The Noah Jordan Foundation
- Country
- England & Wales
- Charity number
- 1208933
- Status
- Registered
- Registered
- July 2, 2024
- Legal form
- CIO
Address
- Address
- THE NOAH JORDAN FOUNDATION
MOR WORKSPACE
TRELOGGAN LANE
NEWQUAY
CORNWALL
TR7 2FP
Contact
- Phone
- 07301424540
- [email protected]
- Website
tnjf.org.uk
Activities
We fund research with the aim of improving clinical management, developing treatments, and finding a cure for rare, terminal paediatric mitochondrial diseases, such as Alpers-Huttenlocher Syndrome. We raise awareness among the public and healthcare professionals through events and training and support affected families with information, services, resources, and financial aid.
Objects: The Object Of The CIO Is: For The Public Benefit To Relieve Sickness And Preserve And Protect The Physical And Mental Health Of Sufferers Of Life Limiting Paediatric Mitochondrial Disease, In Particular But Not Exclusively Polg Related Mitochondrial Disorders Including Alpers Huttenlocher Syndrome, And Their Families And Carers By All Or Any Of The Following Means:(1) The Provision Of Grants To Promote Medical Research Into Paediatric Mitochondrial Disease, The Useful Results Of Which Will Be Published, With The Aim Of Finding A Cure And Medication To Assist In Treatment And Management Of The Condition; (2) Raising Awareness About All And Any Issues Related To Paediatric Mitochondrial Disease Among The Public And Healthcare Professionals;(3) Providing Families Living With Paediatric Mitochondrial Disease With Services, Items, Information And Support, Including Financial Support Where Possible.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, Other Charities Or Voluntary Bodies, The General Public/mankind
Areas of operation
- Region
- Throughout England
Finances
| Period end | Income | Expenditure |
|---|---|---|
| April 4, 2025 | £99,941 | £15,436 |
Trustees
| Name | Appointed |
|---|---|
| Daniel Macken BA (Hons) | |
| Natasha Bailey BA (Hons) | |
| Rachael McDonald BA (Hons) PGCE | |
| Rosemary Kenyon BA MBA | April 8, 2025 |
| Simon Stiggear BAHons ACA | July 2, 2024 |
Nearby
- Devon & Cornwall 4x4 Response 0.0 mi
- Newquay Foodbank 0.1 mi
- Newquay Lions Club (CIO) 0.3 mi
- Newquay Towan Blystra Lions Club (CIO) 0.3 mi
- Newquay Band 0.4 mi