A Rare Cause
Arc
- Country
- England & Wales
- Charity number
- 1198461
- Status
- Registered
- Reporting
- Up to date Last filed Oct. 26, 2025. Filing history
- Registered
- March 31, 2022
- Legal form
- CIO
Address
- Address
- 6 The Green
Burley In Wharfedale
Ilkley
West Yorkshire
LS29 7FF
Contact
- Phone
- 07801 960480
- florence@ararecause.org
- Website
ararecause.org
Activities
The objects of A Rare Cause (ARC) are the advancement of health or the saving of lives in relation to the global, rare disease community in particular by providing information and resources to raise knowledge and increase awareness.
Objects: The Objects Of The CIO Are The Advancement Of Health Or The Saving Of Lives In Relation To The Global Rare Disease Community In Particular By Providing Information And Resources To Raise Knowledge And Increase Awareness.
Classification
- How
- Provides Services, Provides Advocacy/advice/information
- What
- The Advancement Of Health Or Saving Of Lives
- Who
- Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind
Geography
- Country
- Botswana, Rwanda, South Africa, United States
- Region
- Throughout England
Finances
| Period end | Filed | Income | Expenditure |
|---|---|---|---|
| Dec. 31, 2024 | Oct. 26, 2025On time | £120 | £0 |
| Dec. 31, 2023 | Sept. 27, 2024On time | £0 | £0 |
| Dec. 31, 2022 | June 14, 2024227 days late | £0 | £0 |
Trustees
| Name | Appointed |
|---|---|
| Dr Dumebi Oderinde | May 7, 2022 |
| Linda Ebosie | June 18, 2025 |
| Prof Amaka Offiah | May 7, 2022 |
| Tiffany Wong | May 7, 2022 |