OpenCharities

The Tom Towler Ebv-Hlh Charity

Country
England & Wales
Charity number
1218180
Status
Registered
Registered
May 21, 2026
Legal form
CIO

Address

Address
29 Cromer Road
Holt
NR25 6EU

Activities

Objects: The Objects Of The CIO Are, For The Public Benefit, The Relief Of Sickness And The Preservation Of Health Among Patients Affected By The Epstein?barr Virus-Associated Hemophagocytic Lymphohistiocytosis ("Ebv-Hlh"), Their Families And Carers, In Particular But Not Exclusively By:a. The Promotion And Furtherance Of Scientific Research Into The Physiology And Pathology Of Ebv-Hlh And The Aetiology Of Ebv-Hlh Disease, The Useful Results Of Which Will Be Disseminated For The Benefit Of The Public; B. The Development Of More Accurate Means Of Diagnosis, Improved Protocols For Management Of Patients And Ultimately Measures For Prevention Of Ebv-Hlh Disease; C. The Provision And Dissemination Of Information, Education And Knowledge In Support Of Patients And Families Affected By Ebv-Hlh Disease To Include All Or Any Medical Professionals And The General Public; Andd. Collaboration With Interested Individuals And Organisations.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
The General Public/mankind

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales