# THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO

## Details

- **Country:** England & Wales
- **Charity number:** 1186647
- **Other names:** THE SMITH-MAGENIS SYNDROME (S.M.S.) FOUNDATION UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 28, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1186647


## Contact

- **Address:** 61 High Street, PEWSEY, Wiltshire
- **Postcode:** SN9 5AF
- **Phone:** 03001010034
- **Email:** contact@smith-magenis.co.uk
- **Website:** www.smith-magenis.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE:A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.

**Activities:** We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability.  Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2024 | £81579 | £84648 | — | — |
| June 30, 2023 | £82983 | £89727 | — | — |
| June 30, 2022 | £105691 | £135109 | — | — |
| June 30, 2021 | £78468 | £98206 | — | — |
| June 30, 2020 | £13388 | £7696 | — | — |



## Trustees

- **Hazel Wotherspoon** (Chair) — appointed Nov. 17, 2019
- Alistair Hudson — appointed Feb. 5, 2025
- Alvar de Wolff — appointed Feb. 5, 2025
- Andrew Bird — appointed Feb. 5, 2025
- Emma Riddell — appointed Nov. 17, 2019
- Jacqueline Jenkins — appointed July 1, 2023
- Jayne Marie Dainty — appointed Jan. 25, 2022
- Laurie Grainger — appointed Feb. 5, 2025
- Michael Pearson — appointed Nov. 16, 2019
- William Stevenson — appointed Feb. 1, 2025