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2021-03-31-accounts

		Page
Trustees' Annual Report
Independent Examiner's Report	to the Trustees
Statement of Financial Activities
Statement of Financial Position
Notes to the Financial Statements
The Following Pages Do Not	Form Part ofthe Financial Statements
Detailed Statement of Financial	Activities

						2021		2020
					Unrestricted	Restricted
					funds	funds	Total funds	Total funds
				Note
Income and endowments
Donations				4	19,898	3,445	23,343	55,889
Other trading activities				5	2,287		2,287
Investment	income			6	11	9	20	80
Total income					22,196	3,454	25,650	55,969
Expenditure
Expenditure	on raising funds:
Costs	ofother	trading	activities	7	1,868		1,868
Expenditure	on charitable		activities	8,9	20,064	665	20,729	54,891
Total expenditure					21,932	665	22,597	54,891
Net income						2,789	3,053	1,078
Transfers between		funds			(40)	40
Net movement in		funds			224	2,829	3,053	1,078
Reconciliation of		funds
Total funds	brought	forward			24,310	16,650	40,960	39,882
Total funds	carried forward				24,534	19,479	44,013	40,960

					2021	2020
				Note
Current Assets
Debtors				14	26	385
Cash at bank and	in hand				44,227	40,615
					44,253	41,200
Creditors: amounts		falling	due within one year	15	240	240
Net Current Assets					44,013	40,960
Total Assets Less Current			Liabilities		44,013	40,960
Net Assets					44,013	40,960
Funds ofthe Charity
Restricted funds					19,479	16,650
Unrestricted funds					24,534	24,310
Total charity funds				16	44,013	40,960

				Unrestricted	Restricted	Total Funds
				Funds	Funds	2021
					f
Donations
Donations		and subscriptions		13,382		13,382
Gift aid				1,246		1,246
Refund	of	grant			3,445	3,445
Other income				270		270
Grants
Alnylam	grant for festival
Alnylam	travel grant
Clinuvel	Pharmaceuticals		grant	1,000		1,000
Alnylam	grant			2,000		2,000
Recordati		Rare Diseases	grant	2,000		2,000
				19,898	3,445	23,343
				Unrestricted	Restricted	Total Funds
				Funds	Funds	2020
				f
Donations
Donations		and subscriptions		19,638		19,638
Gift aid				385		385

Donatio	ns (continued)
			Unrestricted	Restricted	Total Funds
			Funds	Funds	2020
Grants
Alnylam	grant for festival			31,226	31,226
Alnylam	travel grant			1,640	1,640
Clinuvel	Pharmaceuticals	grant	3,000		3,000
			23,023	32,866	M,88g

			Unrestricted	Total Funds	Unrestricted	Total Funds
			Funds	2021	Funds	2020
	Merchandise	sales	2,287	2,287
6.	Investment	Income
				Unrestricted	Restricted	Total Funds
				Funds	Funds	2021
	Bank interest	receivable		11	9	20
				Unrestricted	Restricted	Total Funds
				Funds	Funds	2020
					f
	Bank interest	receivable		38	42	80
7.	Costs ofOther Trading Activities
			Unrestricted	Total Funds	Unrestricted	Total Funds
			Funds	2021	Funds	2020
				R	f	E
	Merchandise	costs	1,868	1,868

8.	Expenditure	on Charitable	on Charitable	on Charitable	Activities	Activities	by Fund Type
								Unrestricted	Restricted	Total Funds
								Funds	Funds	2021
	Costs ofcharitable		activities					20,064	665	20,729
								Unrestricted	Restricted	Total Funds
								Funds	Funds	2020
								E
	Costs ofcharitable		activities					23,013	31,878	54,891
9.	Expenditure	on Charitable			Activities		by Activity Type
							Activities
							undertaken	Grant funding	Total funds	Total fund
							directly	ofactivities	2021	2020
									E	E
	Costs ofcharitable		activities				20,102	627	20,729	54,891
10.	Analysis of	Grants
									2021	2020
									R	F
	Grants to Individuals
	Travel bursaries									975
	Other grants								627
									627	975
	Total grants								627	975
11.	Independent	Examination			Fees
									2021	2020
										F
	Fees payable	to the independent				examiner for:
	independent	examination		of	the financial statements				240	240
12.	Staff Costs

14.	During the year no e Debtors	xpenses were reimbursed to trustees (202	0 - 3trustees reimbursed	f3,044).
			2021	2020
			R	E
	Gift aid receivable		26	385
15.	Creditors: amounts	falling due within one year
			2021	2020
	Accruals		240	240

			At				At 31 March	At 31 March
		1	April 2020	Income	Expenditure	Transfers		2021
					E
General	funds		24,310	22,196	(21,932)	(40)		24,534
			At				At	31 March
		1	April 2019	Income	Expenditure	Transfers f		2020 F
General	funds		24,262	23,061	(23,013)			24,310

			At				At 31 March	At 31 March
			1 April 2020	Income	Expenditure	Transfers		2021
				F
Helen Gibbs Fund			13,743	3,452				17,195
Light Protection		Fund	1,645	2	(627)			1,020
Festival	2019fund		1,262		(38)	40		1,264
Alnylam	travel	grant
			16,650	3,454	(665)	40		19,479
			At				At	31 March
			1 April 2019	Income	Expenditure	Transfers		2020
					E	E
Helen Gibbs Fund			13,718	25				13,743
Light Protection		Fund	1,702	3	(60)			1,645
Festival	2019fund		200	31,240	(30,178)			1,262
Alnylam	travel	grant		1,640	(1,640)
			15,620	32,908	(31,878)			16,650

Analysis ofNet A	ssets Between Funds
		Unrestricted	Restricted	Total Funds
		Funds	Funds	2021
			P
Current assets		24,774	19,479	44,253
Creditors less than	1 year	(240)		(240)
Net assets		24,534	19,479	44,013
		Unrestricted	Restricted	Total Funds
		Funds	Funds	2020
		f
Current assets		24,550	16,650	41,200
Creditors less than	1 year	(240)		(240)
Net assets		24,310	16,650	40,960

		2021	2020f
Income and endowments
Donations
Donations and subscriptions		13,382	19,638
Gift aid		1,246	385
Refund ofgrant		3,445
Other income		270
Alnyiam grant for festival			31,226
Alnylam travel grant			1,640
Clinuvel Pharmaceuticals	grant	1,000	3,000
Alnylam grant		2,000
Recordati Rare Diseases	grant	2,000
		23,343	55,889
Other trading activities
Merchandise sales		2,287
Investment income
Bank interest receivable		20	80
Total income		25,650	55,969

			2021	2020
Costs ofother	trading activities
Merchandise costs			1,868
Expenditure on charitable		activities
Activities undertaken directly
BPA events			35	1,706
Festival costs			38	21,856
Trustees' travel	expenses - Festival			746
Committee travel costs - Festival				1,190
Insurance			815	720
International conference fees				1,082
Trustees' ordinary travel expenses				2,298
Ordinary travel	expenses		455	4,876
Accountancy fees			240	240
Storage fees			515	515
Printing, postage, stationery		and telephone	1,761	1,288
Newsletter			453	568
Advertising and promotional		goods	558	45
Subscriptions			416	454
ITand software			850	233
Fundraising			340	1,117
Sundry costs			17	373
Administration	fees		13,609	9,152
Administration	fees - Festival			5,457
			20,102	53,916
Grant funding	activities
Grants given			627	975
Expenditure on charitable		activities	20,729	54,891
Net income			3,053	1,078