# A RARE CAUSE

## Details

- **Country:** England & Wales
- **Charity number:** 1198461
- **Other names:** ARC
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 31, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1198461


## Contact

- **Address:** 6 The Green, Burley In Wharfedale, ILKLEY, West Yorkshire
- **Postcode:** LS29 7FF
- **Phone:** 07801960480
- **Email:** florence@ararecause.org
- **Website:** https://ararecause.org/



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.

**Activities:** The objects of A Rare Cause (ARC) are the advancement of health or the saving of lives in relation to the global, rare disease community in particular by providing information and resources to raise knowledge and increase awareness.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind



## Areas of operation

- Botswana
- Rwanda
- South Africa
- United States
- Throughout England



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £120 | £0 | — | — |
| Dec. 31, 2023 | £0 | £0 | — | — |
| Dec. 31, 2022 | £0 | £0 | — | — |



## Trustees

- Dr Dumebi Oderinde — appointed May 7, 2022
- Linda Ebosie — appointed June 18, 2025
- Prof Amaka Offiah — appointed May 7, 2022
- Tiffany Wong — appointed May 7, 2022