TACCONI GRifN & CO CARIM AFFE TE TTERS NOW UK NGENITAL
TACCOliI GREEY & CO IN In Pa90 No. Tntee8, Annual RoFxYi Indendant Examin8rf5 Rewt Statement al FlnarKW Actmi 8al8rw She81 Notes to the A(xwnts
TACCONI GREbN& CO EPORT CARIN CHARir NAEV RUSTEES F NOW UK SE AFFECTED DED rrAL M The trustees present their report for the year ending 31 March 2024. Caring Matters Now Is registered with the Charities Commission, No. 1192670, and is governed by the char5 constitution under a trust deed dated 7.12.2020 and by applicable law. The address for Carin8 Matters Now is: Bridge Chapel Centre Heath Road Liverpool L19 4XR The trLtstees for the year were: Val Unsworth IChaSrl lan Chance (Treasurer} Ruth Gold Emma Roblns Trncy Traverse.8urley Kvhan Valleekanthan Robert Jackson- Resigned 9th September 2023 Bronagh Cleland- Reslgned 21° March 2024 Trustees a appolnted by the board of trusiees. ObJectlv•$ and Artlvltles The objects of the CIO are: The rellef of slckne55 and distress and the protection and PreSeatIon of the heafth of persons affected by CMN and thelr families and carers, In partlcular, but rt restricted to.. (al The advancement of the educatlon of the medical profession and the general public Into CMN and its impllcatlons for the family; and Ibl The promotion of research into the causes, effects. treatments and managernent of CMN and to disseminate the useful results theOf. The charity actlvltles to athieve thi5 are: Grant applications and fundraising events Strong support strate8y foi CMN members Training of our regional support contacts Host national, regional and age-speclfic support events across the UK Host onllne support events and community groups Production and distribution of CMN publlcatlons: Insp1 Magazine, support literature. medicol booklet Production and distribution of CMN merchandise Ralslng the CMN profile through media & website Exhibiting at International conferences to ralse awane$S of the condition and the charlty
TAC.CON'I Gk8EN & CO In setting objectives and plannlng activities. the trustees have glven due consideration to the Charlty Commission's 8eneral guidance on public benefit and in particular, to its supplementary public benefft guldance on the relief of those in need. by reason of ill-healih or other disadvantage {physical disfigurementl. The charity's day-to-dayoperation5 are managed by a Chief Executive, who is SUPPOrted by 4 members of statr. Support Pathway Practitioner, Finance Officer and Fundraisin8 & Communicatlons offir. With the grovrth of the charlty, a Charity Administrator was appointed to support the team. The charity has a core group of volunteers who assist the 5tsff in deliverlng our sUPPOrt, fundraising and communlcatlons strategy. Achlevements and P•rforrni Continued to strengthen our brand awareness by enhandng our soclal media footprlnt, Improvln8 webslte content and producin8 new siipport materials arKI fundralsln8 campaigns. Developed our Support Pathway ensuring tsilored 5UPPOrt Is provlded to all members. wtth spectfic focus on continuing to develop support for siblin8s and adult members, akJn8side enhancin8 our EDI focu5. Contlnued to host onllne communities for families affected by CMN, includin8 a gaming communlty tallored to attrart 'dads and lads., a monthly tsa & toddler group, new members meeting and our annual onllne research P sentation. Hosted our 2-day annual CMN natlonal support conference at PGL Llddlngton wlth 109 people attendin8. Hosted 8 regional 5UPPOrt events across the UK. provtdln8 chlldren, teenagers ond adults wlth ieam. buildin8 actlvltles to bulld frtendships. share experiences and seek advice and support in a safe and relaxed settlng. The events provkle parents with opportunllkes to share experlentes and recelve expert a(Ivlce from our support contod team. The support contact team has contlnued to offer re8ional support to members across the UK. We have 24 support contscts based around the UK. Hosted our annual tralnin8 and Information day for ourvolunteer support contact team. The trainln8 day provlded an opportunity for our sUPPOrt contacts to leam more about the CMN research, to hear about charity developments, to partlcipate in support tralnln8 dellvered by a professional counsellor, and to share their experiences of providin8 SUPPOrt to members. A lar8e proportion of the day was focused on EDI training for our volunteer team. Developed our sUPPOrt literature library by producin8 a CMN awareness card for those affected by CMN to give to people in thelr community. Designed and produced our annual support magazine entltled INSPIRE. The ma8azine Is sent to all charity members and Includes support advice, fundraising Stories. charity news and researth updates. Provided fundin8 to advance the dedi&ited CMN research at Great Omond Street Hospltal, which has made huge headway Into understanding the causes of CMN, and now working towards a C.
TACCONI Continued to provide parents of a new-born baby affected by CMN the opportunity to book an inltlal hour-lon8 SUPPOrt con5ultstion with the charitls Support Pathway Practltloner. The consultation glves parents an invaluable opportunlty to receive immediate advice. 5UPPOrt and reassuran. Parents can book a support consultation by efther emailing the charity or by calling our dedlcated Support Helpline. Launched our third 'how do you C Me Now?, personal story documentary video, whlch can be vlewed on our social media platforms, website and YouTube channel. Exhibited the 'how do you C Me Now?. series of portralts at the Brft15h A550ciatlon of Dermatologlsts annual meetlng. During the 3-day meetin& 121)> demiatolo8iSts viewed the exhibitlon. and the feedback was extremely posltlve. Developed our fundralsln8 Strategy by providi a host of opportuntties for members and supporters to raise funds for Caring Matters Now. As part of our strategy. we presented the annual Jessica Ma Award to recognise our top fundraisers for 2023. Increased and malntalned merchandise ran8e to assist wilh bulklln8 brand awareness and to ralse addltlonal funds. Participated in the Rare Dtseases Dwi Feb 2024 to ralse the proftle of CMN. Produced new Pollcies and Procedures, as well as revlewln8 current pollcles and procedures. Expanded our staff team by an addltlonal part-llme staff member to support admlnlstration•l tasks, alongside expanding our key volunteers, team whh an addltEonal 3 new volunteer5 providln8 support across the UK. Flnandal Revlew The Charlty spend51ts funds very carefully and always in accordance wlth relevant charity rules and le8islatlon to support its 3 clear charitable alm5,' to support those affected by CMN, to fund CMN research, and lo ralse awareness about CMN. Support- We have provided finances for supportlng those affected by CMN. Thls Includlng fvndlnB in-person and online sUPPOrt events alor8 with printed support materlal. Awareness - We have funded awareness campaigns to raise the profile of CMN on a global Scale, as well as attendin8 natlonal medical conferences to educate d¢xtors. nurses and midwives about CMN. Resear¢h-Through grants recerved and research donations, we have been •ble to fuvMI the ploneerlng research undertaken by Professor Kinsler and her team. The charity does not invest funds outside of the Th)mial banking facilitie5. The trustees revlewfinanclal requirements and in doing 50. areas of actlvSty. fvnding sources, future needs, opportunities, contingencies. and risks are all duly considered. Reserves Pollcv Wlth the increase in charity expenditure the retsined cash reserve has been increased to £75.IXKI.
TACCON'I CJRF.FN & CO Trurtees. R¢spon5ibllltles Statsment The trustees are responsible for pparing the Trustees, Annual Report and the financial statements In accordance with applicable law and Unlted fingdom Accountln8 Standards (United Kingdom Generalty Accepted Accounting Practice). The law apPIable to charities in England & Wale5 requlres the trustee5 to prepare ftnanclal ststements for each financlol year which 8r4e a true and fair view of the state of affairs of the charity and of the Incoming resources and appllcatk)n of resources of the charfty ft>rthat period. In prepariNd these financial statements. the tr[ee5 are requlred to: select suitable accountlng pollcles and ihen apply them conslstentty,. observe the rnethods and princlples In the Charities SORP 2019 IFRS 1021; make judgements and estimates that are reasonable and prudent- state whether applicable accountin8 Standards have been followed. subJect to any materlal departures disclosed and explalned ID the financial statements: prepare the flnancial statements on the 8oln8 concern basis unless It Fs Inapproprlate to presume that the charlty will continue in operatlon. The trustees are responsible for keeping proper account5n8 records that dlsclose wlth reasonable accuracy at any time the flnancial position of the charity and enable them to ensure that the flnanclal Statements comply wlth the Charltles Act 2011. the Charities IAccounts and Reports) ReBulations 2LI)8 and the provlslons of the trust deed. They are also responsible for safe8uardlng the assets of the charity and hence for taklns reasonable steps for the preventlon and deteCtn of fraud and other Irre8ularltles. ank Attounts The Charlty's bankers are: Charities Aid Foundatlon Fla8Stone The Independent Examlnerls K F Green, tradlr% as Tacconl Green & Co. Approved by the trustees and slBned on their behalf by: lan Chance (Trustee l Treasurer) Dated: iJ-/ /zo LJ-
TACCONI tiiiEEN & to IN INER. SNOW THO EAFF l rnport to the ¢harfty trLtstee8 on my of the of Ihe thaiity f(Y ts year endgd 31st Marth 2024 whlch are s•1 wt ¢)n pag9s 6 to 10. RMponlbllltlM and ba¥1• of r•wl As the ¢hadVs trusteos are resporribl& for the wgparthi ofth8 8cc4Junts kn ac(y)rdarTh wlth the requirements of the Charttles Act 2011 (Ihfj I report In rgSPgGt of my examh)8tkA) of the acoJrt8 caffi&l out uThJer 8odK)n 145 ofthe Act and in carrylng Out my examinalon I have folkN4ed all the apph¢ab DITtctkTh given by Charlty cOmThSsIon under saclion 1445Xb} rf tho A¢ IrKl•p•nd•nt •xamlnèrfi •tatThnl Slnco the chwtys gT066 exceodod £2.(1 examw must be a m•mbgr ofa body Ilsted In 8ocllon 145 of the Ad. I confim th81 l am qudlfiod to undortake the 8xamlnalitin b¥8 l am 8 member of tha As$wlati of AcCn Tacthdans. whkh is ona of tho listed IMxllg8. I havè cc¥nplelèd my exwnlnalkn. I Cfirm thal no mgtsrfal m8ttor8 have m0 to my ottgnuon nn•IDn wth the examln81ion ¥vlThJ me causa lo that in any matorfgl re8pgcL 1. accouritkng record6 w•ro not kfjpl kn re8pe(a of tho as rnquIr1 by G¥on 130 of the Act: or 2. tho ac(y)Lmts do Mt acco wlth th080 rK(Yds: or 3. th• 8¢count8 do comply wth tho applcatl8 rgqurws conc•mlng tho fonn and content of the &counts set out kn th• Charltles (AccntS and Rep)rtsl Rewlakns 2(M)8 1)tt1gr thon any rtyulrèmènl Ihal the ¥¢cnts glvo a and falr weth is not a m8ttor Gonsldorwj 88 part of In exin8t)n. I h8v• no and h9 come olher mattws kn cormthn wlth tho ex8nln&tlon to whlch att8ntlon should bo drthn in th1¥ w)rt In order lo enabsè a propor urKlrtwdlng of tho lo reached. K F Gn {FIAhAT) 32a E88t SIMBI St. Ives Cambs PE27 S>D
TACCONI GREF.N & CO ARIN NOW FINA14 TMllES Fund• Fund• Tolal 2023 INCOME Donatlons Gr8nt8 Fun¢Jrdslng ev13 Carfng Matters N(yw Bvents Olher Inme Inleresi recelved 10.654 6.3SS 17.009 160,0(MJ 160,03 2256 21,125 29,075 16,147 21,389 11,825 230,7 18.869 29.075 16.147 21.389 354.354 19.317 2.012 TOTAL INCOPIE EXPENDITURE SupFort costs Aw8ieness 81$ ResearGh ¢08ts Fundralslng costs Gov8rnanGg ¢0818 410,377 5.847 34.070 15,810 180,383 74.446 21.656 180.582 23.408 46.833 84,388 25.259 140,270 189,192 38.686 19,2 42,927 TOTAL EXPENDITURE 851 230 075 346 926 8urplu•lLo•• for th• y• (12.717) (W,464) I81182} 192,711 Tran•l•r b•tw••n lund• Accumulat FLmd Iwht 280.080 219,287 491387 306,650 umulat•d Fund c•rrl•d lo¥1d 417 185
TACCONI GREEf4' & CO CARING MAThERS NOW UK E AFFE ED GENrrAL MELAN HARtTY F Fund• Fund• T•)l•l Flx•d A•••ts Tanglt4e assets 3.429 Curr•nt AM•t• Debtor8 C88h at bank & In hond 3,801 263,330 1001 411153 033 491683 149.823 Total Curr•nt L•M Curr•rf LIAbllltl cr (2.997) 119971 112581 283 934 149 823 Tolal A•• 287 363 149 823 417 185 R•prM•nt•d by In¢om• Fund• Unrestricted funds Reslrtcted funds 267,363 2.080 219,287 149,823 149.823 TOTAL 267,363 149,823 417 185 499,367 These accounts wern apwovgd on bow on thè Man*ry Commlito8 and werè ¥ned on Is bohew by: Ian Chance (Trustee l Treasurer)
rALCUNI GREEN & CO CAIING MATTERS N FFECTED BY NTS FOR THE H&RtrY F ENDED 31ST MARCH 2024 COUNTING POUCIES 8a•l¥ of pr•parfng th• Ilnanclal •tal•m•ni• The fanal slaternènts of the Charita cMipany. whthls a puts1 bBfft uThJar FRS 102. have been pwared In ac0)rd wrth the Charitss SORP {FRS 1021'knunlng and Rworb'ng by Charttios.. stlant ol RecOmrn8l8d Prath"( applk8bJe to tharffjes PTep8ring thwr actwnts in tortlanc with narJaI RepNd Stsndonj applkJble In the UK Republlc ol lrnland IFRS 1021 {affÈ¢b've 1 January 20151,. Pld01 RewtirvJ Standard 102 Thè Fln8nd81 Stan¢J¥d akWt8t4è in the UK aTh1 RPU¢ Irelanrf and the Charftles Ad 2011. financjal The finanoal stst•m•rhts have bwn prepar•d to 4 Iru8 Ind f•'rf vlthv gn(I Iwve departed from the Charrtw IAffwnts 8rkJ Réports) RewLthis 2(Th to lh8 extent rwulred to provhl8 a'lrue lair view departur8 has ¢n¥oW th& A££TntrYd and Rapth'rvJ by ChanW.. Statement of Rmmendj Practice aptyIc4b to ¢h>fjl8 preparirrfj their acclnIS In Ydance wth th• Flnancaal R8porbThJ Standard In UK and Rep1 of Ire19nd IFRS 102) tssu8d on 18 July 2014 ratherlhan tho fvuothllng and RwUThJ by Charlllas.. Stslgmonl of RecommerJ•J Tho finanaal slatemwts or? prrf>ar&1 on a go concem ba$is the Nslorfcal c08t cl)nvtiOn. rIlifk8d to Indude CWIn Mems aifalr vdue. Th81kn8ndal 8t8tw¢th pr8s8nt8d In stertlrKJ whkh thefuncLThI currwy ofthè ur¥J?j S) no8resl pInd. Al Inr•)mè18 In thB Sernrt cl Fin81 the drfty has gnttt1em¢ to Ihefimds. it Is probab Ihat the Ine4)m8 W11 be r¥011 8nd thg arUnt ran be ro11gbty. Exp•ndlfvv• LlabllttleB are a8 ejptyidllwo 88 sc4Jn 98 M 18 8 legal or c¢nstrL¥e obhgaon o)mmMlng Iho chwSty lo th81 WItuTe. tt16 probthg thal a tr81 ol beIllS wll bg requIa in setttent and thè 8rTwnt of jalb)n can bè nwsurnd rdlably. Wen(J6tWg18 a¢Unted for on an ¥trU$ basls and h8$ be dassIf1 uThJ•r Iwdlngs Ihal aggr1• all cost rat lo Ihe (egcry. Whare t)$ carnot be dlrKty attribut•J to P8rtkulai headlngs thoy ha b8on lkKat8d lo aclfvnlos on a bam rAJrwffjienl lth th8 Ltgè of f890urceg. T•ngknl• fix•d a•••ts Dralb)n L8 provkJ8d 8t thelc•JY•ifvJ 8Mual rat88 kn onl•rto wrtite ¢Jff 00th asset 0¥gr Is 6Stimated useful lrfo. Oflk¥ . 25% on boLgn Fund •ee¢unthq Unrestrfct8d funos Can bo Lood In ac0)r the ¢hwltth obJxv8S 8t t1 dlscr8tty crfthe Res1rfCt lurKts con orty be uj for parucr resknthj p)r wiihSn th8 obiKts of tr* charlty. RgstrldKJns fund8 we TaLswJ for partIcar Yestricged purposgs.
TACCONI CIRF.F.N & C() TRUSTEES. REMUNERATION AND BENEFtTS Thern no truth8. remunarntson Lyothw b8nefits for th& year endèd 3181 March 2024. Tru¥t•M' •xp•n• T0 ol•xp•nM¥ r•I1Urmd Thls •r LA•t ymr Tr•v•l Sub•l•t•nc• Oth•r 49 TOTAL Pl••M wovld• th• numb•r allt••• rnlmburn•d for •xp•nM• or STAFF cosrs Thè avary rNxthty nurnberofenyloyets durlNJ ts )ar wa8 8# fon(y3.' 2024 2023
TACCONI tiREEN & CO ARING MArrER E AFFE TANGIBLE FIXED ASSETS Computer Equlpmont Cost A8 al 1$1 April 2023 Addttlons Dlsposals 1,524 A8 al 31st March 2024 D•prKlatlon A5 al 1 sl April 2023 Charge for tl* y On dK8posal8 AS at 31st March 2024 N•t Book Valu• As al 318t March 2024 N•t Book Valu• AS at 31st Mwch 2023 DEBTORS 2023 Trade debtors Gift 3.601 6.033 3.601 CREDtroRS 2024 2023 PAYE credttor Other creditors A¢¢ruds 1.997 2,149 334 775 2,997 3.258 10
TALLONI GREEN& CO rrERS NOW UK AFFECTED BY C NGENrrAL MELAN YEAR E rry FOR TH NOTE HE cync NAEVU CH2 MOVEMENT IN FUNDS Nel movement in funds At 1.4.23 At 31.3.24 Unr••lrf¢t•d fund• (12.717) 267.3e3 R•8trlrt•d fund• 219,287 (69,464} 149,823 TOTAL FUND8 82,182 Net movemenl in fu18, Induded In ab¢M we as folkyh3: Incomlng Galn8 & Movement In fund8 expended Unro•trfcl•d fund• 96,134 (108,851) (12,717) Rwtrlct•d funds 168,611 (238.075) {69,4641 TOTAL FUND8 11