The Smith-Magenis Syndrome (sms) Foundation UK CIO
The Smith-Magenis Syndrome (s.m.s.) Foundation UK
- Country
- England & Wales
- Charity number
- 1186647
- Status
- Registered
- Registered
- Nov. 28, 2019
- Legal form
- CIO
Address
- Address
- 61 High Street
PEWSEY
Wiltshire
SN9 5AF
Contact
- Phone
- 03001010034
- [email protected]
- Website
smith-magenis.org
Activities
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Objects: The Objects Of The CIO Are:a) To Preserve And Protect The Health And Promote The Relief Of Persons Affected By Smith-Magenis Syndrome And Any Associated Condition,b) To Advance The Education Of The Medical Profession And The General Public On The Subject Of Smith-Magenis Syndrome And Its Implications For The Family,c) To Advance Public Education By Promoting Research Into The Management Of Smith-Magenis Syndrome And To Publish Useful Results Thereof And To Support Organisations Promoting Research Into Smith-Magenis Syndrome.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- People With Disabilities
Areas of operation
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| June 30, 2024 | £81,579 | £84,648 |
| June 30, 2023 | £82,983 | £89,727 |
| June 30, 2022 | £105,691 | £135,109 |
| June 30, 2021 | £78,468 | £98,206 |
| June 30, 2020 | £13,388 | £7,696 |
Trustees
| Name | Appointed |
|---|---|
| Hazel Wotherspoon (Chair) | Nov. 17, 2019 |
| Alistair Hudson | Feb. 5, 2025 |
| Alvar de Wolff | Feb. 5, 2025 |
| Andrew Bird | Feb. 5, 2025 |
| Emma Riddell | Nov. 17, 2019 |
| Jacqueline Jenkins | July 1, 2023 |
| Jayne Marie Dainty | Jan. 25, 2022 |
| Laurie Grainger | Feb. 5, 2025 |
| Michael Pearson | Nov. 16, 2019 |
| William Stevenson | Feb. 1, 2025 |
Nearby
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