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2025-04-04-accounts

Trustees’ Annual Report for the period

From 2[nd] July 2024 To 4[th] April 2025

Charity name: The Noah Jordan Foundation Charity registration number: 1208933

Objectives and Activities
SORP reference
Summary of the purposes of
the charity as set out in its
governing document		 Para 1.17 The object of the CIO is, for the public
benefit, to relieve sickness and preserve
and protect the physical and mental health
of sufferers of life-limiting paediatric
mitochondrial disease, in particular, but not
exclusively, POLG-related mitochondrial
disorders including Alpers–Huttenlocher
syndrome, and their families and carers, by
all or any of the following means:
1) The provision of grants to promote
medical research into paediatric
mitochondrial disease, the useful
results of which will be published,
with the aim of finding a cure and
medication to assist in the treatment
and management of the condition;
2) Raising awareness of all issues
related to paediatric mitochondrial
disease among the public and
healthcare professionals;
3) Providing families living with
paediatric mitochondrial disease with
services, items, information, and
support, including financial support
where possible.
Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.		 Para 1.17 and 1.19 The main activities in relation to those
purposes for the public benefit, in particular,
the activities, projects or services identified
in the accounts include the following:
Medical Research
-
Relationship established with one of
the UK's leading Professors of
Paediatric Mitochondrial Medicine
who now serves as the charities
medical advisor based at the
Mitochondrial Research Group at
Newcastle University with a view to
funding research in the near future.
Raising awareness:
-
The charity raises awareness
amongst the public and
professionals through public
speaking events, marketing, UK and
international fundraising campaigns
& events, social media and via the
press through written copy, radio
and television.
Support families:
-
The charity provides financial
support to individuals (families
affected by paediatric mitochondrial
disease) and organisations including
Ronald McDonald House Charities
(Birmingham), Alexander Divine
Children’s Hospice and Birmingham
Children’s Hospital.
Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit		 Para 1.18 The trustees are committed to following all
necessary policies, procedures, legal
requirement and guidance set by the charity
commission with regards to governing the
charity to provide public benefit in line with
our charitable objectives.

Achievements and Performance

SORP reference

Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.		 Para 1.20 The Charity (CIO) was registered with the
Charity Commission on 2ndJuly 2024.
The charity’s work has had a positive impact
on the community in a number of ways,
aligned to our charitable objectives.
Research:
-
Established relationship with leading
Professor of Paediatric Mitochondrial
Medicine and his team at the
Mitchondrial Research Group at
Newcastle University. Set target to
raise £100,000 to fund three year
medical research PhD into Alper’s
Syndrome under his guidance.
Raising awareness:
-
Raising awareness about
mitochondrial diseases through
television, radio and other media as
well as in-person awareness raising
events. This supports beneficiaries
by raising the profile of paediatric
mitochondrial disease and
particularly, PolG.
Support families:
-
Creating a community of families
locally and nationally for support,
guidance and companionship.
-
Providing funds to provide resources
to families whose children suffer
from these diseases. For example,
donations to Ronald MCDonald
house, Alexander Devine Children’s
hospice, and Birmingham Children’s
Hospital palliative care team.
-
All the above supports beneficiaries
financially, emotionally and
pastorally.

Additional information (optional) You may choose to include further statements where relevant about:
Achievements against
objectives set		 Para 1.41 In early 2025 the charity set out to raise
£100,000 to fully fund a three year medical
research PhD into better understanding
Alper’s Syndrome. This objective and
financial target was met after the end of the
accounting period ending 4thApril 2025. The
trustees and all involved with charity are
incredibly proud of this achievement.

Financial Review

inancial Review
Review of the charity’s
financial position at the end
of the period		 Para 1.21 The trustees are very proud of what the
charity has achieved since inception. In
summary, some of the high-level financial
position have ben set out below.
Please note the figures below are estimates
for illustrative purposes only.
Key figures
Total Income:£99,941
Total Expenditure:£15,436(01/08/2024
(bank account opened) - 04/04/2025)
c.£100,000 will be committed to funding a
three year medical research PhD.
c. £6,500 committed to supporting key
initiatives; Ronald McDonald House
charities (£5,000), Alex Devine Children’s
Hospice (£779), Birmingham Children’s
Hospital Palliative Care Team (£500).
Notable costs:
Reasonable and expected fixed monthly
costs to run the charity (website, email
addresses, phone, computing applications,
insurance etc).
Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 We do not have a formal policy for holiday
reserves but as of 4thApril had healthy
sums of money in the bank account which
were unallocated and therefore could be
considered as an informal reserve.
Amount of reserves held Para 1.22 c. £50,000
Reasons for holding zero
reserves		 Para 1.22 N/A
Details of fund materially in
deficit		 Para 1.24 N/A
Explanation of any
uncertainties about the
charity continuing as a going
concern		 Para 1.23 Noting the above, there are no concerns
with regards to the going stability of the
charity.

Additional information (optional)

You may choose to include further statements where relevant about:

The charity’s principal
sources of funds (including
any fundraising)		 Para 1.47 -
Regular monthly donations
-
One-off donations e.g. through
corporate charitable donation/fundraiser
-
Funds raised through sporting and
social events (e.g. marathon running,
gala dinners, quizzes, cake sales)
-
Grants
-
Sponsorships
Investment policy and
objectives including any
social investment policy
adopted		 Para 1.46 No formal investment policy. To date funds
have been received and kept in the charity
current account with no other strategic
investments made.
A description of the principal
risks facing the charity		 Para 1.46 We have outlined below some of the
potential risks that the charity faces.
However, none of these are deemed to be
material or significant enough to affect the
ongoing viability of the charity, which is in a
financially healthy position.
Risk: Macro economic environment. There
appears to be less opportunities to secure
grants in the charity sector.
Mitigants: Grants are only a very small
amount of the charity’s income so this is not
a major concern.
Risk:Seasonal income. Typically, there is
more income/funds raised in the summer
months than the winter months.
Mitigant:This is typical for a charity like
ours which relies on, to some extent, funds
raised through summer sporting
activites/events. This is frequently
discussed and reviewed and we seek to
hold winter (such as our winter ball) to
supplement and offset this appropriately.
Risk: Rising costs. As the charity has grown
the costs have risen to.
Mitigant:Monthly costs continue to be
typically below c.20-30% of
monthly/quarterly income which is very
healthy and not a concern. Rather it is
something which is monitored.

Structure, Governance and Management
Description of charity’s
trusts:		 N/A
Type of governing document
(trust deed, royal charter)		 Para 1.25 CIO - Constitution
How is the charity
constituted?
(e.g unincorporated
association, CIO)		 Para 1.25 CIO
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees		 Para 1.25 Please see Governing Document.

Reference and Administrative details
Charity name The Noah Jordan Foundation
Other name the charity uses N/A
Registered charity number 1208933
Charity’s principal address THE NOAH JORDAN FOUNDATION
Unit A
82 JAMES CARTER ROAD
MILDENHALL
SUFFOLK
IP28 7DE

Names of the charity trustees who manage the charity
Trustee name Office (if any) Dates acted if not for
whole year		 Name of person (or body)
entitled to appoint trustee
(if any)
1 Daniel Macken N/A Since inception 2nd
July 2024 (date
when registered
with charity
commission)
2 Simon Stiggear N/A Since inception 2nd
July 2024 (date
when registered
with charity
commission)
3 Ben Jordan N/A Since inception 2nd
July 2024 (date
when registered
with charity
commission) to 7th
October 2025
4 Rachael
McDonald		 N/A Since inception 2nd
July 2024 (date
when registered
with charity
commission)
5 Natasha
Jordan (nee
Bailey)		 N/A Since inception 2nd
July 2024 (date
when registered
with charity
commission)
6 Rosie Kenyon N/A From 8th April 2025
7
8
9
10
11
12
13
14
15

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– Corporate trustees names of the directors at the date the report was approved

Director name

N/A

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year
N/A

Funds held as custodian trustees on behalf of others

Description of the assets held N/A in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of Name Address adviser

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s)[S Stiggear ]

Full name(s) Simon Stiggear

Position (eg Treasurer and trustee Secretary, Chair, etc)

Date 10/02/2026

The Noah Jordan Foundation Independent Examiner’s Report to the Trustees For the Period Ended 4 April 2025

Independent examiners report to the Trustees of The Noah Jordan Foundation

I report to the trustees on my examination of the accounts for Alive UK (“the charity”) for the period ended 4 April 2025.

Responsibilities and basis of report

As the charity trustees of the charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the 2011 Act”).

I report in respect of my examination of the charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner’s statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the charity as required by section 130 of the 2011 Act; or

  2. the accounts do not comply with these records

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Michelle Ferris BSC (Hons) FCA DChA

Albert Goodman LLP Chartered Accountants Goodwood House Blackbrook Park Avenue Taunton Somerset TA1 2PX

Date: 10 February 2026

The Noah Jordan Foundation

Charity Name		 The Noah Jordan Foundation

Charity Name		 The Noah Jordan Foundation

Charity Name		 1208933
No (if any)		 1208933
No (if any)		 CC16a
For the period
from		 02/07/2024
Period start date		 To 04/04/2025
Period end date
Section A Receipts and payments
A1 Receipts Unrestricted
funds
to the nearest
£
300
97,566
75
-
-
-
-
-


97,941
-
-
-
97,941
1,323
210
188
440
532
136
6,279
3,328
1,189
1,811
15,436
-
-
-
15,436
82,505
-
-
82,505		 Restricted
funds
to the nearest £
-
-
-
2,000
-
-
-
-
2,000
-
-
-
2,000
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
2,000
-
-
2,000		 Endowment
funds
to the nearest £		 Total funds
to the nearest £
300
97,566
75
2,000
-
-
-
-
99,941
-
-
-
99,941
1,323
210
188
440
532
136
6,279
3,328
1,189
1,811
15,436
-
-
-
15,436

84,505		 Last year
to the nearest £
Event Costs 300 -
-
-
-
-
-
-
-
-		 300 -
Donations 97,566 97,566 -
Christmas Cards 75 75 -
Grant - 2,000 -
- - -
- - -
- - -
- - -
Sub total(Gross income for
AR)

97,941		 99,941 -
A2 Asset and investment sales,
(see table).
- -
-
-		 -
- - -
Sub total - - -
Total receipts
A3 Payments
- 99,941 -
Travel/Hotel/ Phone 1,323 -
-
-
-
-
-
-
-
-
-
-		 1,323 -
Sundry 210 210 -
Subsciption 188 188 -
FundraisingCosts 440 440 -
PrintingCosts 532 532 -
Post Office Postage 136 136 -
Donation/Grant 6,279 6,279 -
Event Costs 3,328 3,328 -
Clothing 1,189 1,189
Just GivingFees 1,811 1,811 -
**Sub total ** 15,436 15,436 -
A4 Asset and investment
purchases, (see table)
- -
-
-		 -
- -
**Sub total ** - - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
- 15,436 -
82,505 2,000 -
84,505		 -
- - -
-		 - -
- - - -
82,505 2,000 - 84,505 -

CCXX R1 accounts (SS)

10/02/2026

1

Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B1 Cash funds
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B5 Liabilities
B3 Investment assets		 Signature
S Stiggear
Accountancy fees
Details
Details
Bank
Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
82,505
2,000
-
-
-
-
82,505
2,000
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
Unrestricted
2,700
-
-
-
-
Print Name
Simon Stiggear		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
S Stiggear Simon Stiggear 10/02/2026

CCXX R2 accounts (SS)

10/02/2026

2