OpenCharities

Cure Clcn4 LTD

Country
England & Wales
Charity number
1190344
Status
Registered
Registered
July 10, 2020
Legal form
Charitable company

Address

Address
2 Duke Street
London
W1U 3EH

Contact

Phone
+442079350992
Email
[email protected]
Website
cureclcn4.org
Website screenshot

Activities

We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.

Objects: The Objects Of The Charity Are:(a) The Advancement Of Health, Relief Of Sickness And Saving Of Lives By Such Means As The Trustees See Fit Including But Not Exclusively Through:(i) Providing Relief And Assistance To People Suffering From Pathogenic Variants Of Clcn4; And(ii) The Funding Of Medical Research Anywhere In The World For The Purpose Of Discovering, Developing And Delivering Treatment For Patients With Pathogenic Variants Of Clcn4; And(b) The Furtherance Of Such Other Charitable Purpose Or Charitable Purposes As The Trustees In Their Absolute Discretion From Time To Time Think Fit, In Each Case For The Public Benefit.

Classification

How
Makes Grants To Organisations, Sponsors Or Undertakes Research
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £88,637 £88,907
Dec. 31, 2023 £78,479 £118,510
Dec. 31, 2022 £23,492 £45,352
Dec. 31, 2021 £107,720 £33,098
Dec. 31, 2020 — £8,548

Trustees

Name Appointed
Peter James Alistair Trill (Chair) Feb. 6, 2020
Alexis Karim Feb. 6, 2020
Dr Alan Wise Feb. 6, 2020
Larry Louison Feb. 6, 2020
Paul McGuinness June 7, 2022
Wang Sin Tan Feb. 6, 2020