# THE TOM TOWLER EBV-HLH CHARITY

## Details

- **Country:** England & Wales
- **Charity number:** 1218180
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 21, 2026
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1218180


## Contact

- **Address:** 29 CROMER ROAD, HOLT
- **Postcode:** NR25 6EU
- **Phone:** 07831 389943
- **Email:** kirsty.mcewen@higgsllp.co.uk



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONG PATIENTS AFFECTED BY THE EPSTEIN?BARR VIRUS-ASSOCIATED HEMOPHAGOCYTIC LYMPHOHISTIOCYTOSIS ("EBV-HLH"), THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY:A. THE PROMOTION AND FURTHERANCE OF SCIENTIFIC RESEARCH INTO THE PHYSIOLOGY AND PATHOLOGY OF EBV-HLH AND THE AETIOLOGY OF EBV-HLH DISEASE, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE BENEFIT OF THE PUBLIC; B. THE DEVELOPMENT OF MORE ACCURATE MEANS OF DIAGNOSIS, IMPROVED PROTOCOLS FOR MANAGEMENT OF PATIENTS AND ULTIMATELY MEASURES FOR PREVENTION OF EBV-HLH DISEASE; C. THE PROVISION AND DISSEMINATION OF INFORMATION, EDUCATION AND KNOWLEDGE IN SUPPORT OF PATIENTS AND FAMILIES AFFECTED BY EBV-HLH DISEASE TO INCLUDE ALL OR ANY MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC; ANDD. COLLABORATION WITH INTERESTED INDIVIDUALS AND ORGANISATIONS.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Michaela Ann Towler** | Chair |  |
| Jane Louise Flint |  |  |
| Vicki May Ringer |  |  |




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