Acrodysostosis Support & Research
- Country
- England & Wales
- Charity number
- 1182818
- Status
- Registered
- Registered
- April 5, 2019
- Legal form
- CIO
Address
- Address
- Bath House
Cudworth Lane
Newdigate
Dorking
Dorking
Surrey
Contact
- Phone
- 07949883817
- info@acrodysostosis.com
- Website
acrodysostosis.com
Activities
The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms
Objects: The Objects Of The CIO Are To Relieve The Needs Of Those Affected By Acrodysostosis Disease, Their Families, Friends And Carers By:-(1) Promoting Greater Understanding Of The Causes, Symptoms And Treatment Of Acrodysostosis Disease In All Its Forms Including By The Promotion Of Research And Sharing And Disseminating Of The Results Of Such Research For The Benefit Of The General Public;(2) Raising Public Awareness Of The Symptoms, Needs And Related Medical Conditions Of Those Living With Acrodysostosis Disease.
Classification
- How
- Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- Education/training
- Who
- People With Disabilities, The General Public/mankind
Geography
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Dec. 31, 2024 | £2,036 | £1,937 |
| Dec. 31, 2023 | £5,076 | £3,925 |
| Dec. 31, 2022 | £22,836 | £23,284 |
| Dec. 31, 2021 | £12,391 | £63,318 |
| Dec. 31, 2020 | £89,873 | £3,849 |
Trustees
| Name | Appointed |
|---|---|
| Nina Samantha Knight (Chair) | Oct. 1, 2019 |
| Jan Sara Hine | Oct. 1, 2019 |
| Sarah Louise Denney | Oct. 1, 2019 |