OpenCharities

The Dystonia Society

Country
England & Wales
Charity number
1062595
Status
Registered
Reporting
Up to date Last filed Dec. 22, 2025. Filing history
Registered
June 2, 1997
Legal form
Charitable company
Company number
03309777

Address

Address
3rd. FLOOR
89 Albert Embankment
London
SE1 7TP

Activities

Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research

Objects: (1) To Promote The Welfare Of Those Persons Suffering From The Movement Disorder Known As Dystonia Or From Similar Or Related Conditions, And (2) To Advance The Education Of The Public About All Aspects Of The Said Conditions.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Geography

Area of benefit
National
Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure Assets Employees
March 31, 2025 Dec. 22, 2025On time £422,337 £402,567 - -
March 31, 2024 Dec. 28, 2024On time £692,353 £321,276 £702,295 5
March 31, 2023 Dec. 12, 2023On time £277,412 £285,775 - -
March 31, 2022 Dec. 31, 2022On time £293,052 £262,278 - -
March 31, 2021 Dec. 23, 2021On time £421,975 £310,100 - -

Trustees

Name Appointed
Christopher Paul Southon June 23, 2026
Dr Amit Batla Nov. 28, 2023
Emily Birden Sept. 4, 2023
Fermanda Perez Sept. 7, 2023
Ntonella Macerolla Nov. 28, 2023
Penny Ritchie-Calder May 9, 2019
Qamar Khan MBE Jan. 15, 2024
Sophie Eleanor Norman Sept. 7, 2023
Timothy John Gannicliffe Sept. 12, 2019