OpenCharities

International XLH Alliance

Xlh UK

Country
England & Wales
Charity number
1182964
Status
Registered
Reporting
Up to date Last filed Feb. 9, 2026. Filing history
Registered
April 12, 2019
Legal form
Trust

Address

Address
28 Tunbury Avenue
Chatham
Kent
ME5 9EJ

Activities

To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.

Objects: The Preservation Of Good Health Among Sufferers Of X-Linked Hypophosphatemia And Related Disorders By:a) Supporting Research For The Public Benefit Into The Causes, Prevention, Diagnosis And Methods Of Treatment Of X-Linked Hypophosphatemia And Related Disorders And Publishing The Useful Results Of That Research;b) Provision Of A Support Network For Families Suffering From The Effects Of X-Linked Hypophosphatemia And Related Disorders; C) Advocating Early Diagnosis And Well-Managed Treatment Of X-Linked Hypophosphatemia And Related Disorders.

Classification

How
Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Geography

Country
Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Chile, Denmark, Finland, France, Germany, Guernsey, Hong Kong, Hungary, India, Ireland, Isle Of Man, Israel, Italy, Japan, Jersey, Netherlands, Northern Ireland, Norway, Portugal, Scotland, Spain, Sweden, Switzerland, United States
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Jan. 31, 2025 Feb. 9, 202671 days late £690 £4,390
Jan. 31, 2024 Dec. 5, 20245 days late £690 £4,390
Jan. 31, 2023 Nov. 30, 2023On time £82,141 £66,295
Jan. 31, 2022 Oct. 30, 2022On time £7,531 £1,646
Jan. 31, 2021 Nov. 13, 2021On time £66,727 £578

Trustees

Name Appointed
Oliver Gardiner (Chair) Nov. 18, 2017
Sally Marianne Shaw Nov. 29, 2020
Shannon Sharp June 30, 2022