# THE BRITISH PORPHYRIA ASSOCIATION

## Details

- **Country:** England & Wales
- **Charity number:** 1089609
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Nov. 30, 2001
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1089609


## Contact

- **Address:** 4 Festival Villas, Woodland, BISHOP AUCKLAND, County Durham
- **Postcode:** DL13 5RG
- **Phone:** 0300 30 200 30
- **Email:** helpline@porphyria.org.uk
- **Website:** www.porphyria.org.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO:(A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY;(B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** Support for people with porphryia and their relatives. Improve understanding of porphryia.  Support research into porphryia.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £86063 | £52609 | — | — |
| March 31, 2024 | £38654 | £44162 | — | — |
| March 31, 2023 | £43549 | £48132 | — | — |
| March 31, 2022 | £23062 | £23111 | — | — |
| March 31, 2021 | £25650 | £22597 | — | — |



## Trustees

- **Dr Victoria Anne McGuire** (Chair) — appointed Sept. 30, 2024
- ALAN MOLYNEUX
- ANNE NEWTON — appointed Nov. 30, 2001
- Claire Jarvis — appointed March 19, 2024
- JOHN WALTER CHAMBERLAYNE MA — appointed Sept. 30, 2024
- KAREN ELIZABETH HARRIS — appointed Nov. 30, 2001
- Natassja Chadwick — appointed Sept. 19, 2020
- Richard Bennett — appointed April 19, 2018
- Victoria Harrold — appointed Oct. 3, 2023