# FANCONI HOPE

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1126894
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Nov. 24, 2008
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1126894


## Contact

- **Address:** New Street Centre, New Street, Chesterfield
- **Postcode:** S40 2JZ
- **Phone:** 0300 330 1410
- **Email:** info@fanconihope.org
- **Website:** www.fanconihope.org



## Activities

**Objects:** 1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE.2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC.3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES.4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.

**Activities:** Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, People With Disabilities, The General Public/mankind



## Geography

- **Area of benefit:** UNDEFINED, IN PRACTICE
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Anna Magee |  | Dec. 9, 2025 |
| Beth Lee |  | June 8, 2019 |
| ROBERT DALGLEISH BSC |  | March 12, 2008 |
| Thomas Carroll |  | Dec. 9, 2025 |




