{"country": "England & Wales", "charity_number": "1071196", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1071196", "name": "ALSTROM SYNDROME UK", "known_as": null, "other_names": [{"name": "AS UK", "name_type": "Working name"}], "status": "Registered", "date_registered": "1998-08-25", "date_removed": null, "legal_form": "Charitable company", "area_of_benefit": null, "address": "The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon", "postcode": "EX32 0PH", "phone": "07980122404", "email": "steve.scoffield@alstrom.org.uk", "website": "www.alstrom.org.uk", "lat": null, "lng": null, "activities": "Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.", "purposes": null, "what_charity_does": null, "charitable_objects": null, "classifications": [{"type": "How", "code": 304, "description": "Provides Human Resources"}, {"type": "How", "code": 305, "description": "Provides Buildings/facilities/open Space"}, {"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 101, "description": "General Charitable Purposes"}, {"type": "What", "code": 102, "description": "Education/training"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 379388, "latest_expenditure": 335401, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 379388, "expenditure": 335401, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 354666, "expenditure": 340985, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 370768, "expenditure": 364836, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-04-01", "end": "2022-03-31", "income": 300024, "expenditure": 303193, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-04-01", "end": "2021-03-31", "income": 375024, "expenditure": 232270, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Sharon Bates", "chair": true, "appointment": "2019-11-02"}, {"name": "Alexandra Rayson Line", "chair": false, "appointment": "2024-04-01"}, {"name": "Alisha Sadique", "chair": false, "appointment": "2025-10-15"}, {"name": "Carol Prescott", "chair": false, "appointment": "2022-03-09"}, {"name": "Haris Hamid", "chair": false, "appointment": "2022-03-09"}, {"name": "JANE ELIZABETH Biglin", "chair": false, "appointment": "2022-07-18"}, {"name": "Mathilde Victoria Yates", "chair": false, "appointment": "2022-07-18"}, {"name": "Prof. Timothy Barrett", "chair": false, "appointment": "2019-11-02"}, {"name": "TREVOR PARKIN", "chair": false, "appointment": "2023-06-21"}, {"name": "Tarekegn Hiwot", "chair": false, "appointment": "2023-11-23"}]}