Ectodermal Dysplasia Society
Eds
- Country
- England & Wales
- Charity number
- 1089135
- Status
- Registered
- Registered
- Oct. 31, 2001
- Legal form
- Other
- Area of benefit
- Not Defined. In Practice Worldwide
Address
- Address
- UNIT 1 MAIDA VALE BUSINESS CENTRE
LECKHAMPTON
CHELTENHAM
GLOS
GL53 7ER
Contact
- Phone
- 01242261332
- [email protected]
- Website
edsociety.co.uk
Activities
The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.
Objects: The Relief Of Sickness And The Protection And Preservation Of The Health Of Persons Affected By Ectodermal Dysplasia And Any Related Condition And Their Families And Carers In Particular By But Not Restricted Toa) The Advancement Of The Education Of The Medical Profession And The General Public Into Ectodermal Dysplasia And Its Implications For The Family.b) The Promotion Of Research Into The Causes, Effects, Treatment And Management Of Ectodermal Dysplasia And To Disseminate The Useful Results Thereof.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Dec. 31, 2024 | £77,208 | £72,613 |
| Dec. 31, 2023 | £62,771 | £71,229 |
| Dec. 31, 2022 | £71,573 | £50,984 |
| Dec. 31, 2021 | £34,163 | £43,857 |
| Dec. 31, 2020 | £42,813 | £48,201 |
Trustees
| Name | Appointed |
|---|---|
| Paul Collacott (Chair) | |
| Alan Waller | April 24, 2013 |
| Alison Smith | Jan. 10, 2026 |
| Andy Ponting | May 6, 2017 |
| Diana Perry | |
| Elaine Aylward | March 22, 2025 |
| Helen Wickins | July 12, 2025 |
| Larissa Donna Pelham | April 25, 2020 |
| Nick Briggs | April 25, 2020 |
| Sharon Cooper | Nov. 26, 2012 |
| Sarah James | Jan. 10, 2026 |
| Scott Gallacher | May 16, 2015 |
| Stuart Atkiss | May 7, 2016 |