgleish Bsc March 12, 2008