{"country": "England & Wales", "charity_number": "1217466", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1217466", "name": "ACTA2 ALLIANCE UK", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2026-04-01", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "4 PULTENEY AVENUE, BATH", "postcode": "BA2 4HH", "phone": "07870519557", "email": "msmds@acta2.uk", "website": null, "lat": 51.379364, "lng": -2.350763, "activities": "We organise fundraising events to support research into MSMDS ACTA2, aiming to advance understanding and help develop effective treatments or a cure. We work across the UK to raise awareness, engage communities, and generate vital funding for scientific and medical progress.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE PRESERVATION OF GOOD HEALTH AND THE RELIEF OF SICKNESS FOR THE PUBLIC BENEFIT AMONG INDIVIDUALS AFFECTED BY MULTISYSTEMIC SMOOTH MUSCLE DYSFUNCTION SYNDROME (MSMDS) AND OTHER ACTA2-RELATED DISORDERS BY:A) SUPPORTING AND PROMOTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND TREATMENT OF MSMDS AND ACTA2-RELATED DISORDERS, AND PUBLISHING OR OTHERWISE DISSEMINATING THE USEFUL RESULTS OF SUCH RESEARCH;B) PROVIDING INFORMATION, ADVICE, EDUCATION AND ADVOCACY TO IMPROVE PUBLIC AND PROFESSIONAL AWARENESS OF MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING THE IMPORTANCE OF EARLY DIAGNOSIS, APPROPRIATE MONITORING AND WELL-MANAGED TREATMENT;C) OFFERING A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES AFFECTED BY MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING FACILITATING CONNECTIONS WITH MEDICAL SPECIALISTS AND RELEVANT ORGANISATIONS;D) ORGANISING AND PARTICIPATING IN CONFERENCES, FORUMS AND OTHER INITIATIVES THAT ADVANCE SCIENTIFIC UNDERSTANDING OF MSMDS AND ACTA2-RELATED VASCULAR DISEASES.", "classifications": [{"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 310, "description": "Other Charitable Activities"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": null, "latest_expenditure": null, "fin_period_start": null, "fin_period_end": null, "financial_years": [], "documents": [], "trustees": [{"name": "Rose Griffiths", "chair": true, "appointment": "2026-04-01"}, {"name": "Andrew Lovell", "chair": false, "appointment": "2026-04-01"}, {"name": "Jonathan Griffiths", "chair": false, "appointment": "2026-04-01"}]}