{"country": "England & Wales", "charity_number": "1182964", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1182964", "name": "International XLH Alliance", "known_as": null, "other_names": [{"name": "XLH UK", "name_type": "Previous name"}], "status": "Registered", "date_registered": "2019-04-12", "date_removed": null, "legal_form": "Trust", "area_of_benefit": null, "address": "28 Tunbury Avenue, CHATHAM, Kent", "postcode": "ME5 9EJ", "phone": "07905115944", "email": "contact@xlhalliance.org", "website": "xlhalliance.org", "lat": 51.337925, "lng": 0.52013, "activities": "To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE PRESERVATION OF GOOD HEALTH AMONG SUFFERERS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS BY:A) SUPPORTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND METHODS OF TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS AND PUBLISHING THE USEFUL RESULTS OF THAT RESEARCH;B) PROVISION OF A SUPPORT NETWORK FOR FAMILIES SUFFERING FROM THE EFFECTS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS; C) ADVOCATING EARLY DIAGNOSIS AND WELL-MANAGED TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.", "classifications": [{"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Australia"}, {"area_type": "Country", "area_description": "Austria"}, {"area_type": "Country", "area_description": "Belgium"}, {"area_type": "Country", "area_description": "Brazil"}, {"area_type": "Country", "area_description": "Bulgaria"}, {"area_type": "Country", "area_description": "Canada"}, {"area_type": "Country", "area_description": "Chile"}, {"area_type": "Country", "area_description": "Denmark"}, {"area_type": "Country", "area_description": "Finland"}, {"area_type": "Country", "area_description": "France"}, {"area_type": "Country", "area_description": "Germany"}, {"area_type": "Country", "area_description": "Guernsey"}, {"area_type": "Country", "area_description": "Hong Kong"}, {"area_type": "Country", "area_description": "Hungary"}, {"area_type": "Country", "area_description": "India"}, {"area_type": "Country", "area_description": "Ireland"}, {"area_type": "Country", "area_description": "Isle Of Man"}, {"area_type": "Country", "area_description": "Israel"}, {"area_type": "Country", "area_description": "Italy"}, {"area_type": "Country", "area_description": "Japan"}, {"area_type": "Country", "area_description": "Jersey"}, {"area_type": "Country", "area_description": "Netherlands"}, {"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Norway"}, {"area_type": "Country", "area_description": "Portugal"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Country", "area_description": "Spain"}, {"area_type": "Country", "area_description": "Sweden"}, {"area_type": "Country", "area_description": "Switzerland"}, {"area_type": "Country", "area_description": "United States"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 690, "latest_expenditure": 4390, "fin_period_start": "2024-02-01", "fin_period_end": "2025-01-31", "financial_years": [{"start": "2024-02-01", "end": "2025-01-31", "income": 690, "expenditure": 4390, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-02-01", "end": "2024-01-31", "income": 690, "expenditure": 4390, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-02-01", "end": "2023-01-31", "income": 82141, "expenditure": 66295, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-02-01", "end": "2022-01-31", "income": 7531, "expenditure": 1646, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-02-01", "end": "2021-01-31", "income": 66727, "expenditure": 578, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Oliver Gardiner", "chair": true, "appointment": "2017-11-18"}, {"name": "Sally Marianne Shaw", "chair": false, "appointment": "2020-11-29"}, {"name": "Shannon Sharp", "chair": false, "appointment": "2022-06-30"}]}