# International XLH Alliance

## Details

- **Country:** England & Wales
- **Charity number:** 1182964
- **Other names:** XLH UK
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** April 12, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1182964


## Contact

- **Address:** 28 Tunbury Avenue, CHATHAM, Kent
- **Postcode:** ME5 9EJ
- **Phone:** 07905115944
- **Email:** contact@xlhalliance.org
- **Website:** xlhalliance.org



## Activities

**Objects:** THE PRESERVATION OF GOOD HEALTH AMONG SUFFERERS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS BY:A) SUPPORTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND METHODS OF TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS AND PUBLISHING THE USEFUL RESULTS OF THAT RESEARCH;B) PROVISION OF A SUPPORT NETWORK FOR FAMILIES SUFFERING FROM THE EFFECTS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS; C) ADVOCATING EARLY DIAGNOSIS AND WELL-MANAGED TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.

**Activities:** To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Areas of operation

- Australia
- Austria
- Belgium
- Brazil
- Bulgaria
- Canada
- Chile
- Denmark
- Finland
- France
- Germany
- Guernsey
- Hong Kong
- Hungary
- India
- Ireland
- Isle Of Man
- Israel
- Italy
- Japan
- Jersey
- Netherlands
- Northern Ireland
- Norway
- Portugal
- Scotland
- Spain
- Sweden
- Switzerland
- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Jan. 31, 2025 | £690 | £4390 | — | — |
| Jan. 31, 2024 | £690 | £4390 | — | — |
| Jan. 31, 2023 | £82141 | £66295 | — | — |
| Jan. 31, 2022 | £7531 | £1646 | — | — |
| Jan. 31, 2021 | £66727 | £578 | — | — |



## Trustees

- **Oliver Gardiner** (Chair) — appointed Nov. 18, 2017
- Sally Marianne Shaw — appointed Nov. 29, 2020
- Shannon Sharp — appointed June 30, 2022