{"country": "England & Wales", "charity_number": "1186647", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1186647", "name": "THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO", "known_as": null, "other_names": [{"name": "THE SMITH-MAGENIS SYNDROME (S.M.S.) FOUNDATION UK", "name_type": "Previous name"}], "status": "Registered", "date_registered": "2019-11-28", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "61 High Street, PEWSEY, Wiltshire", "postcode": "SN9 5AF", "phone": "03001010034", "email": "contact@smith-magenis.co.uk", "website": "www.smith-magenis.org", "lat": 51.340329, "lng": -1.763704, "activities": "We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability.  Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE:A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 101, "description": "General Charitable Purposes"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 81579, "latest_expenditure": 84648, "fin_period_start": "2023-07-01", "fin_period_end": "2024-06-30", "financial_years": [{"start": "2023-07-01", "end": "2024-06-30", "income": 81579, "expenditure": 84648, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-07-01", "end": "2023-06-30", "income": 82983, "expenditure": 89727, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-07-01", "end": "2022-06-30", "income": 105691, "expenditure": 135109, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-07-01", "end": "2021-06-30", "income": 78468, "expenditure": 98206, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2019-11-28", "end": "2020-06-30", "income": 13388, "expenditure": 7696, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Hazel Wotherspoon", "chair": true, "appointment": "2019-11-17"}, {"name": "Alistair Hudson", "chair": false, "appointment": "2025-02-05"}, {"name": "Alvar de Wolff", "chair": false, "appointment": "2025-02-05"}, {"name": "Andrew Bird", "chair": false, "appointment": "2025-02-05"}, {"name": "Emma Riddell", "chair": false, "appointment": "2019-11-17"}, {"name": "Jacqueline Jenkins", "chair": false, "appointment": "2023-07-01"}, {"name": "Jayne Marie Dainty", "chair": false, "appointment": "2022-01-25"}, {"name": "Laurie Grainger", "chair": false, "appointment": "2025-02-05"}, {"name": "Michael Pearson", "chair": false, "appointment": "2019-11-16"}, {"name": "William Stevenson", "chair": false, "appointment": "2025-02-01"}]}