{"country": "England & Wales", "charity_number": "1218180", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1218180", "name": "THE TOM TOWLER EBV-HLH CHARITY", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2026-05-21", "date_removed": null, "legal_form": "CIO", "company_number": null, "company_number_url": null, "parent": null, "subsidiaries": [], "area_of_benefit": null, "address": "29 CROMER ROAD, HOLT", "postcode": "NR25 6EU", "phone": "07831389943", "email": "kirsty.mcewen@higgsllp.co.uk", "website": null, "lat": 52.907392, "lng": 1.09189, "activities": null, "purposes": null, "what_charity_does": null, "how_charity_works": null, "who_charity_helps": null, "beneficiaries": null, "objectives": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONG PATIENTS AFFECTED BY THE EPSTEIN?BARR VIRUS-ASSOCIATED HEMOPHAGOCYTIC LYMPHOHISTIOCYTOSIS (\"EBV-HLH\"), THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY:A. THE PROMOTION AND FURTHERANCE OF SCIENTIFIC RESEARCH INTO THE PHYSIOLOGY AND PATHOLOGY OF EBV-HLH AND THE AETIOLOGY OF EBV-HLH DISEASE, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE BENEFIT OF THE PUBLIC; B. THE DEVELOPMENT OF MORE ACCURATE MEANS OF DIAGNOSIS, IMPROVED PROTOCOLS FOR MANAGEMENT OF PATIENTS AND ULTIMATELY MEASURES FOR PREVENTION OF EBV-HLH DISEASE; C. THE PROVISION AND DISSEMINATION OF INFORMATION, EDUCATION AND KNOWLEDGE IN SUPPORT OF PATIENTS AND FAMILIES AFFECTED BY EBV-HLH DISEASE TO INCLUDE ALL OR ANY MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC; ANDD. COLLABORATION WITH INTERESTED INDIVIDUALS AND ORGANISATIONS.", "classifications": [{"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "main_operating_location": null, "geographical_spread": null, "areas_of_operation": [{"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": null, "latest_expenditure": null, "fin_period_start": null, "fin_period_end": null, "financial_years": [], "documents": [], "trustees": [{"name": "Michaela Ann Towler", "chair": true, "appointment": null}, {"name": "Jane Louise Flint", "chair": false, "appointment": null}, {"name": "Vicki May Ringer", "chair": false, "appointment": null}], "nearby": [{"charity_number": "1179793", "name": "HOLT & DISTRICT DEMENTIA SUPPORT", "country": "EW", "url": "https://opencharities.uk/ew/1179793", "distance_miles": 0.0}, {"charity_number": "1104758", "name": "Friends of Gresham's at Pre-Prep", "country": "EW", "url": "https://opencharities.uk/ew/1104758", "distance_miles": 0.1}, {"charity_number": "1131726", "name": "THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST. ANDREW HOLT NORFOLK IN THE DIOCESE OF NORWICH", "country": "EW", "url": "https://opencharities.uk/ew/1131726", "distance_miles": 0.1}, {"charity_number": "221058", "name": "SPOUTS COMMON", "country": "EW", "url": "https://opencharities.uk/ew/221058", "distance_miles": 0.1}, {"charity_number": "303981", "name": "KING GEORGE'S FIELD, HOLT", "country": "EW", "url": "https://opencharities.uk/ew/303981", "distance_miles": 0.1}]}