## **Trustees' Annual Report for the period**
Period start date Period end date Day Month Year Day Month **From** 05 05 2022 **To** 31 12
Day Month Year 31 12 2022
## Section A Reference and administration details
**Charity name Other names charity is known by** n/a **Registered charity number (if any)** 1198847
Marfan Trust
**Charity's principal address** 24 Oakfield Lane
|
24 Oakfield Lane|
24 Oakfield Lane|
|---|---|
|||
|Keston||
|Kent||
|**Postcode**|**BR2 6BY**|
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Dr Anne Child|Chair|||
||Andrew Scadding|Trustee|||
||Dr Nitha Naqvi|Trustee|||
||Helen Syms|Trustee|||
||Eleanor Hyde|Trustee|||
||Mohamed Essam
Gamil Abdelrazek|Trustee|||
||Edward Stilliard|Trustee|||
||Robin Randall|Trustee|||
||||||
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||||||
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**Names of the trustees for the charity, if any, (for example, any custodian trustees)**
**Name Dates acted if not for whole year**
**TAR**
March **2012**
1
## **Names and addresses of advisers (Optional information)**
|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|
|---|---|---|
|**Type of adviser**
**Name**
**Address**|||
||||
||||
||||
||||
|**Name of chief executive or names of senior staff members (Optional information)**|||
||||
## **Section B Structure, governance and management**
## **Description of the charity’s trusts**
Type of governing document (eg. trust deed, constitution) How the charity is constituted
CIO foundation
CIO
- (eg. trust, association, company)
Trustee selection methods
Appointed
- (eg. appointed by, elected by)
## **Additional governance issues (Optional information)**
You **may choose** to include additional information, where relevant, about:
- policies and procedures adopted for the induction and training of trustees;
- the charity’s organisational structure and any wider network with which the charity works;
- relationship with any related parties;
- trustees’ consideration of major risks and the system and procedures to manage them.
## **Section C Objectives and activities**
**Summary of the objects of the charity set out in its governing document**
The objects of the CIO are: to advance education regarding, and promote research into the nature of, Marfan syndrome and related connective tissue disorders, methods of treatment and to disseminate the useful results of such research for the benefit of the public; and the preservation and protection of the health of persons with Marfan syndrome and related connective tissue disorders and the relief of need of persons with Marfan syndrome and related connective tissue disorders and their families by providing advice and support.
**TAR**
March **2012**
2
The CIO was registered on May 5[th] 2022, but lay dormant during the period to December 31[st] 2022.
**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)**
**Additional details of objectives and activities (Optional information)**
You **may choose** to include further statements, where relevant, about:
- policy on grantmaking;
- policy programme related investment;
- contribution made by volunteers.
**TAR**
March **2012**
3
## Section D Achievements and performance
The CIO was registered on May 5[th] 2022, but lay dormant during the **Summary of the main** period to December 31[st] 2022. **achievements of the charity during the year**
**TAR**
March **2012**
4
## **Section E Financial review**
The CIO was registered on May 5[th] 2022, but lay dormant during the **Brief statement of the** period to December 31[st] 2022. **charity’s policy on reserves**
**Details of any funds materially** N/A - The CIO was registered on May 5[th] 2022, but lay dormant during **in deficit** the period to December 31[st] 2022.
## **Further financial review details (Optional information)**
You **may choose** to include additional information, where relevant about:
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
- investment policy and objectives including any ethical investment policy adopted.
## **Section F Other optional information**
The CIO was registered on May 5[th] 2022, but lay dormant during the period to December 31[st] 2022. Therefore, there is no information or accounts to upload for this period.
## **Section G Declaration**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s) Full name(s)** Anne Hawthorne Child **Position (eg Secretary, Chair,** Chair **etc) Date** 31st January 2024
**TAR**
March **2012**
5
**Marfan Trust 1198847 Receipts and payments accounts**
## **CC16a**
**For the period** Period start date Period end date **To from** 05/05/2022 31/12/2022
## **Section A Receipts and payments**
|**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**|**Unrestricted**
**funds**
**to the nearest £**|**Restricted**
**funds**
**to the nearest £**|**Restricted**
**funds**
**to the nearest £**|**Endowment**
**funds**
**to the nearest £**|**Endowment**
**funds**
**to the nearest £**|**Total funds**
**to the nearest £**|**Total funds**
**to the nearest £**|**Last year**
**to the nearest £**|
|---|---|---|---|---|---|---|---|---|---|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
|**_Sub total_**_(Gross income for_
_AR)_|**-**||**-**||**-**||**-**||**-**|
|||||||||||
|**A2 Asset and investment sales,**
**(see table).**||||||||||
||**-**||||||**-**|||
||**-**||||||**-**||**-**|
|**_Sub total_**|**-**||||||**-**||**-**|
|**_Total receipts_ **
**A3 Payments**||||||||||
||||||||||**-**|
|||||||||||
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
||**-**||**-**||**-**||**-**||**-**|
|**_Sub total_ **|**-**||**-**||**-**||**-**||**-**|
|||||||||||
|**A4 Asset and investment**
**purchases, (see table)**||||||||||
||**-**||||||**-**|||
||**-**||||||**-**|||
|**_Sub total_ **|**-**||||||**-**||**-**|
|**_Total payments_ **
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**||||||||||
||||||||||**-**|
|||||||||||
||**-**||||||**-**||**-**|
||**-**||||||**-**||**-**|
||**-**||||||**-**||**-**|
||**-**||||||**-**||**-**|
CCXX R1 accounts (SS)
31/01/2024
1
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