OpenCharities

Ectodermal Dysplasia Society

Eds

Country
England & Wales
Charity number
1089135
Status
Registered
Reporting
Up to date Last filed May 13, 2026. Filing history
Registered
Oct. 31, 2001
Legal form
Other

Address

Address
Unit 1 Maida Vale Business Centre
Leckhampton
Cheltenham
Glos
GL53 7ER

Activities

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

Objects: The Relief Of Sickness And The Protection And Preservation Of The Health Of Persons Affected By Ectodermal Dysplasia And Any Related Condition And Their Families And Carers In Particular By But Not Restricted Toa) The Advancement Of The Education Of The Medical Profession And The General Public Into Ectodermal Dysplasia And Its Implications For The Family.b) The Promotion Of Research Into The Causes, Effects, Treatment And Management Of Ectodermal Dysplasia And To Disseminate The Useful Results Thereof.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind

Geography

Area of benefit
Not Defined. In Practice Worldwide
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2025 May 13, 2026On time £107,407 £115,098
Dec. 31, 2024 April 2, 2025On time £77,208 £72,613
Dec. 31, 2023 April 11, 2024On time £62,771 £71,229
Dec. 31, 2022 May 16, 2023On time £71,573 £50,984
Dec. 31, 2021 Sept. 11, 2022On time £34,163 £43,857
Dec. 31, 2020 May 29, 2021 £42,813 £48,201

Trustees

Name Appointed
Paul Collacott (Chair)
Alan Waller April 24, 2013
Alison Smith Jan. 10, 2026
Andy Ponting May 6, 2017
Diana Perry
Elaine Aylward March 22, 2025
Helen Wickins July 12, 2025
Larissa Donna Pelham April 25, 2020
Nick Briggs April 25, 2020
Sharon Cooper Nov. 26, 2012
Sarah James Jan. 10, 2026
Scott Gallacher May 16, 2015
Stuart Atkiss May 7, 2016