OpenCharities

Alex, The Leukodystrophy Charity

Ald Life

Country
England & Wales
Charity number
1106008
Status
Registered
Registered
Sept. 23, 2004
Legal form
Charitable company
Area of benefit
Not Defined. In Practice Worldwide

Address

Address
Alex
The Leukodystrophy Charity
45 Peckham High Street
LONDON

Contact

Activities

A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.

Objects: 1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the benefit of the public; and3 To advance the education of the public in leukodystrophy.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups

Areas of operation

Country
Afghanistan, Akrotiri, Albania, Algeria, American Samoa, Andorra, Angola, Anguilla, Antarctica, Antigua And Barbuda, Argentina, Armenia, Aruba, Australia, Austria, Azerbaijan, Bahrain, Bangladesh, Barbados, Belarus, Belgium, Belize, Benin, Bermuda, Bhutan, Bolivia, Bosnia And Herzegovina, Botswana, Brazil, British Indian Ocean Territory, British Virgin Islands, Brunei, Bulgaria, Burkina Faso, Burma, Burundi, Cambodia, Cameroon, Canada, Cape Verde, Cayman Islands, Central African Republic, Chad, Chile, China, Christmas Island, Cocos (KEELING) ISLANDS, Colombia, Comoros, Congo, Congo (Democratic Republic), Cook Islands, Costa Rica, Croatia, Cuba, Cyprus, Czech Republic, Denmark, Dhekelia, Djibouti, Dominica, Dominican Republic, East Timor, Easter Island, Ecuador, Egypt, El Salvador, Equatorial Guinea, Eritrea, Estonia, Eswatini, Ethiopia, Falkland Islands, Faroe Islands, Fiji, Finland, France, French Guiana, French Polynesia, Gabon, Georgia, Germany, Ghana, Gibraltar, Greece, Greenland, Grenada, Guadeloupe, Guam, Guatemala, Guernsey, Guinea, Guinea-bissau, Guyana, Haiti, Honduras, Hong Kong, Hungary, Iceland, India, Indonesia, Iran, Iraq, Ireland, Isle Of Man, Israel, Italy, Ivory Coast, Jamaica, Japan, Jersey, Jordan, Kazakhstan, Kenya, Kiribati, Kosovo, Kuwait, Kyrgyzstan, Laos, Latvia, Lebanon, Lesotho, Liberia, Libya, Liechtenstein, Lithuania, Luxembourg, Macau, Macedonia, Madagascar, Malawi, Malaysia, Maldives, Mali, Malta, Marshall Islands, Martinique, Mauritania, Mauritius, Mayotte, Mexico, Micronesia, Moldova, Monaco, Mongolia, Montenegro, Montserrat, Morocco, Mozambique, Namibia, Nauru, Nepal, Netherlands, New Caledonia, New Zealand, Nicaragua, Niger, Nigeria, Niue, Norfolk Island, North Korea, Northern Ireland, Northern Mariana Islands, Norway, Occupied Palestinian Territories, Oman, Pakistan, Palau, Panama, Papua New Guinea, Paraguay, Peru, Philippines, Pitcairn, Henderson, Ducie And Oeno Islands, Poland, Portugal, Puerto Rico, Qatar, Romania, Russia, Rwanda, Réunion, Saint Barthélemy, Saint Helena, Saint Pierre And Miquelon, Saint Vincent, Samoa, San Marino, Saudi Arabia, Scotland, Senegal, Serbia, Seychelles, Sierra Leone, Singapore, Sint Maarten, Slovakia, Slovenia, Solomon Islands, Somalia, South Africa, South Georgia And South Sandwich Islands, South Korea, South Sudan, Spain, Sri Lanka, St Kitts And Nevis, St Lucia, Sudan, Suriname, Svalbard And Jan Mayen, Sweden, Switzerland, Syria, São Tomé And Principe, Taiwan, Tajikistan, Tanzania, Thailand, The Bahamas, The Gambia, Togo, Tokelau, Tonga, Trinidad And Tobago, Tunisia, Turkey, Turkmenistan, Turks And Caicos Islands, Tuvalu, Uganda, Ukraine, United Arab Emirates, United States, United States Virgin Islands, Uruguay, Uzbekistan, Vanuatu, Venezuela, Vietnam, Wallis And Futuna, Yemen, Zambia, Zimbabwe
Region
Throughout England And Wales

Finances

Period end Income Expenditure Assets Employees
June 30, 2025 £1,077,604 £1,026,242 £337,879 27
June 30, 2024 £965,218 £972,157 £286,517 27
June 30, 2023 £949,226 £981,812 £293,456 26
June 30, 2022 £892,298 £871,856 £326,042 25
June 30, 2021 £731,979 £707,107 £305,600 24

Trustees

Name Appointed
Siriana Baldini (Chair) Sept. 6, 2024
Dr Rahul Raman Singh Sept. 1, 2025
Emma Jane Hadfield-Hudson Feb. 11, 2023
Gil Sarig Jan. 4, 2024
Iraj Idafar Feb. 6, 2022
Linda Christine Milne Jan. 16, 2015
Nick James Leopold Shiroi April 16, 2024
Thomas Dalton May 12, 2024
Tulsi Sandys-Winsch Oct. 11, 2023