{"country": "England & Wales", "charity_number": "1089135", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1089135", "name": "ECTODERMAL DYSPLASIA SOCIETY", "known_as": null, "other_names": [{"name": "EDS", "name_type": "Working name"}], "status": "Registered", "date_registered": "2001-10-31", "date_removed": null, "legal_form": "Other", "area_of_benefit": "NOT DEFINED. IN PRACTICE WORLDWIDE", "address": "UNIT 1 MAIDA VALE BUSINESS CENTRE, LECKHAMPTON, CHELTENHAM, GLOS", "postcode": "GL53 7ER", "phone": "01242261332", "email": "diana@edsociety.co.uk", "website": "www.edsociety.co.uk", "lat": 51.883563, "lng": -2.077453, "activities": "The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 102, "description": "Education/training"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 202, "description": "Elderly/old People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 77208, "latest_expenditure": 72613, "fin_period_start": "2024-01-01", "fin_period_end": "2024-12-31", "financial_years": [{"start": "2024-01-01", "end": "2024-12-31", "income": 77208, "expenditure": 72613, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-01-01", "end": "2023-12-31", "income": 62771, "expenditure": 71229, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-01-01", "end": "2022-12-31", "income": 71573, "expenditure": 50984, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-01-01", "end": "2021-12-31", "income": 34163, "expenditure": 43857, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-01-01", "end": "2020-12-31", "income": 42813, "expenditure": 48201, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "PAUL COLLACOTT", "chair": true, "appointment": null}, {"name": "ALAN WALLER", "chair": false, "appointment": "2013-04-24"}, {"name": "Alison Smith", "chair": false, "appointment": "2026-01-10"}, {"name": "Andy Ponting", "chair": false, "appointment": "2017-05-06"}, {"name": "DIANA PERRY", "chair": false, "appointment": null}, {"name": "Elaine Aylward", "chair": false, "appointment": "2025-03-22"}, {"name": "Helen Wickins", "chair": false, "appointment": "2025-07-12"}, {"name": "Larissa Donna Pelham", "chair": false, "appointment": "2020-04-25"}, {"name": "Nick Briggs", "chair": false, "appointment": "2020-04-25"}, {"name": "SHARON COOPER", "chair": false, "appointment": "2012-11-26"}, {"name": "Sarah James", "chair": false, "appointment": "2026-01-10"}, {"name": "Scott Gallacher", "chair": false, "appointment": "2015-05-16"}, {"name": "Stuart Atkiss", "chair": false, "appointment": "2016-05-07"}]}