# ECTODERMAL DYSPLASIA SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1089135
- **Other names:** EDS
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Oct. 31, 2001
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1089135


## Contact

- **Address:** UNIT 1 MAIDA VALE BUSINESS CENTRE, LECKHAMPTON, CHELTENHAM, GLOS
- **Postcode:** GL53 7ER
- **Phone:** 01242261332
- **Email:** diana@edsociety.co.uk
- **Website:** www.edsociety.co.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

**Area of benefit:** NOT DEFINED. IN PRACTICE WORLDWIDE




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £77208 | £72613 | — | — |
| Dec. 31, 2023 | £62771 | £71229 | — | — |
| Dec. 31, 2022 | £71573 | £50984 | — | — |
| Dec. 31, 2021 | £34163 | £43857 | — | — |
| Dec. 31, 2020 | £42813 | £48201 | — | — |



## Trustees

- **PAUL COLLACOTT** (Chair)
- ALAN WALLER — appointed April 24, 2013
- Alison Smith — appointed Jan. 10, 2026
- Andy Ponting — appointed May 6, 2017
- DIANA PERRY
- Elaine Aylward — appointed March 22, 2025
- Helen Wickins — appointed July 12, 2025
- Larissa Donna Pelham — appointed April 25, 2020
- Nick Briggs — appointed April 25, 2020
- SHARON COOPER — appointed Nov. 26, 2012
- Sarah James — appointed Jan. 10, 2026
- Scott Gallacher — appointed May 16, 2015
- Stuart Atkiss — appointed May 7, 2016