OpenCharities

Gri-Uk

Country
England & Wales
Charity number
1207930
Status
Registered
Registered
April 19, 2024
Legal form
CIO

Address

Address
Durham House
10 Pony Chase
COBHAM
Surrey
KT11 2PF

Contact

Activities

GRI-UK works to drive research into treatments and cures for GRI Disorders (GRIA, GRID, GRIK, & GRIN); Support families so that those diagnosed can lead the best life possible; Raise awareness of GRI disorders within UK heath systems to enable better diagnosis/treatment; and Bring together a range of partners to make the UK a centre of excellence for finding treatments and cures to GRI conditions.

Objects: The Cio’s Object Is To Preserve And Protect Good Health For The Public Benefit In Particular But Not Exclusively Of People With Gria, Grid, Grik, & Grin Gene Disorders By:-Aiming To Advance Cures And Treatments;supporting Families So That Those Diagnosed With These Disorders Can Lead The Best Life Possible;raising Awareness, Including Within The UK Health Service, And Medical Centres Of The Symptoms, Needs And Medical Conditions Of Those Living With Gri Disorders To Help Enable Better And Faster Access To Diagnosis And Treatments;making The UK A Centre Of Excellence For The Public Benefit Of Finding Treatments And Cures For Gri Disorders; And Byfocusing On Bringing Together Patients, Parents, Family Members, Medical Professionals, Researchers, Scientists, Pharmaceutical, Bioscience And Academic Communities.

Classification

How
Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £37,965 £640

Trustees

Name Appointed
Alyson Koopman (Chair) April 19, 2024
Colette Miriam Dufficy March 12, 2025
Jillian Lorna Hastings Ward MAHons MSc April 19, 2024
Kristina Margaret McKean April 19, 2024
Shilpa Kaluti April 19, 2024
Susan Patricia Banks April 19, 2024
Toni Lee Clarke April 19, 2024