2022-12-31-accounts - Marfan Trust

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Trustees' Annual Report for the period

Period start date Period end date Day Month Year Day Month From 05 05 2022 To 31 12

Day Month Year 31 12 2022

Section A Reference and administration details

Charity name Other names charity is known by n/a Registered charity number (if any) 1198847

Marfan Trust

Charity's principal address 24 Oakfield Lane

24 Oakfield Lane	24 Oakfield Lane

Keston
Kent
Postcode	BR2 6BY

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (ifany)
	Dr Anne Child	Chair
	Andrew Scadding	Trustee
	Dr Nitha Naqvi	Trustee
	Helen Syms	Trustee
	Eleanor Hyde	Trustee
	Mohamed Essam Gamil Abdelrazek	Trustee
	Edward Stilliard	Trustee
	Robin Randall	Trustee

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

TAR

March 2012

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address




Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document (eg. trust deed, constitution) How the charity is constituted

CIO foundation

CIO

(eg. trust, association, company)

Trustee selection methods

Appointed

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;
relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

Summary of the objects of the charity set out in its governing document

The objects of the CIO are: to advance education regarding, and promote research into the nature of, Marfan syndrome and related connective tissue disorders, methods of treatment and to disseminate the useful results of such research for the benefit of the public; and the preservation and protection of the health of persons with Marfan syndrome and related connective tissue disorders and the relief of need of persons with Marfan syndrome and related connective tissue disorders and their families by providing advice and support.

TAR

March 2012

The CIO was registered on May 5[th] 2022, but lay dormant during the period to December 31[st] 2022.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

policy on grantmaking;
policy programme related investment;
contribution made by volunteers.

TAR

March 2012

Section D Achievements and performance

The CIO was registered on May 5[th] 2022, but lay dormant during the Summary of the main period to December 31[st] 2022. achievements of the charity during the year

TAR

March 2012

Section E Financial review

The CIO was registered on May 5[th] 2022, but lay dormant during the Brief statement of the period to December 31[st] 2022. charity’s policy on reserves

Details of any funds materially N/A - The CIO was registered on May 5[th] 2022, but lay dormant during in deficit the period to December 31[st] 2022.

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;
investment policy and objectives including any ethical investment policy adopted.

Section F Other optional information

The CIO was registered on May 5[th] 2022, but lay dormant during the period to December 31[st] 2022. Therefore, there is no information or accounts to upload for this period.

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Anne Hawthorne Child Position (eg Secretary, Chair, Chair etc) Date 31st January 2024

TAR

March 2012

Marfan Trust 1198847 Receipts and payments accounts

CC16a

For the period Period start date Period end date To from 05/05/2022 31/12/2022

Section A Receipts and payments

A1 Receipts	Unrestricted funds to the nearest £	Restricted funds to the nearest £	Endowment funds to the nearest £	Total funds to the nearest £	Last year to the nearest £
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*Sub total*(Gross income for AR)	-	-	-	-	-

A2 Asset and investment sales, (see table).
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*Sub total*	-			-	-
*Total receipts* A3 Payments
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**Sub total **	-	-	-	-	-

A4 Asset and investment purchases, (see table)
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*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
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CCXX R1 accounts (SS)

31/01/2024

Section B Statement of assets and liabilities at the end of the period Categories Deils Tolal $h fvnds •Xm41 Details Detailo B4 Assets rÈtaird forth• tharity's own us• BS LiabJlltles hawofal thetnBt888 Sjrlre Date of CCXX R2 xxxJrts ISS) 2WD1f2024