# ACTA2 ALLIANCE UK

## Details

- **Country:** England & Wales
- **Charity number:** 1217466
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** April 1, 2026
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1217466


## Contact

- **Address:** 4 PULTENEY AVENUE, BATH
- **Postcode:** BA2 4HH
- **Phone:** 07870519557
- **Email:** msmds@acta2.uk



## Activities

**Objects:** THE PRESERVATION OF GOOD HEALTH AND THE RELIEF OF SICKNESS FOR THE PUBLIC BENEFIT AMONG INDIVIDUALS AFFECTED BY MULTISYSTEMIC SMOOTH MUSCLE DYSFUNCTION SYNDROME (MSMDS) AND OTHER ACTA2-RELATED DISORDERS BY:A) SUPPORTING AND PROMOTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND TREATMENT OF MSMDS AND ACTA2-RELATED DISORDERS, AND PUBLISHING OR OTHERWISE DISSEMINATING THE USEFUL RESULTS OF SUCH RESEARCH;B) PROVIDING INFORMATION, ADVICE, EDUCATION AND ADVOCACY TO IMPROVE PUBLIC AND PROFESSIONAL AWARENESS OF MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING THE IMPORTANCE OF EARLY DIAGNOSIS, APPROPRIATE MONITORING AND WELL-MANAGED TREATMENT;C) OFFERING A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES AFFECTED BY MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING FACILITATING CONNECTIONS WITH MEDICAL SPECIALISTS AND RELEVANT ORGANISATIONS;D) ORGANISING AND PARTICIPATING IN CONFERENCES, FORUMS AND OTHER INITIATIVES THAT ADVANCE SCIENTIFIC UNDERSTANDING OF MSMDS AND ACTA2-RELATED VASCULAR DISEASES.

**Activities:** We organise fundraising events to support research into MSMDS ACTA2, aiming to advance understanding and help develop effective treatments or a cure. We work across the UK to raise awareness, engage communities, and generate vital funding for scientific and medical progress.




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, The General Public/mankind



## Areas of operation

- Throughout England And Wales




## Trustees

- **Rose Griffiths** (Chair) — appointed April 1, 2026
- Andrew Lovell — appointed April 1, 2026
- Jonathan Griffiths — appointed April 1, 2026