# FANCONI HOPE

## Details

- **Country:** England & Wales
- **Charity number:** 1126894
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Nov. 24, 2008
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1126894


## Contact

- **Address:** New Street Centre, New Street, Chesterfield
- **Postcode:** S40 2JZ
- **Phone:** 0300 3301410
- **Email:** info@fanconihope.org
- **Website:** www.fanconihope.org



## Activities

**Objects:** 1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE.2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC.3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES.4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.

**Activities:** Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

**Area of benefit:** UNDEFINED, IN PRACTICE




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, People With Disabilities, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 30, 2025 | £54779 | £75014 | — | — |
| April 30, 2024 | £70897 | £96044 | — | — |
| April 30, 2023 | £38751 | £59480 | — | — |
| April 30, 2022 | £36843 | £47971 | — | — |
| April 30, 2021 | £27065 | £20206 | — | — |



## Trustees

- Beth Lee — appointed June 8, 2019
- Dr Nigel Jones — appointed May 20, 2018
- Dr Roshni George — appointed July 16, 2022
- Dr Stefan Meyer — appointed March 12, 2008
- Prof Josu de la Fuente — appointed May 20, 2018
- Prof Marc Tischkowitz — appointed May 20, 2018
- ROBERT DALGLEISH BSC — appointed March 12, 2008