# CURE CLCN4 LTD

## Details

- **Country:** England & Wales
- **Charity number:** 1190344
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** July 10, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1190344


## Contact

- **Address:** 2 Duke Street, London
- **Postcode:** W1U 3EH
- **Phone:** +442079350992
- **Email:** peter.t@cureclcn4.org
- **Website:** https://cureclcn4.org



## Activities

**Objects:** THE OBJECTS OF THE CHARITY ARE:(A) THE ADVANCEMENT OF HEALTH, RELIEF OF SICKNESS AND SAVING OF LIVES BY SUCH MEANS AS THE TRUSTEES SEE FIT INCLUDING BUT NOT EXCLUSIVELY THROUGH:(I) PROVIDING RELIEF AND ASSISTANCE TO PEOPLE SUFFERING FROM PATHOGENIC VARIANTS OF CLCN4; AND(II) THE FUNDING OF MEDICAL RESEARCH ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENT FOR PATIENTS WITH PATHOGENIC VARIANTS OF CLCN4; AND(B) THE FURTHERANCE OF SUCH OTHER CHARITABLE PURPOSE OR CHARITABLE PURPOSES AS THE TRUSTEES IN THEIR ABSOLUTE DISCRETION FROM TIME TO TIME THINK FIT, IN EACH CASE FOR THE PUBLIC BENEFIT.

**Activities:** We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.




## Classification

- **How:** Makes Grants To Organisations, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £88637 | £88907 | — | — |
| Dec. 31, 2023 | £78479 | £118510 | — | — |
| Dec. 31, 2022 | £23492 | £45352 | — | — |
| Dec. 31, 2021 | £107720 | £33098 | — | — |
| Dec. 31, 2020 | £0 | £8548 | — | — |



## Trustees

- **Peter James Alistair Trill** (Chair) — appointed Feb. 6, 2020
- Alexis Karim — appointed Feb. 6, 2020
- Dr Alan Wise — appointed Feb. 6, 2020
- Larry Louison — appointed Feb. 6, 2020
- Paul McGuinness — appointed June 7, 2022
- Wang Sin Tan — appointed Feb. 6, 2020