2023-12-31-accounts

Trustees’ Annual Report for the period

From 01 January 2023 Period start date To 31 December 2023 Period end date

Charity name: A Rare Cause

Charity registration number: 1198461

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Due to the inability to setup a UK bank the CIO could not advance any of its activities. The matter was referred to the financial ombudsman which only ruled in February 2024 that process has been followed and despite the delays 2 years to setup the bank account is acceptable from financial regulatory perspective. In consultation with the trustees the CIO opened a Wise business account in November 2023 to not further delay the work of the organisation. Due to this no activities were performed in this financial year.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees confirm they have regard to the guidance issued by the Charity commission.

Additional information (optional) You may choose to include further statements where relevant about:

SORP reference Not applicable Para 1.38 Policy on grant making

Policy on social investment including program related investment

Policy on social investment including program related investment	Policy on social investment including program related investment	Policy on social investment including program related investment
Para1.38
Contribution made by volunteers	Para 1.38	The CIO have 4 volunteers which have continued to build strategy and ways forward to develop all the policies and governance now that there is a bank account available.
Other

Achievements and Performance

SORP reference Another disappointing year due to inability to open a bank account and lost a substantial grant due to this. Summary of the main Para 1.20 achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41	N/A
Performance of fundraising activities against objectives set	Para 1.41	N/A
Investment performance against objectives	Para 1.41	N/A

Other

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	No transactions.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	None
Amount of reserves held	Para 1.22	None
Reasons for holding zero reserves	Para 1.22	No activity or employees
Details of fund materially in deficit	Para 1.24	None
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional) You may choose to include further statements where relevant about: N/A The charity’s principal sources of funds (including Para 1.47 any fundraising) Investment policy and objectives including any Para 1.46 social investment policy adopted A description of the principal Para 1.46 risks facing the charity Other

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document	Para 1.25	Foundation CIO Constitution
How is the charity constituted?	Para 1.25	CIO
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Appointment of charity trustees 1. Apart from the first charity trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity trustees. 2. In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO.

Additional information (optional) You may choose to include further statements	Additional information (optional) You may choose to include further statements	where relevant about:
Policies and procedures adopted for the induction and training of trustees	Para 1.51
The charity’s organisational structure and any wider network with which the charity works	Para 1.51	Charity works with multiple patient organisations, academia and health care professionals in Sub Saharan Africa.
Relationship with any related parties	Para 1.51	FYMCA Medical Ltd the parent company continues to support the Charitable arm with network building and expertise.
Other

Reference and Administrative details

Charity name	A Rare Cause
Other name the charity uses	ARC
Registered charity number	1198461

Charity’s principal address	10 Bankside Place Manchester M26 1RW

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (if any)

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity

Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Dumebi Oderinde Position (eg Secretary, Chair Chair, etc) Date 24/09/2024

Wise Payments Ltd.

6th Floor, The Tea Building, 56 Shoreditch High Street London E1 6JJ United Kingdom

GBP statement

11 January 2023 [GMT] - 11 December 2023 [GMT]

Generated on: 11 September 2024

Account Holder Account number UK sort code A Rare Cause 83140948 23-14-70 10 Bankside Place IBAN Swift/BIC Manchester GB21 TRWI 2314 7083 1409 48 TRWIGB2LXXX m261rw United Kingdom

GBP balance on 11 December 2023 [GMT]

0.00 GBP

Description		Incoming	Outgoing
No information			-45.00	0.00
23 November 2023	Transaction: BANK_DETAILS_ORDER_CHECKOUT-invoice-8764992
Topped up balance		45.00		45.00
23 November 2023	Transaction: TRANSFER-876269493

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