## 



## 

## 

## 

|||Page|
|---|---|---|
|Trustees'<br>Annual<br>Report|||
|Independent<br>Examiner's<br>Report|to the Trustees||
|Statement<br>of Financial<br>Activities|||
|Statement<br>of Financial<br>Position|||
|Notes to the Financial Statements|||
|The Following Pages Do Not|Form Part ofthe Financial Statements||
|Detailed Statement of Financial|Activities||





## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 



## 

## 

## 

|||||||2021||2020|
|---|---|---|---|---|---|---|---|---|
||||||Unrestricted|Restricted|||
||||||funds|funds|Total funds|Total funds|
|||||Note|||||
|Income and endowments|||||||||
|Donations||||4|19,898|3,445|23,343|55,889|
|Other trading<br>activities||||5|2,287||2,287||
|Investment|income|||6|11|9|20|80|
|Total income|||||22,196|3,454|25,650|55,969|
|Expenditure|||||||||
|Expenditure|on raising funds:||||||||
|Costs|ofother|trading|activities|7|1,868||1,868||
|Expenditure|on charitable||activities|8,9|20,064|665|20,729|54,891|
|Total expenditure|||||21,932|665|22,597|54,891|
|Net income||||||2,789|3,053|1,078|
|Transfers<br>between||funds|||(40)|40|||
|Net movement<br>in||funds|||224|2,829|3,053|1,078|
|Reconciliation<br>of||funds|||||||
|Total funds|brought|forward|||24,310|16,650|40,960|39,882|
|Total funds|carried forward||||24,534|19,479|44,013|40,960|





## 

## 

## 

||||||2021|2020|
|---|---|---|---|---|---|---|
|||||Note|||
|Current Assets|||||||
|Debtors||||14|26|385|
|Cash at bank and|in hand||||44,227|40,615|
||||||44,253|41,200|
|Creditors: amounts||falling|due within one year|15|240|240|
|Net Current Assets|||||44,013|40,960|
|Total Assets Less Current|||Liabilities||44,013|40,960|
|Net Assets|||||44,013|40,960|
|Funds ofthe Charity|||||||
|Restricted funds|||||19,479|16,650|
|Unrestricted<br>funds|||||24,534|24,310|
|Total charity funds||||16|44,013|40,960|





## 

## 

## 

## 

## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 

|||||Unrestricted|Restricted|Total Funds|
|---|---|---|---|---|---|---|
|||||Funds|Funds|2021|
||||||f||
|Donations|||||||
|Donations||and subscriptions||13,382||13,382|
|Gift aid||||1,246||1,246|
|Refund|of|grant|||3,445|3,445|
|Other income||||270||270|
|Grants|||||||
|Alnylam|grant for festival||||||
|Alnylam|travel grant||||||
|Clinuvel|Pharmaceuticals||grant|1,000||1,000|
|Alnylam|grant|||2,000||2,000|
|Recordati||Rare Diseases|grant|2,000||2,000|
|||||19,898|3,445|23,343|
|||||Unrestricted|Restricted|Total Funds|
|||||Funds|Funds|2020|
|||||f|||
|Donations|||||||
|Donations||and subscriptions||19,638||19,638|
|Gift aid||||385||385|





## 

## 

|Donatio|ns<br>(continued)|||||
|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total Funds|
||||Funds|Funds|2020|
|Grants||||||
|Alnylam|grant for festival|||31,226|31,226|
|Alnylam|travel grant|||1,640|1,640|
|Clinuvel|Pharmaceuticals|grant|3,000||3,000|
||||23,023|32,866|M,88g|



||||Unrestricted|Total Funds|Unrestricted|Total Funds|
|---|---|---|---|---|---|---|
||||Funds|2021|Funds|2020|
||Merchandise|sales|2,287|2,287|||
|6.|Investment|Income|||||
|||||Unrestricted|Restricted|Total Funds|
|||||Funds|Funds|2021|
||Bank interest|receivable||11|9|20|
|||||Unrestricted|Restricted|Total Funds|
|||||Funds|Funds|2020|
||||||f||
||Bank interest|receivable||38|42|80|
|7.|Costs ofOther Trading Activities||||||
||||Unrestricted|Total Funds|Unrestricted|Total Funds|
||||Funds|2021|Funds|2020|
|||||R|f|E|
||Merchandise|costs|1,868|1,868|||





## 

|8.|Expenditure|on Charitable|on Charitable|on Charitable|Activities|Activities|by Fund Type||||
|---|---|---|---|---|---|---|---|---|---|---|
|||||||||Unrestricted|Restricted|Total Funds|
|||||||||Funds|Funds|2021|
||Costs ofcharitable||activities|||||20,064|665|20,729|
|||||||||Unrestricted|Restricted|Total Funds|
|||||||||Funds|Funds|2020|
|||||||||E|||
||Costs ofcharitable||activities|||||23,013|31,878|54,891|
|9.|Expenditure|on Charitable|||Activities||by Activity Type||||
||||||||Activities||||
||||||||undertaken|Grant funding|Total funds|Total fund|
||||||||directly|ofactivities|2021|2020|
||||||||||E|E|
||Costs ofcharitable||activities||||20,102|627|20,729|54,891|
|10.|Analysis of|Grants|||||||||
||||||||||2021|2020|
||||||||||R|F|
||Grants to Individuals||||||||||
||Travel bursaries|||||||||975|
||Other grants||||||||627||
||||||||||627|975|
||Total grants||||||||627|975|
|11.|Independent|Examination|||Fees||||||
||||||||||2021|2020|
|||||||||||F|
||Fees payable|to the independent||||examiner for:|||||
||independent|examination||of|the financial statements||||240|240|
|12.|Staff Costs||||||||||





## 

## 

## 

## 

|14.|During the year no e<br> Debtors|xpenses were reimbursed<br>to trustees (202|0 - 3trustees<br>reimbursed|f3,044).|
|---|---|---|---|---|
||||2021|2020|
||||R|E|
||Gift aid receivable||26|385|
|15.|Creditors: amounts|falling due within one year|||
||||2021|2020|
||Accruals||240|240|



## 

## 

||||At||||At 31 March|At 31 March|
|---|---|---|---|---|---|---|---|---|
|||1|April 2020|Income|Expenditure|Transfers||2021|
||||||E||||
|General|funds||24,310|22,196|(21,932)|(40)||24,534|
||||At||||At|31 March|
|||1|April 2019|Income|Expenditure|Transfers<br>f||2020<br>F|
|General|funds||24,262|23,061|(23,013)|||24,310|





## 

## 

## 

||||At||||At 31 March|At 31 March|
|---|---|---|---|---|---|---|---|---|
||||1 April 2020|Income|Expenditure|Transfers||2021|
|||||F|||||
|Helen Gibbs Fund|||13,743|3,452||||17,195|
|Light Protection||Fund|1,645|2|(627)|||1,020|
|Festival|2019fund||1,262||(38)|40||1,264|
|Alnylam|travel|grant|||||||
||||16,650|3,454|(665)|40||19,479|
||||At||||At|31 March|
||||1 April 2019|Income|Expenditure|Transfers||2020|
||||||E|E|||
|Helen Gibbs Fund|||13,718|25||||13,743|
|Light Protection||Fund|1,702|3|(60)|||1,645|
|Festival|2019fund||200|31,240|(30,178)|||1,262|
|Alnylam|travel|grant||1,640|(1,640)||||
||||15,620|32,908|(31,878)|||16,650|



## 

|Analysis ofNet A|ssets Between Funds||||
|---|---|---|---|---|
|||Unrestricted|Restricted|Total Funds|
|||Funds|Funds|2021|
||||P||
|Current assets||24,774|19,479|44,253|
|Creditors less than|1 year|(240)||(240)|
|Net assets||24,534|19,479|44,013|
|||Unrestricted|Restricted|Total Funds|
|||Funds|Funds|2020|
|||f|||
|Current assets||24,550|16,650|41,200|
|Creditors less than|1 year|(240)||(240)|
|Net assets||24,310|16,650|40,960|





## 

## 

## 

|||2021|2020f|
|---|---|---|---|
|Income and endowments||||
|Donations||||
|Donations<br>and subscriptions||13,382|19,638|
|Gift aid||1,246|385|
|Refund ofgrant||3,445||
|Other income||270||
|Alnyiam<br>grant for festival|||31,226|
|Alnylam<br>travel grant|||1,640|
|Clinuvel<br>Pharmaceuticals|grant|1,000|3,000|
|Alnylam<br>grant||2,000||
|Recordati Rare Diseases|grant|2,000||
|||23,343|55,889|
|Other trading activities||||
|Merchandise<br>sales||2,287||
|Investment<br>income||||
|Bank interest receivable||20|80|
|Total income||25,650|55,969|





## 

## 

||||2021|2020|
|---|---|---|---|---|
|Costs ofother|trading activities||||
|Merchandise<br>costs|||1,868||
|Expenditure<br>on charitable||activities|||
|Activities undertaken<br>directly|||||
|BPA events|||35|1,706|
|Festival costs|||38|21,856|
|Trustees'<br>travel|expenses - Festival|||746|
|Committee<br>travel costs - Festival||||1,190|
|Insurance|||815|720|
|International<br>conference fees||||1,082|
|Trustees'<br>ordinary<br>travel expenses||||2,298|
|Ordinary<br>travel|expenses||455|4,876|
|Accountancy fees|||240|240|
|Storage fees|||515|515|
|Printing,<br>postage, stationery||and telephone|1,761|1,288|
|Newsletter|||453|568|
|Advertising<br>and promotional||goods|558|45|
|Subscriptions|||416|454|
|ITand software|||850|233|
|Fundraising|||340|1,117|
|Sundry costs|||17|373|
|Administration|fees||13,609|9,152|
|Administration|fees - Festival|||5,457|
||||20,102|53,916|
|Grant funding|activities||||
|Grants given|||627|975|
|Expenditure<br>on charitable||activities|20,729|54,891|
|Net income|||3,053|1,078|