Alstrom Syndrome UK
As UK
- Country
- England & Wales
- Charity number
- 1071196
- Status
- Registered
- Registered
- Aug. 25, 1998
- Legal form
- Charitable company
Address
- Address
- The Rectory
Barnstaple Hill
Swimbridge
BARNSTAPLE
Devon
EX32 0PH
Contact
- Phone
- 07980122404
- [email protected]
- Website
alstrom.org.uk
Activities
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Classification
- How
- Provides Human Resources, Provides Buildings/facilities/open Space, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £379,388 | £335,401 |
| March 31, 2024 | £354,666 | £340,985 |
| March 31, 2023 | £370,768 | £364,836 |
| March 31, 2022 | £300,024 | £303,193 |
| March 31, 2021 | £375,024 | £232,270 |
Trustees
| Name | Appointed |
|---|---|
| Sharon Bates (Chair) | Nov. 2, 2019 |
| Alexandra Rayson Line | April 1, 2024 |
| Alisha Sadique | Oct. 15, 2025 |
| Carol Prescott | March 9, 2022 |
| Haris Hamid | March 9, 2022 |
| JANE ELIZABETH Biglin | July 18, 2022 |
| Mathilde Victoria Yates | July 18, 2022 |
| Prof. Timothy Barrett | Nov. 2, 2019 |
| Trevor Parkin | June 21, 2023 |
| Tarekegn Hiwot | Nov. 23, 2023 |