{"country": "England & Wales", "charity_number": "1190344", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1190344", "name": "CURE CLCN4 LTD", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2020-07-10", "date_removed": null, "legal_form": "Charitable company", "area_of_benefit": null, "address": "2 Duke Street, London", "postcode": "W1U 3EH", "phone": "+442079350992", "email": "peter.t@cureclcn4.org", "website": "https://cureclcn4.org", "lat": 51.51631, "lng": -0.152951, "activities": "We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CHARITY ARE:(A) THE ADVANCEMENT OF HEALTH, RELIEF OF SICKNESS AND SAVING OF LIVES BY SUCH MEANS AS THE TRUSTEES SEE FIT INCLUDING BUT NOT EXCLUSIVELY THROUGH:(I) PROVIDING RELIEF AND ASSISTANCE TO PEOPLE SUFFERING FROM PATHOGENIC VARIANTS OF CLCN4; AND(II) THE FUNDING OF MEDICAL RESEARCH ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENT FOR PATIENTS WITH PATHOGENIC VARIANTS OF CLCN4; AND(B) THE FURTHERANCE OF SUCH OTHER CHARITABLE PURPOSE OR CHARITABLE PURPOSES AS THE TRUSTEES IN THEIR ABSOLUTE DISCRETION FROM TIME TO TIME THINK FIT, IN EACH CASE FOR THE PUBLIC BENEFIT.", "classifications": [{"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 101, "description": "General Charitable Purposes"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 88637, "latest_expenditure": 88907, "fin_period_start": "2024-01-01", "fin_period_end": "2024-12-31", "financial_years": [{"start": "2024-01-01", "end": "2024-12-31", "income": 88637, "expenditure": 88907, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2023-01-01", "end": "2023-12-31", "income": 78479, "expenditure": 118510, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2022-01-01", "end": "2022-12-31", "income": 23492, "expenditure": 45352, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2021-01-01", "end": "2021-12-31", "income": 107720, "expenditure": 33098, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2020-02-29", "end": "2020-12-31", "income": 0, "expenditure": 8548, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}], "documents": [], "trustees": [{"name": "Peter James Alistair Trill", "chair": true, "appointment": "2020-02-06"}, {"name": "Alexis Karim", "chair": false, "appointment": "2020-02-06"}, {"name": "Dr Alan Wise", "chair": false, "appointment": "2020-02-06"}, {"name": "Larry Louison", "chair": false, "appointment": "2020-02-06"}, {"name": "Paul McGuinness", "chair": false, "appointment": "2022-06-07"}, {"name": "Wang Sin Tan", "chair": false, "appointment": "2020-02-06"}]}