OpenCharities

The British Porphyria Association

Country
England & Wales
Charity number
1089609
Status
Registered
Registered
Nov. 30, 2001
Legal form
Other
Area of benefit
Not Defined

Address

Address
4 Festival Villas
Woodland
BISHOP AUCKLAND
County Durham
DL13 5RG

Activities

Support for people with porphryia and their relatives. Improve understanding of porphryia. Support research into porphryia.

Objects: The Relief Of Sickness And The Protection And Preservation Of The Health Of Persons Affected By Porphyria And Any Related Condition And Their Families And Carers In Particular By But Not Restricted To:(a)the Advancement Of The Education Of The Medical Profession And The General Public Into Porphyria And Its Implications For The Family;(b)the Promotion Of Research Into The Causes, Effects, Treatment And Management Of Porphyria And To Disseminate The Useful Results Thereof.

Classification

How
Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £86,063 £52,609
March 31, 2024 £38,654 £44,162
March 31, 2023 £43,549 £48,132
March 31, 2022 £23,062 £23,111
March 31, 2021 £25,650 £22,597

Trustees

Name Appointed
Dr Victoria Anne McGuire (Chair) Sept. 30, 2024
Alan Molyneux
Anne Newton Nov. 30, 2001
Claire Jarvis March 19, 2024
John Walter Chamberlayne Ma Sept. 30, 2024
Karen Elizabeth Harris Nov. 30, 2001
Natassja Chadwick Sept. 19, 2020
Richard Bennett April 19, 2018
Victoria Harrold Oct. 3, 2023