## **Trustees’ Annual Report for the period** **From 01 January 2023 Period start date To 31 December 2023 Period end date** ## **Charity name: A Rare Cause** ## **Charity registration number: 1198461** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|THE OBJECTS OF THE CIO ARE THE
ADVANCEMENT OF HEALTH OR THE
SAVING OF LIVES IN RELATION TO THE
GLOBAL RARE DISEASE COMMUNITY
IN PARTICULAR BY PROVIDING
INFORMATION AND RESOURCES TO
RAISE KNOWLEDGE AND INCREASE
AWARENESS.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|Due to the inability to setup a UK bank the
CIO could not advance any of its activities.
The matter was referred to the financial
ombudsman which only ruled in February
2024 that process has been followed and
despite the delays 2 years to setup the
bank account is acceptable from financial
regulatory perspective. In consultation with
the trustees the CIO opened a Wise
business account in November 2023 to not
further delay the work of the organisation.
Due to this no activities were performed in
this financial year.| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees confirm they have regard to
the guidance issued by the Charity
commission.| ## **Additional information (optional)** You may choose to include further statements where relevant about: SORP reference **Not applicable** Para 1.38 Policy on grant making Policy on social investment including program related investment |Policy on social investment including program related investment|Policy on social investment including program related investment|Policy on social investment including program related investment| |---|---|---| |Para1.38||| |Contribution made by
volunteers|Para 1.38|The CIO have 4 volunteers which have
continued to build strategy and ways
forward to develop all the policies and
governance now that there is a bank
account available.| |Other||| ## **Achievements and Performance** SORP reference Another disappointing year due to inability to open a bank account and lost a substantial grant due to this. Summary of the main Para 1.20 achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. ## **Additional information (optional)** You may choose to include further statements where relevant about: |Achievements against
objectives set|Para 1.41|**N/A**| |---|---|---| |Performance of fundraising
activities against objectives
set|Para 1.41|**N/A**| |Investment performance
against objectives|Para 1.41|**N/A**| Other ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|No transactions.| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|None| |Amount of reserves held|Para 1.22|None| |Reasons for holding zero
reserves|Para 1.22|No activity or employees| |Details of fund materially in
deficit|Para 1.24|None| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|N/A| **Additional information (optional)** You may choose to include further statements where relevant about: **N/A** The charity’s principal sources of funds (including Para 1.47 any fundraising) Investment policy and objectives including any Para 1.46 social investment policy adopted A description of the principal Para 1.46 risks facing the charity Other ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document|Para 1.25|Foundation CIO Constitution| |How is the charity
constituted?|Para 1.25|CIO| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Appointment of charity trustees
1. Apart from the first charity trustees,
every trustee must be appointed for
a term of three years by a resolution
passed at a properly convened
meeting of the charity trustees.
2. In selecting individuals for
appointment as charity trustees, the
charity trustees must have regard to
the skills, knowledge and
experience needed for the effective
administration of the CIO.| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|Charity works with multiple patient
organisations, academia and health care
professionals in Sub Saharan Africa.| |Relationship with any
related parties|Para 1.51|FYMCA Medical Ltd the parent company
continues to support the Charitable arm
with network building and expertise.| |Other||| ## **Reference and Administrative details** |Charity name|A Rare Cause| |---|---| |Other name the charity uses|ARC| |Registered charity number|**1198461**| |Charity’s principal address|10 Bankside Place
Manchester
M26 1RW| |---|---| ||| ## **Names of the charity trustees who manage the charity** |1
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee (if any)**| |---|---|---|---|---| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| ## – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---| |**Type of**
**adviser**
**Name**
**Address**||| |||| |||| |||| |||| |**Name of chief executive or names of senior staff members (Optional information)**||| |||| ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s) Full name(s)** Dumebi Oderinde **Position (eg Secretary,** Chair **Chair, etc) Date** 24/09/2024 Wise Payments Ltd. 6th Floor, The Tea Building, 56 Shoreditch High Street London E1 6JJ United Kingdom ## GBP statement ## 11 January 2023 [GMT] - 11 December 2023 [GMT] Generated on: 11 September 2024 Account Holder Account number UK sort code A Rare Cause 83140948 23-14-70 10 Bankside Place IBAN Swift/BIC Manchester GB21 TRWI 2314 7083 1409 48 TRWIGB2LXXX m261rw United Kingdom ## GBP balance on 11 December 2023 [GMT] ## 0.00 GBP |Description||Incoming|Outgoing|| |---|---|---|---|---| |No information|||-45.00|0.00| |23 November 2023|Transaction: BANK_DETAILS_ORDER_CHECKOUT-invoice-8764992|||| |Topped up balance||45.00||45.00| |23 November 2023|Transaction: TRANSFER-876269493|||| Wise Payments Limited, trading as Wise, is an Authorised Electronic Money Institution under firm reference number 900507 with the UK Financial Conduct Authority (FCA). Wise Payments Limited is registered in England and Wales with Companies House under company number 7209813. Tel: +44 (0) 203 6950 999 www.wise.com Need help? Visit wise.com/help 1 / 1 ref:4782e8c9-6575-4519-ab74-2130436f6dda