Country

England & Wales

Charity number

1217466

Status

Registered

Registered

April 1, 2026

Legal form

CIO

Address

Contact

Activities

We organise fundraising events to support research into MSMDS ACTA2, aiming to advance understanding and help develop effective treatments or a cure. We work across the UK to raise awareness, engage communities, and generate vital funding for scientific and medical progress.

Objects: The Preservation Of Good Health And The Relief Of Sickness For The Public Benefit Among Individuals Affected By Multisystemic Smooth Muscle Dysfunction Syndrome (Msmds) And Other Acta2-Related Disorders By:a) Supporting And Promoting Research For The Public Benefit Into The Causes, Prevention, Diagnosis And Treatment Of Msmds And Acta2-Related Disorders, And Publishing Or Otherwise Disseminating The Useful Results Of Such Research;b) Providing Information, Advice, Education And Advocacy To Improve Public And Professional Awareness Of Msmds And Acta2-Related Disorders, Including The Importance Of Early Diagnosis, Appropriate Monitoring And Well-Managed Treatment;c) Offering A Support Network For Individuals And Families Affected By Msmds And Acta2-Related Disorders, Including Facilitating Connections With Medical Specialists And Relevant Organisations;d) Organising And Participating In Conferences, Forums And Other Initiatives That Advance Scientific Understanding Of Msmds And Acta2-Related Vascular Diseases.

Classification

How

Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Other Charitable Activities

What

The Advancement Of Health Or Saving Of Lives

Who

Children/young People, The General Public/mankind

Areas of operation

Region

Throughout England And Wales

Trustees

Nearby

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• Children Of Choba 0.1 mi

Data

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