International XLH Alliance
Xlh UK
- Country
- England & Wales
- Charity number
- 1182964
- Status
- Registered
- Registered
- April 12, 2019
- Legal form
- Trust
Address
- Address
- 28 Tunbury Avenue
CHATHAM
Kent
ME5 9EJ
Contact
- Phone
- 07905115944
- [email protected]
- Website
xlhalliance.org
Activities
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
Objects: The Preservation Of Good Health Among Sufferers Of X-Linked Hypophosphatemia And Related Disorders By:a) Supporting Research For The Public Benefit Into The Causes, Prevention, Diagnosis And Methods Of Treatment Of X-Linked Hypophosphatemia And Related Disorders And Publishing The Useful Results Of That Research;b) Provision Of A Support Network For Families Suffering From The Effects Of X-Linked Hypophosphatemia And Related Disorders; C) Advocating Early Diagnosis And Well-Managed Treatment Of X-Linked Hypophosphatemia And Related Disorders.
Classification
- How
- Provides Advocacy/advice/information
- What
- The Advancement Of Health Or Saving Of Lives
- Who
- People With Disabilities
Areas of operation
- Country
- Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Chile, Denmark, Finland, France, Germany, Guernsey, Hong Kong, Hungary, India, Ireland, Isle Of Man, Israel, Italy, Japan, Jersey, Netherlands, Northern Ireland, Norway, Portugal, Scotland, Spain, Sweden, Switzerland, United States
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Jan. 31, 2025 | £690 | £4,390 |
| Jan. 31, 2024 | £690 | £4,390 |
| Jan. 31, 2023 | £82,141 | £66,295 |
| Jan. 31, 2022 | £7,531 | £1,646 |
| Jan. 31, 2021 | £66,727 | £578 |
Trustees
| Name | Appointed |
|---|---|
| Oliver Gardiner (Chair) | Nov. 18, 2017 |
| Sally Marianne Shaw | Nov. 29, 2020 |
| Shannon Sharp | June 30, 2022 |