# THE DYSTONIA SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1062595
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** June 2, 1997
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1062595


## Contact

- **Address:** 3rd.  FLOOR, 89 ALBERT EMBANKMENT, LONDON
- **Postcode:** SE1 7TP
- **Phone:** 02077933656
- **Email:** info@dystonia.org.uk
- **Website:** www.dystonia.org.uk



## Activities

**Objects:** (1) TO PROMOTE THE WELFARE OF THOSE PERSONS SUFFERING FROM THE MOVEMENT DISORDER KNOWN AS DYSTONIA OR FROM SIMILAR OR RELATED CONDITIONS, AND (2) TO ADVANCE THE EDUCATION OF THE PUBLIC ABOUT ALL ASPECTS OF THE SAID CONDITIONS.

**Activities:** Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research

**Area of benefit:** NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £422337 | £402567 | — | — |
| March 31, 2024 | £692353 | £321276 | £702295 | 5 |
| March 31, 2023 | £277412 | £285775 | — | — |
| March 31, 2022 | £293052 | £262278 | — | — |
| March 31, 2021 | £421975 | £310100 | — | — |



## Trustees

- Dr Amit Batla — appointed Nov. 28, 2023
- Emily Birden — appointed Sept. 4, 2023
- Fermanda Perez — appointed Sept. 7, 2023
- Ntonella Macerolla — appointed Nov. 28, 2023
- Penny Ritchie-Calder — appointed May 9, 2019
- Qamar Khan MBE — appointed Jan. 15, 2024
- Robert Harold William Semple — appointed March 1, 2021
- Sophie Eleanor Norman — appointed Sept. 7, 2023
- Timothy John Gannicliffe — appointed Sept. 12, 2019