Alex, The Leukodystrophy Charity
Ald Life
- Country
- England & Wales
- Charity number
- 1106008
- Status
- Registered
- Registered
- Sept. 23, 2004
- Legal form
- Charitable company
- Area of benefit
- Not Defined. In Practice Worldwide
Address
- Address
- Alex
The Leukodystrophy Charity
45 Peckham High Street
LONDON
Contact
- Phone
- 02077014388
- [email protected]
- Website
alextlc.org
Activities
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Objects: 1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the benefit of the public; and3 To advance the education of the public in leukodystrophy.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- What
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups
Areas of operation
- Country
- Afghanistan, Akrotiri, Albania, Algeria, American Samoa, Andorra, Angola, Anguilla, Antarctica, Antigua And Barbuda, Argentina, Armenia, Aruba, Australia, Austria, Azerbaijan, Bahrain, Bangladesh, Barbados, Belarus, Belgium, Belize, Benin, Bermuda, Bhutan, Bolivia, Bosnia And Herzegovina, Botswana, Brazil, British Indian Ocean Territory, British Virgin Islands, Brunei, Bulgaria, Burkina Faso, Burma, Burundi, Cambodia, Cameroon, Canada, Cape Verde, Cayman Islands, Central African Republic, Chad, Chile, China, Christmas Island, Cocos (KEELING) ISLANDS, Colombia, Comoros, Congo, Congo (Democratic Republic), Cook Islands, Costa Rica, Croatia, Cuba, Cyprus, Czech Republic, Denmark, Dhekelia, Djibouti, Dominica, Dominican Republic, East Timor, Easter Island, Ecuador, Egypt, El Salvador, Equatorial Guinea, Eritrea, Estonia, Eswatini, Ethiopia, Falkland Islands, Faroe Islands, Fiji, Finland, France, French Guiana, French Polynesia, Gabon, Georgia, Germany, Ghana, Gibraltar, Greece, Greenland, Grenada, Guadeloupe, Guam, Guatemala, Guernsey, Guinea, Guinea-bissau, Guyana, Haiti, Honduras, Hong Kong, Hungary, Iceland, India, Indonesia, Iran, Iraq, Ireland, Isle Of Man, Israel, Italy, Ivory Coast, Jamaica, Japan, Jersey, Jordan, Kazakhstan, Kenya, Kiribati, Kosovo, Kuwait, Kyrgyzstan, Laos, Latvia, Lebanon, Lesotho, Liberia, Libya, Liechtenstein, Lithuania, Luxembourg, Macau, Macedonia, Madagascar, Malawi, Malaysia, Maldives, Mali, Malta, Marshall Islands, Martinique, Mauritania, Mauritius, Mayotte, Mexico, Micronesia, Moldova, Monaco, Mongolia, Montenegro, Montserrat, Morocco, Mozambique, Namibia, Nauru, Nepal, Netherlands, New Caledonia, New Zealand, Nicaragua, Niger, Nigeria, Niue, Norfolk Island, North Korea, Northern Ireland, Northern Mariana Islands, Norway, Occupied Palestinian Territories, Oman, Pakistan, Palau, Panama, Papua New Guinea, Paraguay, Peru, Philippines, Pitcairn, Henderson, Ducie And Oeno Islands, Poland, Portugal, Puerto Rico, Qatar, Romania, Russia, Rwanda, Réunion, Saint Barthélemy, Saint Helena, Saint Pierre And Miquelon, Saint Vincent, Samoa, San Marino, Saudi Arabia, Scotland, Senegal, Serbia, Seychelles, Sierra Leone, Singapore, Sint Maarten, Slovakia, Slovenia, Solomon Islands, Somalia, South Africa, South Georgia And South Sandwich Islands, South Korea, South Sudan, Spain, Sri Lanka, St Kitts And Nevis, St Lucia, Sudan, Suriname, Svalbard And Jan Mayen, Sweden, Switzerland, Syria, São Tomé And Principe, Taiwan, Tajikistan, Tanzania, Thailand, The Bahamas, The Gambia, Togo, Tokelau, Tonga, Trinidad And Tobago, Tunisia, Turkey, Turkmenistan, Turks And Caicos Islands, Tuvalu, Uganda, Ukraine, United Arab Emirates, United States, United States Virgin Islands, Uruguay, Uzbekistan, Vanuatu, Venezuela, Vietnam, Wallis And Futuna, Yemen, Zambia, Zimbabwe
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2025 | £1,077,604 | £1,026,242 | £337,879 | 27 |
| June 30, 2024 | £965,218 | £972,157 | £286,517 | 27 |
| June 30, 2023 | £949,226 | £981,812 | £293,456 | 26 |
| June 30, 2022 | £892,298 | £871,856 | £326,042 | 25 |
| June 30, 2021 | £731,979 | £707,107 | £305,600 | 24 |
Trustees
| Name | Appointed |
|---|---|
| Siriana Baldini (Chair) | Sept. 6, 2024 |
| Dr Rahul Raman Singh | Sept. 1, 2025 |
| Emma Jane Hadfield-Hudson | Feb. 11, 2023 |
| Gil Sarig | Jan. 4, 2024 |
| Iraj Idafar | Feb. 6, 2022 |
| Linda Christine Milne | Jan. 16, 2015 |
| Nick James Leopold Shiroi | April 16, 2024 |
| Thomas Dalton | May 12, 2024 |
| Tulsi Sandys-Winsch | Oct. 11, 2023 |