# ALSTROM SYNDROME UK

## Details

- **Country:** England & Wales
- **Charity number:** 1071196
- **Other names:** AS UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Aug. 25, 1998
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1071196


## Contact

- **Address:** The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon
- **Postcode:** EX32 0PH
- **Phone:** 07980122404
- **Email:** steve.scoffield@alstrom.org.uk
- **Website:** www.alstrom.org.uk



## Activities

**Objects:** 1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.

**Activities:** Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Human Resources, Provides Buildings/facilities/open Space, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £379388 | £335401 | — | — |
| March 31, 2024 | £354666 | £340985 | — | — |
| March 31, 2023 | £370768 | £364836 | — | — |
| March 31, 2022 | £300024 | £303193 | — | — |
| March 31, 2021 | £375024 | £232270 | — | — |



## Trustees

- **Sharon Bates** (Chair) — appointed Nov. 2, 2019
- Alexandra Rayson Line — appointed April 1, 2024
- Alisha Sadique — appointed Oct. 15, 2025
- Carol Prescott — appointed March 9, 2022
- Haris Hamid — appointed March 9, 2022
- JANE ELIZABETH Biglin — appointed July 18, 2022
- Mathilde Victoria Yates — appointed July 18, 2022
- Prof. Timothy Barrett — appointed Nov. 2, 2019
- TREVOR PARKIN — appointed June 21, 2023
- Tarekegn Hiwot — appointed Nov. 23, 2023